sammie210

4.9 feels REALLY bad. I worked and slept. That was it. I couldn't walk across the room without getting winded. My mouth was full of sores. My heart beat so hard and so fast, it would actually wake me up from a sound sleep. I really thought I was going to have a heart attack. It was amazing when I got the transfusion. They gave me 3 units and by the...

Thanks for the info and the welcome! My hemoglobin was down to 4.9, which is when they finally decided to do a transfusion. The hemotologist said it's a wonder I wasn't in a coma! Even after all the infusions, the highest it's gotten up to is 11.8, which is still below the reference range. I sure hope being gluten free helps. I'm tired of being sick...

I've not been officially diagnosed with celiac disease but I've been eating gluten free for a month. For the last 18 months, I've had to have IV iron infusions and transfusions because of very severe iron deficiency anemia. All GI tests found no bleeding and I'm post menopausal by 10 years, so there's no bleeding there, either. Once the docs figured out...

I'm very new to this (within the last 4 weeks) so I'm trying my very best to eat gluten free. I seem to be feeling better (less reflux, less pain) but I'm wondering what happens now if I make a mistake and eat gluten. Does it hurt? Do I get sick? I never did have diarrhea, just a lot of pain and a lot of reflux, very severe anemia, cough, lots of odds...