S-J-L
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Latest Celiac Disease News & Research:
Everything posted by S-J-L
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ARCHIVED Far Too Underweight, Possibly Refractory?
S-J-L replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey, thanks everyone. The problem is i don't even feel sick when i eat gluten, so its hard to figure out if i have another intolerance. Nothing in particular makes me feel sick. Apart from the past 2 months i don't normally have digestive upsets. And as i said im feeling better again and apparently i had no sort of infections. Celiac disease was only... -
ARCHIVED Far Too Underweight, Possibly Refractory?
S-J-L replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for your posts, yes i have eliminated all those sources of gluten. For some reason there is a '-1' at the bottom of the post, how do i get rid of it haha -
ARCHIVED Far Too Underweight, Possibly Refractory?
S-J-L posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi everyone, I haven't been on here in awhile, but i appreciate your opinions on the following. I was diagnosed with celiac disese two years ago by blood tests and biopsy. I was told that i had subtotal villous atrophy. I went fully gluten free, and did improve abit, but it seemed slow. I did have abit more energy, and my constipation went away within... -
ARCHIVED Feel So Sick, Please Help
S-J-L posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi i am not sure what the problem is.... I have celiac disease and have been gluten free for about 1.5 years. I went out for dinner at someones house and they said the curry we ate didn't have gluten in it. About a day later i started feeling sick...nausea, stomach cramps, passing bowel motions 3 times a day (not normal for me). I don't know if i have... -
Hi everyone. I was wondering if other people may have some insight as to what is wrong with me!! I was diagnosed with celiac disease about 1.5 years ago. My symptoms were extreme tiredness, severely underweight and constipation. My tissue transglutaminase was intitially 164 (normal<20). Then over 6 months later it was 38, and now it is about the...
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ARCHIVED Iga Anti-t.tg Levels Still High
S-J-L replied to Lisa79's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, I am having the same problem-im so upset. I got diagnosed around april last year and my levels were 164. Then in december it was 38, and now its 40 again. I can't think of where the gluten could be hiding! I have major issues of being underweight-bmi of 16. The doctor doesnt see me putting on any weight until these levels are normal. Am i allowed... -
ARCHIVED Any Ideas? Really Need Some Help
S-J-L posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi everyone, Im a 21yr old female and have been gluten free for over a year now. Was diagnosed as celiac by blood and biopsy (subtotal villous atrophy). I am 5'8 and was only 95lb (43kg) when diagnosed. Ive gained some weight, but not enough, im about 107lb (48.5kg). My BMI puts me as being severly underweight, and i think it is this that makes me really... -
ARCHIVED What Is 'subtotal' Villous Atrophy?
S-J-L replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Please? Any ideas... -
ARCHIVED What Is 'subtotal' Villous Atrophy?
S-J-L replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
OK, thanks. Anyone got suggestions about the weight issue- i just don't know what to do. Ive seen a dietician a couple of times as well. -
ARCHIVED What Is 'subtotal' Villous Atrophy?
S-J-L posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, My endoscope showed i had subtotal villous atrophy. What does this actually mean- is it early or late stage celiac disease etc? This was about a year ago, and my tissue transglutaminase was 164 (below 20 is normal). Now it is 36 after the gluten free diet. Should this be below 20 by now? Im still having weight issues, ive only put on about 3kg since... -
ARCHIVED Vitamin B12 Tablets Hurt!
S-J-L replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What are sublinguals? These were just the ones you swallow -
ARCHIVED Vitamin B12 Tablets Hurt!
S-J-L posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi everyone, I took vitamin B12 tablets for about 1.5 to 2 weeks cos i thought it would be good for me, help with tiredness etc. However, every time i took them i got incredible bowel cramps, like ive never had before (and slight D). Anyone know why? They are gluten-free, i checked. It was definantly the pills as i stopped taking them and the symptoms... -
ARCHIVED Not Much Has Changed
S-J-L posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Not much has changed since being gluten free for about 8 months. Im still really tired,and my constipation went away for a while, but now its returning. I have slipped up a couple of times with my diet though, but the rest of time im strictly gluten free. I get gastritis and heartburn alot now, im only 21. Ive put on 2 kg, but im still only about 48.5kg ... -
ARCHIVED How Do I Stop Anorexia Comments
S-J-L replied to nikky's topic in Related Issues & Disorders
Your weight seems fine to me. I know how you feel, im 20 now but at high school people were always asking my sister if i was anorexic. Once on the bus this boy shouted 'look at that girl,shes anorexic, shes guna die'. Ive had lots of other comments too. I kept going to the doctors but they didnt know why i wasnt putting weight on. In my 1st year of university... -
I was wondering if celiacc disease somehow makes you more sensitive to antibiotics? Ive only been on them like 3 times in my life, but im on them again cos i have an infection around my wisdom tooth. Everytime ive been on them, they burn my stomach real bad, and i get so tired, but i cant sleep. This happens to me even on a small dose.
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ARCHIVED I Need To Stop...tell Me I Have To!
S-J-L replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I do care, alot, its just hard at the moment. -
ARCHIVED Blood Test And No Endoscopy?
S-J-L replied to hilwacat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had both positive blood work and biopsies. I have heard the biopsies can be negative because its a patchy disease also. The main reason they do the biopsies is that not too many people want to go gluten free unless they absolutely have to. It changes your whole life style. -
Actually, this happened to me. I havnt had it since being gluten free. I never made the connection. I always just thought my mouth was sensitive to tooth paste, cos it would happen after brushing my teeth. And then i would lick the skin off with my tongue.....gross.
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ARCHIVED I Need To Stop...tell Me I Have To!
S-J-L replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yea, i was diagnosed. Both my blood tests and biopsies were positive. I feel like my body is giving up at times, especially with my weight and heart. I estimate that i would have had it since i was 8, cos thats when the constipation started. Throughout high school so many people thought i was anorexic but i eat alot! -
ARCHIVED I Need To Stop...tell Me I Have To!
S-J-L replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Im also studying engineering, in my 3rd year. When i eat gluten my main symptoms are feeling spaced out, tired , no energy, constipation. The thing that worries me most is my weight, in 5'8 and only 103 pounds, ive never weighed more than this. Im almost 21, and since i was 16 ive had problems with fast heart rate, and irregular heart beat. The doctors dont... -
ARCHIVED I Need To Stop...tell Me I Have To!
S-J-L posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, I was diagnosed with celiac disease about 1.5 months ago. I have been finding it hard, but sticking with it....until now... Its exam time at university, and im stressed. I have been buying food at the canteen that i know has gluten in it... mainly gravy. I cant stop because its convienient, and unlike others with celiacs, i dont get stomach upsets... -
ARCHIVED Why Am I So Unbelievably Tired?
S-J-L replied to Nan2N's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Ive only just been diagnosed and i feel the same way. I have less energy, more hunger and cant be bothered with preparing all my food! It will pass im sure. Im scared about the wasting away too. Im only 103pounds, 5'8 -
ARCHIVED Not Digesting My Gluten Free Food?
S-J-L replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh OK, thanks! I have some more questions. Do potato chips (plain salted) have gluten in them? and chocolate? I dont know about my toothpaste cos it doesnt say the ingredients, i use colgate. Thanks -
ARCHIVED Not Digesting My Gluten Free Food?
S-J-L posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, I was diagnosed with celiac disease just over a week ago, and have been gluten free since. For breakfast i am eating gluten free museli instead of toast. I have been noticing that the museli comes out of my body in the same form it went in!!! Any ideas? im getting more tired. -
ARCHIVED Upset Stomach When Gluten Free
S-J-L replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh ok, i have been eating abit more fruit and dairy. I just had the best gluten free burger from burger fuel though!