3groovygirls

Just to update this - we got the results and she actually has C. Diff. Well, that is weird!! I'm glad it's not Celiac like my other daughter but how strange! He said she probably got it during a course of antibiotics from strep. So yeah, now we have this to deal with. Poor kid!

Thanks guys! I didn't ask WHAT tests they were running on the stool. I just assumed that was the test! They were also checking for H.Pylori I know. Maybe I misunderstood but he seemed to insinuate that if the stool came back a certain way it might justify doing the biopsy on her. Maybe I assumed it was for Celiac but it was for something else? Ok...

Hi everyone, My 11 year old was tested and sent to a GI Dr. for screening b/c she's having a lot of nausea and diarrhea. Her Celiac blood test was negative, however he's calling it inconclusive b/c I have a 6 year old with Celiac. He isn't sure if she eats enough gluten for it to be + because we eat most meals gluten-free. He is having us to a stool...

Thanks so much guys! I will keep an eye on it and if it does flare up more with some things he eats than others. Once you have a child with it you seem to want to blame everything in the other kids on it, LOL! Shadowicewolf - do you have a good lotion you use? I bookmarked a list, but wondered if any of them work better than others.

Hi! I have a 6 year old that has Celiac disease. She's had it since she was 1 year old. We are very used to it....however, that also makes me paranoid to it. My 3 year old hasn't been tested, he has no symptoms of it so his ped decided it's not necessary yet. Recently he developed Eczema on this thighs, it keeps getting worse. I noticed it was particularly...

Thanks so much!! Yes, the ran all sorts of tests which will are very negative. Here they are: Deamin GLIAD PEP IGG (DPG IGG) (<4.9) I got <0.4 " " IGA (DGP IGA) (<6.1) I got 0.3 Tissue Transglutaminase IGA (<10.3) I got 0.2 Total IGA (44-441) I got 90 Then it also says I have the DQ2.5HLA(HLA DQA...

Hi everyone! I have a question about total IgA numbers. I have a daughter with Celiac disease. I decided to go to a GI and get tested as I can tell I am gluten sensitive. I was eating about 85% gluten-free at the time. My IgA number was 90. (I also had the genetic test and found I have the gene) It is passing. My question is, if I was 85% gluten...

Hi everyone! I got my results today. I was tested b/c my daugher has Celiac and I am very skinny and had a high amylase reading, but it appears i don't have Celiac BUT I do have the genes for it. I was wondering if you all could look over the test results and tell me what you think. What are the chances someone with my genes gets Celiac? It says I...

Hi, I am sort of backwards from everyone here. I feel fine, no real symptoms but my Dr's are convinced I have Celiac. My orginial bloodwork was correct but my amylase was high. went to a GI Dr. and since my daughter has has it and is positive for the dQ8 gene and my size he thinks I have it but b/c I eat partially gluten-free the regular testing isn...

Hi, I was getting checked and posted before but I didn't have specifics. now i have them. My DD has Celiac and is positive for the DQ8 Gene. I got checked randomly b/c I was having bloodwork done anyway. Here is what they ran - but compared to what i've read online it's not anything. Is this specific enough to say I don't have celiac? Or was this...

Yes, I was so confused! They said to go to the GI b/c my amylase levels were high. But from reading they don't seem THAT high. Maybe 13-3 points above normal. From what I read this level is only a measure of irritation - like it will be raised for mumps, bowel inflamation or REALLY high (Like 3-4 times normal) for pancreas issues. I don't think he ran...

I got the most confusing results ever. I was tested b/c my daughter has Celiac disease. This is all my Dr. said. He said I passed my Celiac test but my amylase levels were high. They were only slightly high and I"ve read those are commonly raised by pancreasitits (don't have that obviously) or bowel irritation - could that be Celiac? My amylase was...

Well, I don't really mean at home, I mean at school. Like sometimes on rainy days they have play-doh recess. That type of thing. It's not like she plays with it every day. I think I'll look into supplying her school with gluten-free dough. I just never thought it was that bad b/c her Dr. seemed to think the chance was sooooo tiny and remote he made...

Ok, so I googled it to try and understand. From what I read if your IgA SERUM levels are low, this can INACCURATELY make you pass your other levels. Is that what you were saying? So if my number was 84 eating 80% gluten-free, can I assume it would be lower if I was eating more gluten? I KNOW I don't eat the equivalent of 4 pieces of bread a day! Many...

this could affect the outcome of the IgA based tests How does the low serum affect the outcome of the IgA based tests? Sorry, I am so clueless!! Here's the thing, I DO react to gluten now. I NEVER did before I started eating gluten-free for my daughter. Now my system cannot tolerate gluten heavy things - like beer. Oh geez, that kills me! Or regular...