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starrymazed

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by starrymazed

  1. starrymazed
    I am aware that this is not a test for celiac's disease. What I was more specifically asking was if there is a connection between celiac's disease and having the Bilirubin and low blood count levels that she has. That is what I cannot determine online, and while I am awaiting the doctor, I thought I would ask on here as there seems to be quite a few people...
  2. starrymazed
    Hello. I have posted on here a few times, and recently I was diagnosed (through biopsy) with celiac disease. I fully believe that my daughter (possibly my son as well) has it. While they don't have a dr appt for that until July 1st, my seven year old daughter just recently had a slew of blood work done for her psych dr (she was just diagnosed as having ADHD...
  3. starrymazed
    Thank you for this information! I was trying to get a hold of someone regarding the meeting just yesterday!
  4. starrymazed
    I mentioned in another thread that I had the endoscopy and biopsy done last week. I immediately found that I have a gastric ulcer, slow emptying stomach (but no diabetes), GERD, scalloped mucosa, and a small hiatal hernia. I have had many different skin issues for years, and stomach and head problems since I was a small child, along with bipolar disorder...
  5. starrymazed
    I just had an EGD yesturday, and I did not see, feel, or hear a single thing. They put me out cold. They told me I would feel drowsy like I was drifting off to sleep, and that is all it was. I woke when it was over and felt fine. Good luck.
  6. starrymazed
    Thank you. I am feeling pretty crappy today, with my stomach and muscle aches. I am not sure, but I would imagine it has something to do with the EGD and the biopsies. Thank you for your response.
  7. starrymazed
    I forgot to mention that report also stated they suctioned 150cc of biliary fluid and that they biopsied a section with "scalloped mucosa". I thought that the scallpoed mucos was consistant with celiacs, but why would they suction fluid out? I am so overwhelmed right now. And the fact that there is a week wait for the biopsy results really stink. The worst...
  8. starrymazed
    I talked to my dr after the procedure and recieved a copy of the report itself. While I have to wait a week for the biopsy results, I did find out that I have GERD, a small hiatal herna, a gastric ulcer, and possibly gastritis. The report also says they biopsied for gastritis, duodentus, and to rule out H. pylori as well as celiacs disease. He told me my...
  9. starrymazed
    Hello! Nope, I have not heard much. Right now I am doing a gluten challenge of sorts, so that I can have my biopsy done on June 5th. I cannot wait to feel better again! Eating out with my family is what is hardest for me, as hardly anything is gluten free However, in case you never heard of it, there is a pizza place in Bethlehem called Manny B's, and...
  10. starrymazed
    Well, the NP called me today and told me that the doctor definitely wants to do a EGD with biopsy for my duodenum. She told me to start eating gluten again, like a serving a day, and to increase it so I am eating a normal (gluten filled) diet two weeks before the procedure (June 5). I hate to start eating gluten again, but I want to know what is going on...
  11. starrymazed
    Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more!
  12. starrymazed
    So I finally got to speak with the NP who ordered my bloodwork and upper GI today, and she confirmed that my blood tests for giladin? were normal. She said that my upper GI showed something, however, I was driving in my car when she called. From what I gathered, she mentioned maybe something being inflamed near the opening of my stomach, and it started with...
  13. starrymazed
    Well, I just wanted to add that I ended up in a hurry yesturday morning, and had a little bit of a blueberry muffin. Well, I realized a few hours later that I had developed two canker sores in my mouth, was bloated, and the little red bumps I get on my inner forearm (opposite elbows-in the folds of my arm), as well as the red bumps on my thigh, had come back...
  14. starrymazed
    Thanks, everyone. I am going to contiue to eat gluten free, and I think I am going to talk to my daughter's doctor about her.
  15. starrymazed
    Thanks for the responses. I have not had a biopsy done, though I am sure the GI doc won't do it with a "normal" blood test. As far as the lab goes, I have already read up about it, but, as much as I would love to do that, I cannot afford it. The main reasons I am disappointed are because I can notice so much difference! I can eat a meal and not feel...
  16. starrymazed
    Sorry this is so long, but I really could use advice. Ever since I was a young child, I have been plagued by frequent headaches, as well as severe dry skin, including Keratosis Pilaris. I have never found a good explanation for this. I am a pretty healthy 27 year old female, and I have always been pretty skinny, borderline underweight (5
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