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CamiJ

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Everything posted by CamiJ

  1. CamiJ
    Thank you all for your input. I do think that the pathologist was not in error. I've just been uncertain about the results because of what the GI said he saw, and what he showed me. I've been looking up pictures of blunted villi on the internet, and my own pictures do not look like the healthy slides. They're not completely scalloped in appearance, but...
  2. CamiJ
    I'm still struggling to find an answer to my abdominal (etc!) problems. I really thought that the celiac symptoms fit everything that I've been experiencing - so the negative biopsy really threw me off. Here's the problem though: I just talked to the gastroenterologist on Friday and I asked him how it was that he thought he saw duodenal villi flattening...
  3. CamiJ
    On Oprah yesterday, Christiane Northrup (OBGYN, author of books on women's health issues), said that one in four women suffer from a gluten sensitivity. She deals with women's issues, so she didn't say whether or not those same numbers existed for men, or whatever. Also, I don't know where she got those numbers. But, if she's right, that's 25% of the population...
  4. CamiJ
    I agree with you. It is good that they did not find damage. Not having celiac is a very good thing. I guess I was hoping for a little more effort on the part of the gastro in helping me figure out what is going on (it just seemed like he expected me to just be happy it wasn't celiac or cancer - I am! BUT - I still need an answer). And, I would like an...
  5. CamiJ
    Well, I got the pathogist's report today, and I have to say that the amount of info these people are willing to give me leaves something to be desired! On the first page is a summary, and included is the clinical history (which looks like it was probably supplied to the pathologist by the gastroenterologist). Following a short list of symptoms it says...
  6. CamiJ
    I had negative blood tests too (numbers lower than yours). I was so sure I had celiac that I pushed for the endoscopy. (I've been symptomatic my whole life - got much worse recently, have family history of celiac - anyway, I really thought I had stumbled onto the answer). Anyway, my biopsy results were negative too, although they did find unexplained...
  7. CamiJ
    I'm having the same problem - but I was not diagnosed celiac (just damaged villi). Anyway, I was trying to figure out what else causes damaged villi and celiac-like symptoms. Ravenwoodglass suggested to me to cut dairy and soy as well as gluten. I looked into that further too and I came across this article. Open Original Shared Link The author talks...
  8. CamiJ
    I have a gastric diverticulum - so not exactly diverticulitis. And, I haven't been given any treatment instructions yet (just found it last Thursday), but I do know a little about fiber. Beans have tons of fiber, and they're really nutritious and have lots of protein too. Brown rice has lots of fiber. Just because you can't have wheat doesn't mean that...
  9. CamiJ
    No, I didn't have any gene testing. I've heard that EnteroLab does that, but I didn't know if it was something that a regular lab would do. I'll check into getting that lab test done for myself (and possibly my family members). Celiac runs in my Dad's side of the family - he and I both have first cousins with it, his uncle died as a baby of it, and my...
  10. CamiJ
    Thanks for all of the suggestions! It doesn't sound terribly daunting. The part that stresses me a little is trying to eat out. I do make a lot of whole foods at home anyway, and if I get my energy back, it won't be hard at all. I never felt that great with all of the processed foods in the first place. I am having some major cravings for ice cream this...
  11. CamiJ
    It was also my understanding that blunting damage was microscopic - but I read somewhere else that sometimes the GI can see scalloping, or areas with a dried mud/cracked appearance that then turn out to be atrophied on a closer look. I'm guessing that's what the GI saw. I don't know yet what the pathologist saw, but I did request the report to be sent to...
  12. CamiJ
    Wow, you guys are great! Thanks for all of the suggestions. I did have my IGA tested, and I'm not IGA deficient. The idea of being intolerant to dairy is a real possibility. My mom says that cow's milk made me sick when I was a baby. I guess at some point I tolerated it better, but then as a teenager I started getting really sick again. I had a bunch...
  13. CamiJ
    Thanks for the reply! I've had the celiac panel run twice - by different doctors and different labs. They were both negative (low negative actually). I wish I were certain enough to push for another diagnosis, but at this point I feel like I should just accept it and move on. How many times do I have to be told "no" before I believe it? It could be something...
  14. CamiJ
    I got the results from the pathologist today (following my endoscopy/colonoscopy last week). Everything is normal - stool studies, biopsies, all that blunting the gastroenterologist saw during the exam - all of it. I can't believe it. I don't understand. He did say that what they found was consistent with acid reflux (the one symptom I don't have all the...
  15. CamiJ

    ARCHIVED Gi Says Blunted Villi Normal?!

    CamiJ replied to CamiJ's topic in Doctors

    Yeah, I have a question about cutting out dairy - Does eating dairy prevent the villi from healing? Or, is it just that I won't be able to digest it very well until the villi heal? I've been lactose intolerant for years, so I'm used to taking Lactaid with nearly every meal anyway. I cut the dairy the day I cut gluten because I suspected possibly an allergic...
  16. CamiJ

    ARCHIVED Gi Says Blunted Villi Normal?!

    CamiJ replied to CamiJ's topic in Doctors

    That's just what I thought! Really, how many people with optimal digestive health go to a GI and ask to have an endoscopy done? He's probably never even seen a healthy intestine! Anyway, I go back and forth on this because part of me says that he is the one with the medical degree, and he should be an expert in digestive health. I've read a library book...
  17. CamiJ

    ARCHIVED Gi Says Blunted Villi Normal?!

    CamiJ posted a topic in Doctors

    I just had my endoscopy/colonoscopy this week. I've had negative results on my celiac panel bloodwork. The GI said that he saw areas of blunted villi during my endoscopy. However, he said that since he has come across blunted villi in normal, healthy intestines before, blunted villi was not of particular concern, and not conclusive for celiac disease....
  18. CamiJ
    Hey, I'm new here, but this is all very familiar stuff to me! I've tested negative twice on the bloodwork, and I had my endoscopy/colonoscopy last week. The GI said he found areas of blunted villi, but he said that as he has also seen blunted villi in normal, healthy intestines, it was inconclusive. (!) Really? I thought that blunted villi was by definition...
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