amelie

Both you and Lonewolf are so nice to be taking the time to answer me! To-day we saw the family doctor because Steven developed an infection in his big toe and also a sore eye. He was put on an antibiotic but we must check with the nephr. if now he should be taken off the cyclosporine while the antibiotic works. My my, if it isn't one thing it is another...

Both you and Kat are so nice to be taking the time to answer me! To-day we saw the family doctor because Steven developed an infection in his big toe and also a sore eye. He was put on an antibiotic but we must check with the nephr. if now he should be taken off the cyclosporine while the antibiotic works. My my, if it isn't one thing it is another. More...

Thank you all for your responses. Steven now has been on the glutenfree diet for one week and we don't see any change. All I can say is that I read others on another site with MCD do a lot better in the fact that they go to work and seem to lead a fairly normal life while taking the meds that the nephs have prescribed. Steven is almost bedridden because...

Hi again, Steven started in earnest with the non gluten to-day. His edema the last week seems somewhat worse; we don't know if it is from less prednisone, the added cyclosporine or just relapsing. i wish there was a CURE for MCD. It seems that children have a better chance of that. We are 71 years old and thus ole folks. i would be happy to give him one of...

Hello Kat, I already wrote some things to Lonewolf and won't repeat these here. Thank you for your input. As you know this kind of support really does give one a bit of hope and I don't think the medical profession has any idea what we are all saying to each other. They probably could learn some from the various experiences...At any rate I have this thought...

Hi Lonewolf, Thank you for your rapid response and encouragement. We do not know much at all about gluten free diet and need to research this. We saw the family doctor yesterday and he has nothing against us trying as he says' "it is not hokuspokus", no harm in trying. The most troublesome symptom is his very swollen feet and legs up to almost the knees...

Hi Lonewolf....my husband Steven was diagnosed (biopsy)with Minimal Change Disease in Sept 2007. He was on 80 mg Prednisone for 9 months and is now tapering off that and is on Cyclosporine (100mg twice a day) since two weeks along with predn. 10 mg every other day. I found this site and the possibility of helping him by checking out a gluten free diet.....