cupp125

Thanks so much! I've had a ton of blood work done and the only deficiencies noted were B12 and A (about a month ago). I took supplements for the A and shots for the B12 and both are now back to normal. I'm trying to start an elimination diet, but it's been hard to figure out what exactly I can eat. Everything seems to cause some sort of reaction...

Hi Everyone, I was diagnosed with celiac disease about three years ago and for the last two years (and most notably for the last six weeks), I have been having some pretty severe health problems. Horrible itching (2 years--finally convinced Derms to test for DH, but waiting on results) Fatigue Dry mouth Rapid, rapid heart rate, especially...

I actually have been to the University of Chicago's Celiac Disease Center; however, my experience with it has basically been seeing a GI doctor who is part of their staff. It was very nice to not have to explain what celiac disease is to her, and she knew to check for other Autoimmune things right off of the bat; but beyond that it wasn't really a tremendous...

My apologies for not responding to all of your great replies sooner--unfortunately, I'm still dealing with some very, very frustrating health problems (ironic, no?). I think that everyone raises great points. Doctors probably won't have (or take) the time to read literature provided to them (which just gave me a good idea--I'll type it up in a second),...

Hi Everyone, I have been thinking about something for a long time, having reached levels of health-related desperation that I never thought I could reach. It took doctors twenty-two years to diagnose me with Celiac Disease. They spent the entire time telling me that I had a "nervous stomach" or that I was just anxious. I kept telling them that I never...

OK....finally a bit more to update you on...nothing complete, but something. I got a call from the nurse at the center this morning and she told me that my blood tests had come back. Drumroll....high bilirubin (typical, Gilbert's), other liver stuff was fine, anti-nucleii (other auto-immune stuff tests??) were fine, but my B12 and Vitamin A were very low...

Finally an update....though not the one I was hoping to offer. I had the appointment(s) today, and I went in feeling very optimistic, but I can't say I'm one hundred percent relieved. Basically I got the same thing I've been getting for two years...."hmmm....odd, we'll run some tests." The good news is that I didn't have to explain what Celiac Disease...

I've had the same exact problem and strongly suspect it to be DH. I cannot, for the life of me, stop itching. I feel like I'm being tortured. I'm lucky to get an hour of sleep. I'm completely gluten-free though, so I have no idea where the G that would be causing it could come from. I'm losing my mind. I would suggest being very careful with benadryl...

Thanks so much for all of the support everyone. Brief update: I basically just took myself off of the antihistamines altogether and my heart rate went back to normal. The fluttering and pains are still there, but I'm trying my best to eat as carefully as possible. The lightheadedness and rapid heart rate problems got better each day the meds were out...

I can't believe I waited so long to join this messageboard. Honestly, it feels so good to just have people who know what Celiac Disease is! Thank you so much for taking the time to offer feedback. As you can imagine, I'm so frustrated with these issues. My doctors have run a ton of blood tests, but I'm not sure if the vitamin deficiencies would have...

Hi, I'm new to the board, and going through some frustrating health things that I really think are a result of my Celiac Disease. I was diagnosed with celiac disease about 2 and a half years ago, and ever since, I've been having some pretty strange and to be quite honest scary symptoms. I've been to ten doctors in the last two years and none of them have...