natalieb

Hi Deb, I'm glad you wrote back. If there is anyone in this forum that I can help thru my exp. then I am glad. When I look back now after being diag. 3 months ago with sjogrens, it all fits. About 6 years ago, even before my celiac diagnosis, I would sit in my office and feel like I was flushed. sometimes, my cheeks appeared flushed and sometimes not. i...

I see you posted a while ago but I hope you read this. I have been posting all over here because over a year ago I was diagnosed with celiac disease, however, even after being gluten-free, I developed sores in my mouth, achy joints, bad red swollen eyes, and a dry nose, (I became nasal for the first time in 39 years), I would occasionally become hoarse as...

I just spent some considerable time posting about a disease that accompanies celiac sometimes known as sjogrens syndrome. No, I do not believe you have cancer....I believe it could be sjogrens. I am posting all over this place trying to get those who sound like me to listen. Over a year ago I was diagnosed with celiac. After being gluten-free for almost ...

I have had this question verified by several noted authorities both doctors and clinical nutritionists as when I first read some of the posts on this subject, I flew into a tizzy and went to whole foods on the search for gluten-free everything. Please.... everyone out there who is creating mass panic in telling people that they must have gluten-free shampoos...

I am a 39 year old woman who had been diagnosed with celiac disease well over a year ago. Please listen to this.... I have been reading and posting to this forum for quite some time and occasionally ran across postings that sounded like some of the symptoms that I was experiencing after being gluten-free. For example, a year after being gluten-free, I was...

Hi, Are you sure that you haven't gotten a hold of gluten from something? I know that sounds silly but even certain sodas contain gluten. What about your medications or vitamins? I got sick about a month ago and was so upset because I had done everything to remain gluten-free. Turns out that I was taking a vitamin supplement and when I called the company...

I am 39 years old and suffered from undiagnosed celiac disease for 6 years. I finally got a good doc in pittsburgh who was able to dianose what my other gi doc couldn't do in 6 years. The problem is that I have soem nerve damage due to this disease. My gi doc recommended that I see a neurologist but he didn't give me a name. Needless to say, I found someone...

Hi, I read your comment about the spleen and it was like you described my exact pain. For seven years prior to being diagnosed with celiac disease I suffered from that pain and it can be gnawing. It is in the upper left quadrant. I believe that what you are feeling is your duodenum. Behing your duodenum is your spleen(I believe). Your stomach opens into...

Dawn, How old is your son with celiac disease? I understand what it is like to have this situation as when I was diagnosed with celiac disease my doc told me to have my 9 yr. old tested as well due to the fact that she displays some classic symptoms. The test came back negative, but I noticed when she is gluten-free she does much better. anyhow, when I...

Ok...keep in mind, I am really trying to stick to this gluten-free diet. It has been 5 weeks and I had a craving for something sweet. My 9 year old daughter who hates everything I like, actually loved this. You must like lemons and raspberries. Also, I didn't measure a thing, this is just a dollup here and there thing but it is great! Edys grand vanilla...

Hello Jean. I am a 39 year old woman with celiac and a history of thyroid disease. Unfortunately, my celiac was misdiagnosed for 6 years and I now have a great doctor, however, prior to my diagnosis of celiac, I went to the emergency room from work thinking that I was having a stroke or something. I couldn't take the pain in my left arem and my leg would...

That is so weird because I too just had a relapse with my celiac and I swear that the calcium was to blame. I have called the drug company to have them tell me if gluten is in it but gee...what a surprise...the girl on the other end didn't know, she would get back to me. It has been over a week. Needless to say, I have not taken the calcium and started...

You cannot give up! I was diagnosed in late August and went off my diet around the holidays. My excuse to myself was that it just wasn't working so what the heck. I don't know how bad you have celiac but I have it severe where I have neurological impairment. If you have it badly, do not expect your gut to heal immediately. Because I went off the diet, I...

Somethimes I have found myself unloading the dishwasher and putting the dishes into the fridge...does that answer your question about spaciness? You are not alone; however, your thyroid can really mess you up if not properly controlled. I know, I am 39 and had graves disease. This diagnosis was made when I was about 28. At 38, I was diagnosed with celiac...

Hi, I am 39 years old and very new to celiac but not new to living with autoimmune disorders, ie, thyroid disease. At around 32 I began experiencing what my gi doc told me was colitis. He then did a colonoscopy which showed that I had collangenous colitis. During that time I went from an energetic career woman to someone with numbness in her fingers, lethargy...