CeliBelli
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The item above on MyStarbucksIdea.com has received a score of over 6,880 points and has 317 comments as of this writing, and is now listed as "Under Review." Please keep the pressure on by voting for this item. Also, weigh in with a comment and answer Starbucks' question about exactly what types of gluten-free products you crave. Here's the link again...
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Excellent! My thoughts exactly. Although, if the IFFGD has made IBS their cause celebre, they may not be interested in being the champion for a group of people who think IBS is an overused copout. We may wish to engage the folks at one of the celiac groups, such as the Celiac Disease Foundation. May is Celiac Disease Awareness Month. Perhaps we could...
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Colby, The celiac community clearly needs articulate voices with the skill to analyze and express the needs and challenges we face. You ask whether writing a book would be worth the time and effort. The more important questions to ask are 1) what is your objective and 2) what are the best routes to achieve that objective? While a book might be of interest...
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Colby, I see you are in Chicago. Have you been to the University of Chicago Celiac Disease Center? (Open Original Shared Link) I have seen several different references to it, and they are supposed to be addressing just the problems you raise. Also, if you want to get this problem some high-profile attention, you might write up your story and send it...
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I agree with Gemini, you are not wrong. More questions need to be asked, and a second opinion obtained. If this is not celiac disease, then what is the doctor's diagnosis of the inflammation? If they cannot answer that, then they have not taken this far enough. At minimum the child should tested to check for the antibodies to gluten, and for the genetic...