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scottyfeelsick

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Everything posted by scottyfeelsick

  1. scottyfeelsick
    Thnaks alot for telling me your story, I am about 4 days back on gluten now and still feeling good exept for some gas(which is very uncharacteristic for me). Have you started feeling better again? If so, how long after going gluten free after the "challenge" before you startd feeling better again? Was it quicker than the first time that you went gluten...
  2. scottyfeelsick
    Ursa Major, yeah, it is frusterating. The problem with finding another doctor, is that I don't have insurance, but since I go to OHSU, which is also a university, they have financial discounts, and for me it is all 100% free!!! So I am kinda stuck there, but it is supposed to be a really great hospital. They have me on thyroid and testosterone replacment...
  3. scottyfeelsick
    MLB, I'm sorry, I just realized that I called you Nora_n. I am sorry, I am no good at chat rooms, I get everybodys names mixed up all time. sorry! scotty.
  4. scottyfeelsick
    Nora_n and Ursa Major, you are both very right and I agree with you both absolutally, that modern medicine has and continues to fail us, especially with issues such as this one. I think that getting a biopsy is NOT something people need to get at all. If you feel good gluten-free, that is the best diagnosis anybody could possibly get. You definataly do...
  5. scottyfeelsick
    I might not be of much help to you, because I am new to all of this myself, but I can tell you what I am dealing with right now. Other people might disagree with me, this is just my 2 cents. About 2.5 months ago I had enterlab results almost identical to yours on all the tests, exept the gene test. I don't know what yours means, but I do know that I...
  6. scottyfeelsick
    Nora_n, thanks so much for all of your replies, it really helps me out alot, and If you are still reading this thread ever, I had another quick question for you. In your signature, you say that you had a negative biopsy but then you were officially diagnosed by DD. What does DD mean? Is that a type of test or something? I have never heard of the...
  7. scottyfeelsick
    nora_n, thanks for those links, I read everything on there and I have really learned alot. I was wondering about the "rectal gluten challenge" that it talks about in the first link you posted: https://www.celiac.com/articles/979/1/Chall...-EdD/Page1.html Do you or anybody else know more about this? I searched on-line and I found out about the procedure...
  8. scottyfeelsick
    Thanks so much to everybody that has responded. All of this info really helps me, especially knowing that other people have tried this before. IMWalt, thanks for your reply. I also am a bit of an athlete, and always have been for all my life, so I feel like I need to know for sure what is causing all of the problems with my blood(low wbc, low rbc, low...
  9. scottyfeelsick
    jesslynn555, thanks so much for your response. I really appreciate it. It sounds like maybe the four weeks, is kinda standard for being back on gluten.? Could I ask you a couple more questions about the process your son went through? How did the month back on gluten go? Did he get really sick right away? did he feel really bad throughout the whole...
  10. scottyfeelsick
    Does anybody know of any good websites or chat rooms that have something to do with adrenal insufficiency or adrenal fatigue? I have some questions about the accuracy of some of the tests, and was wondering if anybody could point me in the right direction. By chance does anybody here know about the accuracy of the ITT(insulin tolerance test) for testing...
  11. scottyfeelsick
    I know this question has probably been asked a hundred times, but I was looking for anybody's experience with trying this. Also let me know if this is in the wrong forum(I couldn't really tell where I should post it). I tested positive with enterolab for gluten, and a very high number for malabsorption, and the dq-2 gene for celiac, all in mid march....
  12. scottyfeelsick
    Ive, thanks alot for the info. Thats what I was kinda afraid of, it just seemed to simple to only watch out for GI stuff. I am sorry to keep asking so many questions, I feel like I am probably getting kinda annoying. But, anyway Ive, could you give me a little bit of an idea of how long after eating dairy that you would notice those symptoms, and...
  13. scottyfeelsick
    Ive, Roxy, Ksymonds84, Nancym; Thanks alot for all of your replies, I really do appreciate it. So what I am kinda gathering here is that dairy is deffinatelly a digestive issue. Weather it is an upset stomach, or the big D or C, or any other kind of discomfort, it seems to be mostly related to GI issues, and not really the same problems that gluten causes...
  14. scottyfeelsick
    Mushroom, thanks alot for your reply, I really appreciate hearing about anybody else's experiences with all of this stuff. I don't mean to sound ignorant, but I am kinda new to forums in general(this is the first one I have ever posted on). But, does "ED" refer to the big D? and is "RA" refering to arthritis? Thanks again for all your help, scotty...
  15. scottyfeelsick
    GFMolly, Thanks so much for letting me know about your personal experience with it. I really do appreciate it. I would love to hear from anybody else also, to see what kind of reactions people have had. Like if some people feel like they have been glutened or if it is a different kind of feeling. Just what it felt like for them to have a reaction to...
  16. scottyfeelsick
    Thanks so much to everybody on this forum. You have all helped me out so much, and helped me to see the light at the end of the tunel. My question is about reintriducing dairy after being gluten free for a few months. I showed a mild reaction to dairy on an enterolab test but never felt it personally. But went dairy free a few months ago at the same time...
  17. scottyfeelsick
    Thanks so much Ursa Major, for your response, I really appreciate it. I will wait atleast 3 days between new foods. When I do add new foods, should I just go crazy and eat tons of it for 3 days, or should I eat a normal amount of it? Should I eat it just for one day, and then wait 3 days without eating anymore of it to see if anything happens? Also...
  18. scottyfeelsick
    I have gotten so much help and encouragement from all the nice people in these forums, and I want to say thank you so much for everything. It has really helped me along with all this. O.K. so I have more questions though. I've had enough with having bad days here and there and wondering if it was something I ate or not. So I feel like I need to just...
  19. scottyfeelsick
    I don't think I can really be of any help to you, but I know what your feeling. You described almost exactly how I feel with eggs after about 2 months gluten free. I used to eat tones of eggs, well cooked all the way to raw, and they made me feel good (maybe the protien) but since being off of gluten I noticed feeling really crappy for a couple hours after...
  20. scottyfeelsick
    yeah, your probably right about the chance of cross contamination. But you said balsamic and red wine vinegar are a problem? I am still relatively new to this, but I feel like I am pretty diligent about learning everything with gluten, though I have never heard of why any vinegars would be a problem exept for malt vinegars of course. I would love to hear...
  21. scottyfeelsick
    This might be a dumb question, and I'm not sure if i'm in the right place. But, are the olive bars at grocery stores like whole foods gluten-free? They don't really list the ingredients, they usually just list the main flavors like "stuffed with red peppers and garlic, tossed in olive oil". I am guessing there are probably a couple more ingredients than...
  22. scottyfeelsick
    Thank you so much for your responses. I really appreaciate it. "Bully4You, momma goose, fedora and Alib", I have cut out all the most common problem foods: I went dairy free at the same time as gluten free, followed shortly by soy free and then corn free. I went egg free for a short time, and now I eat them(only localy organic farmed) with out any problems...
  23. scottyfeelsick
    Geogie, Thanks alot for your response. I have been tested. I am very lucky in my situation with an endocronologist. He is very good and works at a very prestigous hospital. They originally thought I might be HGH deficiant, so they gave me an insulin tolerance test(ITT), but my HGH and cortisol were actually fine, but my thyroid was low as well as my testosterone...
  24. scottyfeelsick
    How do I know what other foods I might have a problem with? It seems like no matter what I eat or don't eat I still feel bad. Some people say to eat only certain foods, others say those same foods give them problems. What do I eat on an elimination diet? just rice? some people have a problem with rice. How would I know. I feel like I need to feel better...
  25. scottyfeelsick
    Thank you all so much for your responses. SCOTT-FREE, I had a gene test done through enterolab(I don't know how acurate or reputable their testing is for gluten or gene testing). I can just post it here though: HLA-DQB1 Molecular analysis, Allele 1 0302 HLA-DQB1 Molecular analysis, Allele 2 0501 Serologic equivalent: HLA-DQ 3,1 (Subtype...
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