suzyq63

We're dealing with two autoimmune diseases so far. Alison was diagnosed with Type 1 diabetes in January, 2008, and immediately started losing weight after diagnosis. She was screened for celiac, but only had a high IgG antigliadin antibodies; other tests were negative. She was screened every 6 months and the numbers started climbing. She was finally diagnosed...

Have you tried the recipe using Butter Crisco? I am no expert at gluten-free baking, but I used that recipe and substituted the Bette Hagman blend. I added 1/2 teaspoon of xanthan gum. They came out very well. I even tasted the raw dough; and other than a slight grittiness, the dough tasted exactly like the gluten dough. I've only done it once so maybe...

Thank you. I only asked about topiramate, so I don't know about any other meds made by Mylan. In the end, we got the prior authorization for name-brand topamax and were able to fill it late this afternoon. I now have to seriously consider if we want to try the generic in the near future. The price for the name-brand went up again (my copay is still the...

Thanks. I do feel better about using a generic, at least as far as celiac is concerned. I'm still nervous to switch her to a generic due to having such excellent seizure control with the name brand. I'd really hate to lose control. But there's not much more I can do now; we're at the mercy of the insurance company. I should find out later today or tomorrow...

I may have answered my own question. I decided to call the manufacturer of the name brand to ask them about their gluten-free status. They will only say that they do not use and wheat, rye, barley, spelt, etc. in their manufacturing process. They do not test at the end. So I guess that the generic is equivalent to the name brand as far as gluten-free...

Thanks to our health insurance company, my daughter with celiac may have to switch to a generic seizure medication. The insurance company messed up and now she is due to run out of her meds tomorrow morning! I called CVS to find out which manufacturer they use for the generic of topamax (topiramate). I called the company and they said they do not use the...

Thank you. Alison's MCV, MCHC, etc. are all low, which means she has microcytic anemia. B-12 deficiency and pernicious anemia are macrocytic anemias, if I remember correctly. The only number that is high is her iron binding capacity. She has been eating more red meat and taking her Vit. C. After the new year, I'll take her back to get checked again...

Thank you. I bought Vit. C yesterday to go with the iron supplement. We'll also switch the time she takes her iron to between supper and bedtime so that her stomach should be pretty empty. She also has Type 1 diabetes so depending on blood sugar, it can be difficult to find a time she has an empty stomach. Maybe we should add in an additional iron supplement...

Thank you very much. We will definitely add in Vitamin C with the iron. I've started making sure she has some red meat every day. Our suppers are usually ground beef or chicken. I guess we'll keep using the Bifera for now since it contains mostly heme iron. Thank you Skylark for pointing out that she is probably still healing. Because we did catch...

My daughter was diagnosed with celiac in August. We caught it super early (we watched the numbers increase over the course of 2 years) so at her 3 month follow-up, all her numbers were back in the normal range. However, her anemia has not improved at all. Her hgb was 10.1 in July, so she started taking Bifera (recommended by the gastro). At her follow...

I'm pretty sure now that she was glutened somehow. The pain lasted on and off for about 4 days and then went away. Paula

Thank you. I will look for both of these. I did find yesterday that using the cut-up lasagna was so much better on her blood sugar (she has type 1 diabetes) than egg noodles. She's only been gluten-free for about 6 weeks, but prior to diagnosis making these noodles with regular egg noodles usually caused quite a bit of trouble with blood sugar. Paula

Thank you! I am wondering if she was glutened. She hasn't eaten anything different, but maybe it was cross-contamination. We had been doing so well; hopefully this will pass quickly. Paula

Does anyone make a gluten-free egg noodle? One of our family's favorites is Creamy Italian Noodles. Yesterday I bought Tinkyada lasagna, cooked it partially, cut it into egg noodle size strips; then today I finished cooking them and proceeded to make the recipe. I made plenty of extra so my daughter has a couple of meals' worth of "noodles" in the freezer...

Is this a common symptom? My daughter has been gluten-free for about 6 weeks. Celiac was caught extremely early stages. Prior to diagnosis, she would often complain of her whole body hurting - like the body aches you get when you're sick. Those complaints had gone away but have come back in the last 2 days, usually at night. She also deals with Type...