georgeismyboy

Our pharmacy (Walgreens) carries a case or two behind the counter as well. You'll be floored by how expensive it is, just a warning. But Neocate was a lifesaver for my son. As I mentioned before, I always purchased it off eBay. If you live in ARIZONA, CONNECTICUT, ILLINOIS, MASSACHUSETS, MINNESOTA, NEW HAMPSHIRE, NEW JERSEY OR NEW YORK, coverage of...

Liz, You may want to consider trying an elemental formula, such as Neocate or EleCare, for his milk while you are still working out his issues. They are nutritionally complete and if he eats nothing at all, he will still be getting nutrition. You can talk to your son's GI or pediatrician about them and see if they have samples. My almost-15 month old...

I just ordered my little guy's EnteroLab tests - wish us luck!

Stacie, thank you for your thoughts and suggestions - you are so right. You know, my sister-in-law is in med school and well on her way to doctorhood. Let me tell you how scary that is! So I totally get your point about doctors. I am so sorry your little one is going through so much as well. It is so sad to think of the procedures and tests they will...

Thank you for the cod liver oil suggestion. I will definately look into that!

I am so touched by your thoughts and support! Thank you for suggesting he get labs done to look for vit and other deficiencies. Ped ran labs last week and indeed they are off. His alkaline phosphatase is 1100 (normal would be up to 300), which might indicate malabsorption of Vitamin D, which in turn might indicate malabsorption of fat since Vit D is...

Hello everyone! Thank you in advance for taking the time to listen to me "think out loud". My son is almost 15 months. He (still) has severe reflux and some some food allergies as well as milk intolerance. He was failure to thrive for much of his infancy. We started on the typical infant cereal grains at 6 months, all met with instant vomitting. By...