caligirlmom

Wow am I feeling overwhelmed. Thanks for everyone's input. We started my daughter on a gluten free diet while we are waiting for the rest of her doctor appointments to come about. Already my head is spinning. I found lots of information about what to look for on labels, but there are soooo many unknowns. So many ingredient labels say things like "food...

I called the gastroenterologist and they won't pre-schedule the biopsy before seeing the initial visit with the doctor. I understand that they have a process but my poor child is suffering. I packed her a gluten free lunch today for school but I'm afraid I shouldn't be starting this before the biopsy if it is going to cause problems with the diagnosis...

Thanks for the advice. I'm going to call the Gastro doctor today and ask if they can order the biopsy now so that there will be less time to have to wait for that last piece of confirmation. My daughter has had symptoms of non growth. no puberty, bone scans that show she is very behind, muscle cramping, etc. for a while now. She vomits and has loose stools...

My daughter just recently was diagnosed with Celiac Disease. She is 15 and is very small. We have been seeing an endocrinologist for over a year and she did a blood test at our last visit and came up with the diagnosis. Before going to the endocrinologist doctor we just kept thinking that all her symptoms were from other problems. We actually waited...