ginnym

You can also be gluten intolerant without it being coeliac (although some people think it's the early signs of coeliac). My tests are negative for coeliac but the transformation on a gluten-free diet has been amazing. I got "glutened" at the weekend which brought on 3 days of nausea and and 36 hours of abdominal pain. That's all the proof I need that a...

Thanks for your response Salomeh. I'll ask the docs about it next time I see them.

I don't know of anyone with a diagnosis of coeliac in the family but my late mother always had gastric "issues" and one of my nieces also has lots of problems. I know that gluten free works for me but one of the reasons for wanting a definite diagnosis is so that I can advise the rest of family about testing for coeliac. I know I can always do that anyway...

I also had a raised lymphocyte count on biopsy (count was 40) but it also said there was "no convincing villous atrophy" and my blood tests were negative so my docs have said I don't have coeliac. Gluten free diet has relieved my abdo pain so I'm assuming I have a gluten intolerance, even if it's not coeliac. I haven't found anyone who can explain whether...

I had an endoscopy in March which reported "no convincing villous atrophy" but also said that the "intraepithelial lymphocytes are towards the upper normal range and the chronic inflammatory cells are also towards the upper range". After lots of asking, I've finally got the patholgist to do an IEL count on the sample and have been told that it was 35-...

I hadn't started a gluten-free diet, I was just eating practically nothing because I was so unwell. The docs keep telling me there's no such thing as a false negative which I know isn't true, but I wasn't even sure if they'd done all the right tests anyway. My biopsy was inconclusive too so I guess I must be one of those with a non-coeliac gluten intolerance...

I've been told my tests for coeliac are negative even though a gluten free diet has totally eradicated my symptoms. To be honest, that's enough for me and I'll carry on with the diet but I'm still curious about the tests. When I had the blood taken, I'd eated almost nothing for 3 weeks which may have affected the results. This is what they say: Endomysial...

I've also had negative tests but have responded superbly well to a gluten free diet so my doctors are suggesting it might be a gluten intolerance but not coeliac. Does anyone know if a non-coeliac gluten intolerance is permanent like coeliac or is it something you can recover from over time and then re-introduce gluten into the diet?

The advice from Coeliac UK is that you need to be eating the equivalent of 4 slices of bread a day for 6 weeks before the tests - I probably hadn't eaten that in the previous 3 weeks before mine!! I suppose if you're feeling well on the gluten free then there's no reason to reintroduce gluten later on. I've been gluten free for about 6 weeks and was...

I'm in exactly the same situation (I posted a little while ago on this forum). I know from having experiemented with the diet and reintroducing gluten that I've got a gluten related intolerance but my doctors won't say it's coeliac. First thing to say is that, from what I've read, it's possible to have a gluten intolerance without it being Coeliac Disease...

I'm in the UK so it's not that easy to fire the doctors! Even though we supposedly have the right to choose, I live in a rural area (the Lake District if anyone's been here) and we only have one hospital which limits my options. However, I'm currently under the surgical gastro team so I'm going to ask to be transferred to the medical ones who should know...

Do you have a link to the blog? Ignore that - I've found it via Google.

Thanks for all your replies folks. I think I've now got enough info to challenge the hospital on their stance that gluten can't be the culprit just because the blood test was negative. I'm quite happy for them to explore all possibilities but I'm concerned that they've dismissed gluten out of hand in spite of the clinical signs. I suppose I want to be...

I'm hoping someone on here can help me work my way through the contradiction of my symptoms and the coeliac tests that I've had. Apologies in advance for the long post In January this year I started with severe, inflammatory-type pain in my upper abdomen, with some nausea. It seemed to be worse after eating and consequently my food intake dropped...