susanm

Hi, I had a negative endoscopy, but have been gluten-free since August 2008. Last week, I started getting a really itchy rash. It wasn't helped by antihistamines and steroids didn't do a thing. I've been looking up pictures, and it seems to be fairly consistent with what the celiac rash seems to be. I have little red dots on my thighs, and my arms and...

Thanks for the reality check. I did ask the party coordinator if they could order one piece of chicken not stuffed. If not, I'll just bring my own piece of chicken and eat the potatoes and squash. I understand not expecting people to understand or accommodate us, but if we always quietly eat our own food, how will people ever have any awareness of this...

The other night I went to my son's banquet at school for his sports team. It was a salad and pizza party with all gluteny desserts. I brought a fruit salad for dessert. I basically had salad and fruit all night. Now we're having an office Thanksgiving lunch. On the menu is stuffed chicken (why do they have to stuff it??!) and eggplant parmesan (probably...

Thank you for printing that for me. I think my adaptive immune system is at work because I also have hypothyroidism and Addison's disease, two autoimmune diseases. I know what he's talking about. Hayfever is probably an innate immune response. However, with my autoimmune diseases, the chronic inflammatory changes, and high antigliadin response on blood test...

I'm having trouble viewing the first link you provided. Ohh, there's so much to think about. The more I read, the more confused I am. I'll just stick with gluten-free to be safe.

Hi happygirl, I couldn't see the link you sent me, but I did some of my own research. I probably have non-celiac gluten sensitivity (NCGS). I just needed some justification to continue my gluten-free diet and feeling much healthier with it. I know I don't really have to justify it to anyone but myself, but it is a major lifestyle change. I mean, why would...

I know I don't react well to gluten. My antigliadins were high. My biopsy was negative, though it showed chronic inflammation. What does this mean? I had a 2 bites of cake the other day and got crampy. Why wouldn't the biopsy show something? He said he took the biopsy from a few areas.

I'm newly gluten-free (2 weeks). I went to my son's cross-country meet. They had some yummy chocolate cake. I totally forgot about my diet. My son came over with a piece of cake, and I went "yummm" and took 2 forkfulls of heavenly...oops! Ah, darn it! My son suggested I spit it out, but it was too late, I swallowed it. I don't know if this was a real...

I have Addison's disease, so I take hydrocortisone. I asked my doctor if that would affect the biopsy. He told me that in Addison's, I only take enough to live, so it shouldn't affect it (although I'm not so sure about that). Hearing that, it makes me think that taking more steroid would affect the biopsy. I had the endoscopy Monday, and I'm waiting for the...

I always thought that the sleepy feeling I'd get after eating was normal "after-eating groggies". Then I started noticing it was only after I had a lot of pasta that I felt like that (which I love!!) Do you mean I really have to give up Starbucks when I go gluten free?? I'm still waiting for the endoscopy, but I know I have gluten sensitivity.

I saw the GI doctor yesterday that will be doing an upper endoscopy on me. I asked him about the patchiness of the damaged villi. He said that it's very rare that it doesn't show up in the duodenum, so that's where he'll be taking the biopsy from. Is this correct? Should he be taking it from other spots also?

I'm still in the process of getting tested, but my antigliadins came back high. Now I'm wondering. My sister has had a long history of mental illness. She had an ulcer once and she has blood in her stool when she takes an ibuprofen. Otherwise, she has no symptoms - sometimes constipation, but that's it. I know it can be genetic, but would mental illness...

I'm new at this, so I might not be the best person to respond. Years ago, I was so bloated. I tried having Lactaid milk instead of regular milk, and that helped a lot. It's possible it's celiac, I don't know. I'm surprised, with your elevated white blood cells, that he didn't do more testing. It sounds like something to get to the bottom of.

I would check with an endocrinologist about your adrenal function. The reason I'm mentioning this is the odd tanning or vitiligo that you're mentioning and the fatigue. Do you crave salty foods? How is your blood pressure? Have you lost a lot of weight? If you can say yes to all 3 things, have your adrenals checked out. I have Addison's disease, but I...

Frankly, I can't wait to go gluten-free. I'm still eating gluten because I'm waiting for my endoscopy, though my antigliadins were high, I have osteopenia bordering on osteoporosis, I had celiac as a baby, and I KNOW I have celiac now. My brain has been so muddled for so long and I've been lacking in energy for as long as I can remember, that I'm just...