jennyo

How did you find out about the stool and food allergy tests? Did your GI have to order them?

Thank you for your replies. I'll try dairy-free as well.

He has not been formally tested for celiac, but the doctor wants to put him on a gluten-free diet to see if it helps him gain weight, as he is technically considered failure to thrive. I myself just posted in another topic area (pre-testing / symptoms) about my own problems, weight loss and other symptoms, but I have since tested negative for celiac. The...

Okay, negative for Celiac after blood testing and biopsy. No GI type symptoms but can somebody look at these and see if they sound familiar to what anyone else has had going on? I feel like I'm dying of some mystery illness: low rbc count low wbc count low platelet count no iron stores symptoms of malnutrition, despite very healthy intake weight...

I don't think she knows what to do if it's not Celiac. I don't know, she said something about referring to a nutritionist to see if I'm eating enough calories, which means I guess she thinks I'm lying about how much and how healthy I eat. Plus, what can explain the low blood cell counts and low platelet counts? It definitely looks like some kind of autoimmune...

False negatives--how annoying! She reviewed the findings with me after the endoscopy, which was the same --no visable damage but sending it off. Oh yeah, and acid damage from a hiatal hernia (great). Anyway, can they usually see damage at the surface? I'll be so bummed if the biopsy comes back negative.

No, I have never gone completely gluten free for more than a day. I would say "gluten-light." Meaning, no cereal in the AM, but still a sandwich for lunch. Maybe 2-3 glutens a day for the month before the tests and biopsy. Is that enough to still show damage? I've been "sick" for at least 10 years so there has been plenty of damage over the years. Hopefully...

How did you know how to do all that? Your own research or did you see a holistic nutritionist or someone? I think I do definitely have candida too -- I did a home test. I was going to wait and see if I got a celiac diagnosis and then do a candida cleanse too. But, there is definitely something else going on. I plan on going gluten-free regardless. But...

My blood panel came back negative, but I do have one of the genes, so I went for a biopsy last week. I'm so hoping for celiac disease because if not, we're back at square one trying to get some kind of cause for what's wrong with me. I'm worried that I didn't eat enough gluten before the biopsy. I was planning on it, but I got the biopsy scheduled so quick...