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sashabetty

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Everything posted by sashabetty

  1. sashabetty
    Emma's mom, If you are thinking about doing an endoscopy or further testing, I would not stop gluten yet. They do heal surprisingly well, and discountinuing gluten could make future testing inaccurate. Also, yeast can possibly trigger the onset of Celiac, so the antibiotics could have played a part in the symptoms manifesting when they did. And the...
  2. sashabetty
    Our pediatrician called today about the results of my 2yr old daughter's endosopy, because apparently the results were forwarded to him. No call to us from the GI Dr, but the pediatrician said that the results showed no damage at all. His response to this was, she may be Gluten Intollerant, but you don't have to worry if she gets gluten every once in a while...
  3. sashabetty
    scaredparent, I'm glad to hear that things went as well as they did, though I know it's still not easy to have that sort of testing done on our children. I hope that the tests tell you something, when do you expect to hear back? As far as my daughter's symptoms, she was fine for weight gain and digestion until 13 months, then she had 2 weeks of runs,...
  4. sashabetty
    this is an old thread but I wanted to add something. I had almost the opposite experience of the other posts. I had a server who checked the ingredients in a Thai food dish and said it all seemed ok except there was "rice flour" in the noodles and that would be wheat. I tried to explain that I thought that "rice flour" was made of rice, but she could not...
  5. sashabetty
    2 days with no solids? It's hard to imagine trying to enforce that with a toddler. I hope that everthing goes well for you and your son today. Post an update on how it went.
  6. sashabetty
    Yesterday we took our daughter to children's for an endoscopy. She has been symptomatic but IGA deficient so the blood tests told us nothing. Her symptoms have coincided with adding gluten and abated with removing gluten. Since I have seen the question of what to expect with having a child get an endoscopy, I though I would share our experience, which...
  7. sashabetty
    I am so glad that your baby was diagnosed! My daughter was on a downward curve for weight and I fear she would have gotten much worse if we didn't take her off gluten when we did. And I totally know the thinking the baby is fine, I get that from my MIL (retired MD) my mom, my stepmom, and a little bit from my husband. People only see what they want to see...
  8. sashabetty
    I like the Dowd & Rogers chestnut and rice flour chocolate or vanilla cake mixes, you can get them at several of the online gluten free sites. Or if you make something with spices or strong flavor like carrot cake you don't notice the bean flour in the gluten free baking flour mixes, I have had good luck with the Joy of Cooking carrot cake recipe and...
  9. sashabetty
    My 2 yr old is a suspected Celiac, and she was gluten-free for 9 months, and has been eating gluten again for almost 3 months. So far the blood tests are inconclusive and she has one gene. She is getting an endoscopy later this month. Since going back on gluten she has been cranky and clingy, but also has meltdowns where she can't stand to be picked...
  10. sashabetty
    My daughter has not been diagnosed. She was sick at 13-16 months (weight loss, chronic runs with undigested food and mucous coming out) until we took her off gluten, and she had a remarkable improvement. We have since put her on gluten for 2 months and she is has really cranky episodes (grimacing, crying, not wanting to be touched but at the same time screaming...
  11. sashabetty
    The idea being that the patient doesn't know what is in which vial, and so the reactions are not biased. There are Americans that use this technique as well, which I have heard referred to as "muscle testing." Some people believe it to be a diagnostic tool and some people take it as quackery. I find it all interesting but am not really pro or con myself....
  12. sashabetty
    I saw this on America's Test Kitchen and it looked great and happened to be gluten-free. Open Original Shared Link You have to set up a free account to get the recipe, but there are some other recipes that are gluten-free, such as their flourless chocolate cake. If anyone makes this let me know how it comes out.
  13. sashabetty
    Scott, that goes along with what I was thinking, that it was too soon, I guess I just went along with the doctor hoping we wouldn't have to keep her on gluten for that long. The only part that bothers me is how dismissive the doctor's assistant was, and she was apparently saying what the doctor told her. I am not satisfied that the tests are telling the...
  14. sashabetty
    I agree, it is is compelling, but I keep insisting on a diagnosis maybe because I get tired of the perception that this is some kind of food neurosis that I am imposing on her, and I know it doesn't matter what people think, but I really want to be able to explain it with conviction and a diagnosis, maybe that can't happen but I can try. Well as if I didn...
  15. sashabetty
    Well I am a bit pissed off and upset. I called the Dr today for the genetic test results, and finally got a message back, yes your daughter did come back positive for one of the two genes for celiac, but since her blood antibody test are negative, that means that she doesn't have it, but has a very slight chance that she could develop celiac later in life...
  16. sashabetty
    I would definitely want to test both kids if it were me. And thoses symptoms are certainly reason enough to test in my book. Are genetic test covered by your insurance? My DD has come back *inconclusive* on the blood antibody tests and we are waiting for genetic test results and then we will be considering more testing. Our pediatrician thought that the...
  17. sashabetty
    In order to test my 2 yr old DD, the family is back on gluten (for 5 weeks now) after been gluten-free for 9 months. And since going on gluten I feel bloated, queasy, tired, crampy, really foggy-headed (I feel slow-witted, my attention span is gone, and I can't read anything all the way through), and I swear my tummy looks huge though no weight gain, but...
  18. sashabetty
    At 14 months she had the runs for more than 3 weeks, then stinky dark watery stool for 3 months, sometimes looking undigested and mucousy. She was also losing weight and lethargic, laying around sucking her thumb a lot. When we tried going gluten-free she had an immediate change in stool, and her weight has gone up along with her energy level. So now...
  19. sashabetty
    My 2 yr old DD was gluten-free for 9 mos, now we are pursuing testing. She had gluten for about 3 weeks (I know, not very long...) and then had tests, her IGA came back at 14, which the Dr said was the absolute bottom of the normal range. And her TTG came back normal, I didn't get a number. So either she is not Celiac or the low IGA makes the TTG look normal...
  20. sashabetty
    Hi, My 2yr old DD will be getting blood tested soon, and she has been gluten-free for about 9 months. Does anyone know how long she will have to consume gluten, and how much gluten to get an accurate test result? I am also trying to think of what I will give her that she will not notice as something new and exciting and continue to ask for after the testing...
  21. sashabetty
    My 2yold DD is seeing a new GI Dr on Monday, and we will be discussing testing. I keep reading about how only a few labs are accurate for the blood tests, does anyone know which labs in the US? And which test should she be getting? My DD is also gluten-free for 9mos, so we won't be doing testing this time, just getting info. Thanks, S. Johnson
  22. sashabetty
    My 2 yr old started having symptoms at 14 months, and after 3 months of symptoms the peditrician suggested we go gluten-free. Instant change, so that was reason enough to suspect Celiac. I had been told that the testing would require scope and I was not ready to do at that time. Didn't get info on blood testing. Now that I have more info and she is older...
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