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natalieb

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Everything posted by natalieb

  1. natalieb
    Hi Deb, I'm glad you wrote back. If there is anyone in this forum that I can help thru my exp. then I am glad. When I look back now after being diag. 3 months ago with sjogrens, it all fits. About 6 years ago, even before my celiac diagnosis, I would sit in my office and feel like I was flushed. sometimes, my cheeks appeared flushed and sometimes not. i...
  2. natalieb
    I see you posted a while ago but I hope you read this. I have been posting all over here because over a year ago I was diagnosed with celiac disease, however, even after being gluten-free, I developed sores in my mouth, achy joints, bad red swollen eyes, and a dry nose, (I became nasal for the first time in 39 years), I would occasionally become hoarse as...
  3. natalieb
    I just spent some considerable time posting about a disease that accompanies celiac sometimes known as sjogrens syndrome. No, I do not believe you have cancer....I believe it could be sjogrens. I am posting all over this place trying to get those who sound like me to listen. Over a year ago I was diagnosed with celiac. After being gluten-free for almost ...
  4. natalieb
    I have had this question verified by several noted authorities both doctors and clinical nutritionists as when I first read some of the posts on this subject, I flew into a tizzy and went to whole foods on the search for gluten-free everything. Please.... everyone out there who is creating mass panic in telling people that they must have gluten-free shampoos...
  5. natalieb
    I am a 39 year old woman who had been diagnosed with celiac disease well over a year ago. Please listen to this.... I have been reading and posting to this forum for quite some time and occasionally ran across postings that sounded like some of the symptoms that I was experiencing after being gluten-free. For example, a year after being gluten-free, I was...
  6. natalieb
    Hi, Are you sure that you haven't gotten a hold of gluten from something? I know that sounds silly but even certain sodas contain gluten. What about your medications or vitamins? I got sick about a month ago and was so upset because I had done everything to remain gluten-free. Turns out that I was taking a vitamin supplement and when I called the company...
  7. natalieb

    ARCHIVED Doctors

    natalieb posted a topic in Doctors

    I am 39 years old and suffered from undiagnosed celiac disease for 6 years. I finally got a good doc in pittsburgh who was able to dianose what my other gi doc couldn't do in 6 years. The problem is that I have soem nerve damage due to this disease. My gi doc recommended that I see a neurologist but he didn't give me a name. Needless to say, I found someone...
  8. natalieb
    Hi, I read your comment about the spleen and it was like you described my exact pain. For seven years prior to being diagnosed with celiac disease I suffered from that pain and it can be gnawing. It is in the upper left quadrant. I believe that what you are feeling is your duodenum. Behing your duodenum is your spleen(I believe). Your stomach opens into...
  9. natalieb
    Dawn, How old is your son with celiac disease? I understand what it is like to have this situation as when I was diagnosed with celiac disease my doc told me to have my 9 yr. old tested as well due to the fact that she displays some classic symptoms. The test came back negative, but I noticed when she is gluten-free she does much better. anyhow, when I...
  10. natalieb
    Ok...keep in mind, I am really trying to stick to this gluten-free diet. It has been 5 weeks and I had a craving for something sweet. My 9 year old daughter who hates everything I like, actually loved this. You must like lemons and raspberries. Also, I didn't measure a thing, this is just a dollup here and there thing but it is great! Edys grand vanilla...
  11. natalieb
    Hello Jean. I am a 39 year old woman with celiac and a history of thyroid disease. Unfortunately, my celiac was misdiagnosed for 6 years and I now have a great doctor, however, prior to my diagnosis of celiac, I went to the emergency room from work thinking that I was having a stroke or something. I couldn't take the pain in my left arem and my leg would...
  12. natalieb
    That is so weird because I too just had a relapse with my celiac and I swear that the calcium was to blame. I have called the drug company to have them tell me if gluten is in it but gee...what a surprise...the girl on the other end didn't know, she would get back to me. It has been over a week. Needless to say, I have not taken the calcium and started...
  13. natalieb

    ARCHIVED I Give Up!

    natalieb replied to a topic in Coping with Celiac Disease

    You cannot give up! I was diagnosed in late August and went off my diet around the holidays. My excuse to myself was that it just wasn't working so what the heck. I don't know how bad you have celiac but I have it severe where I have neurological impairment. If you have it badly, do not expect your gut to heal immediately. Because I went off the diet, I...
  14. natalieb
    Somethimes I have found myself unloading the dishwasher and putting the dishes into the fridge...does that answer your question about spaciness? You are not alone; however, your thyroid can really mess you up if not properly controlled. I know, I am 39 and had graves disease. This diagnosis was made when I was about 28. At 38, I was diagnosed with celiac...
  15. natalieb
    Hi, I am 39 years old and very new to celiac but not new to living with autoimmune disorders, ie, thyroid disease. At around 32 I began experiencing what my gi doc told me was colitis. He then did a colonoscopy which showed that I had collangenous colitis. During that time I went from an energetic career woman to someone with numbness in her fingers, lethargy...
  16. natalieb
    Yes I can. My name is Natalie and I am 39. At 26, I dev. graves disease and had my thyroid oblated. At around the age of 32, I began having extreme colitis,(or so the gi specialist I had gone to said). I also had weird symptoms like numbness in my hand, and pains in my legs. I have always been a hardworker who has thrived on a career after college but...
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