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AJJ

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Everything posted by AJJ

  1. AJJ
    Where do I find out more about going to remission as a teenager? I think that happened to me?
  2. AJJ
    Hi there, Something else to look into would be Sjogren's Syndrome which I think can cause some of the symptoms you mention. As I understand it can also coincide with Celiac disease and is linked with Rheumatoid Arthritis. Good luck.
  3. AJJ
    Hi, I have found your post so interesting because I think what you have described has happened to me. As a child I was very unwell. My mum kept taking me to the pediatrician and even to this day says that something was wrong but they weren't able to determine the cause. I failed to thrive in that I was extremely underweight, I had drop attacks (which were...
  4. AJJ
    Does anyone know if the TTGa test is specific to gluten only or can it pick up a response to lectin also? Apologies - I posted the same question into the wrong forum (related disorders) - am just new to all of this.
  5. AJJ
    Thank you very much for replying. I am not yet gluten free - my gastroenterologist advised me that I had latent celiac disease based on my positive blood test result and negative biopsy and said that I didn't need to make any changes to my diet at this point in time. At my initial consult he asked if I get mouth ulcers to which I answered no. I didn't connect...
  6. AJJ
    Have you looked at foods that contain lectin rather than just gluten? I have a sensitivity to tomatoes which is a nightshade food (others include potatoe, peppers and egg plant). Nightshade foods contain lectin. Gluten also contains lectin. Nightshade foods can cause an autoimmune response in those who are sensitive. Good luck...
  7. AJJ
    If you google geographical tongue you can find some pictures of it, but essentially as I experience it, they are "patches" on my tongue. They are often about a centimetre in width and are unusally shaped - look a bit like a map. You can see the outline to the patches because there is usually a white edge to them. They appear all over the tongue and they do...
  8. AJJ
    Can anyone tell me if lectin intolerance to nightshade foods is linked to celiac disease or what the relationship might be if any? I have had a positive TTGa blood test result (on two occassions) but a negative biopsy. I have had a geographical tongue since I was a toddler which I have linked to eating raw tomatoes. Have just discovered that tomatoes are...
  9. AJJ
    Thank you so much for your reply. I came to be tested because about three months ago I got really sick with nausea, vomiting and some diarrhoea. The nausea persisted for about a two week period and I felt really unwell. I have lost a lot of weight (about 13 kg) over an eight month period (not intentially) but had had a baby in the year previously. My GP asked...
  10. AJJ
    Hi all, am very new to this (both Celiac Disease) and blogging. Just wondering what others thought - have postive blood test results to TTGa but a negative biopsy? Have been feeling very fatigued over the past six months but my iron is normal. Also have had more frequent migraines, some mild hair loss and a geographical tongue (which I've had for years)....
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