donnal
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by donnal
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Thanks for the link!!! I went to it and found the Tyler group's email--I had heard there was a Tyler group (I live in East Texas) but didn't know how to find out about it!
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My history includes having been tested for celiac with neg results (blood--had a scoping years before that and no abnorm cells were taken and tested). Well, I kept having gut issues as well as fatigue and a bad taste in my mouth and began reading about gluten-free diet so I went gluten-free back in April, then added corn-, soy-, dairy- and egg-free, adding...
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ARCHIVED Can Someone Please Talk Me Off The Ledge
donnal replied to shacon-bacon's topic in Coping with Celiac Disease
the food journal idea is going to be a big help for you. I didn't do that for quite a while ("too much work" "I feel paranoid enough") but finally did and it helped me realize I also have dairy and corn sensitivity, it seems. I stay free of everything for several days, then do one day of "testing" whichever I'm not sure of, eating as much of it as I can... -
I always am on the low end of normal for glucose checks--have been as low as 64!
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Well, it's hard to describe the taste--I'd often say it was like a rat crawled up and died in my mouth (but can't speak from experience, having never had that happen )--my husb said my breath didn't smell "that bad" but it was really nauseating to me. Like old food, or something. Not really a sour taste, more like spoiled. Does that ring a bell?
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I've been gluten-free since mid-april and have noticed that a taste in my mouth, which would always be there after I ate but much worse after breads or ice creams, has gone since I've been gluten-free! I would actually have to brush my teeth or chew mint gum (couldn't handle mint candies) to try to get rid of it. I had asked my GI doc a couple of times...
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ARCHIVED Brown Rice Syrup
donnal posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I have been steering clear of Corn as well as gluten and have discovered Brown Rice Syrup. It can be used like a waffle syrup or with pnut butter in a sandwich. It is not quite as thick as honey and the jar tells how to substitute it for honey or sugar since it is a but "runnier". I love the taste just out of the jar. Just thought some others out there... -
ARCHIVED Gluten Reactions And Reaction Times
donnal replied to Blessings's topic in Coping with Celiac Disease
I'm pretty new to this gluten-free lifestyle also but have learned that I react sometimes almost before I'm done eating but at that point it is a full/bloated feeling. then it "grows" for almost 2 hrs at which time I am usually pretty miserable (about an 8 on a 0-10 scale)--pain, feeling "pregnant", visible bloating. This is usually around bedtime which... -
After reading many posts and also links on celiac.com I have realized that celiac has quite a number of potential adverse co-morbidities such as lymphoma, osteoporosisi, other inflammatory processes (RA, etc, seem to have links to celiac disease) so my question is: since I have had neg endoscopy and neg blood tests (IgA etc) but do seem to feel better (have...
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I am (perhaps unfortunately!) a cardiac rehab RN so I have to "preach" high fiber, whole wheat, blah, blah. Well, since I have been doing gluten-free I have, by it's nature, cut back somewhat on the fiber intake. However, it is starting to occur to me that I get the "good ol" bloating whenever I eat berries or add quite a bit of flax or such to whatever...
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ARCHIVED Last Night...
donnal replied to withnail69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yup, I found out the "hard" way, also, that Ketchup and Mustard (two of my favs) have vinegar in them. If you go to the Unsafe Foods like on this Celiac.com site you will see that vinegar, unless specifically listed as Apple, is usually of the distilled type (cheaper!) which comes from grains (often unstated sources). You will learn that even though a... -
Whey in margarine! I took the advice from several of you and went on a total (I thought!)elimination diet for wheat, eggs, dairy and corn. Well, I made some OK (I thought!) cookies last night and then, for some reason, read the Promise margarine lable and it has some whey!!! How much is that gping to skew my experiment for dairy free? I know, from reading...
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I've been, as far as I know, gluten-free for 2 1/2 wks--not very long--and I've had some good days but also some days like before. I've been labeled, of course, IBS but with constipation. Blood-tested negative for celiac (I know from this site that isn't reliable all the time). I'm 55 and have had gut problems most of my life. From a stressful time several...
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Hey, everyone! I used to get satellite and loved the cooking channel. Why don't the gluten-free flour companies or such sponsor a gluten-free cooking show?! I think one would very very much appreciated and welcomed! I know I'd feel that way--to have it "legitimatized" and out in the open (so non-gluten-free folks don't think it's just "health kick" thing...
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ARCHIVED How All This Works...
donnal replied to snowbunnyok15's topic in Introduce Yourself / Share Stuff
I am pretty new to this lifestyle also but found out, the "wrong way" (stomach pain, intense fatigue) that light sour cream, in order for it to have the "normal" consistency has added products, one of which is dextrin! ARGH!! Be sure to print out this list https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html as it will help you avoid thise miserable... -
ARCHIVED How Soon After Eating It Do We Get Sick?
donnal replied to Death-Cab-Doll's topic in Coping with Celiac Disease
I so much appreciated everyone's input. Because I was blood-tested for celiac over 2 yrs ago and all came back neg, I feel I have to "defend" this "nutty diet" I am doing. People say, well, folks have eaten wheat for centuries--why all of a sudden all this problem. Makes me feel like a hypochondriac! I've been helped by reading the long research article... -
ARCHIVED How Soon After Eating It Do We Get Sick?
donnal replied to Death-Cab-Doll's topic in Coping with Celiac Disease
Such an appropriate question to which I can say I"d like an answer too!! I have just been gluten-free (or trying to be) for about 13 days now and was feeling ever so much better for the first 8--not nearly so tired, still feel full quickly after a meal but not "pregnant" or in pain and having better bowel function (have been diagnosed as IBS constipation...