vthuskies

Just wanted to post an update since it's been a couple of weeks since my endo and colonoscopy were done. The GI said he didn't find anything obvious, but he did take some biopsies (still waiting for the results). I've been gluten-free since that day 10/27/08. Most of my gi symptoms went away within the first few days. I was still having D, but it was...

Thank you guys for your replies. I really needed to vent. Guess my expectation were too high after waiting that long to see someone. He was saying that I probably had some sort of infection that lead to my symptoms and changed the way my bowel is functioning. He says that he doesn't think I have celiac and that my bowels are just not working correctly...

After waiting 6 weeks to get in to see a new GI, I finally had my appt yesterday. I saw another GI in June (symptoms started in April) and he just said I have IBS, take Imodium, and move on. Since then I have become lactose intolerant and B12 deficient. I had the Enterolab tests run and they were positive for gluten sensitivity (see my siggy for more info...

I'll let him know about those veggie burgers, thanks for the suggestion! Sounds like we'll end up having a similar kitchen arrangement as you. Too bad our cabinet space is severely lacking. I'm going to have to get creative! The fridge is going to need a good scrubbing and we'll rearrange it so my stuff is up top and he can have the rest. There's a lot of...

Fedora, You are right, who knows what an endoscopy will show. I'm willing to do it and I'm going to ask for it at my GI appt. It is weird that that score came out low since I'm obviously having intestinal damage with the lactose intolerance and b12 deficiency. I know gluten-free and a vegetarian diet are possible, he's just not willing to do it. Veggie...

Thank you both for your quick and informative responses! I have such mixed emotions right now and this helps to clarify what I need to do next. I haven't been dismissing dd's stomach complaints and I'll definitely call her ped to have her run the celiac panel. Hopefully the doc (and my daughter) will be cooperative! At my GI appt I am going to...

I just got my Enterolab results back. Geez, those were the longest 2 weeks of my life! I'm not surprised by the first 2 results, but I'm kinda suprised my fat score was in the normal range. At least I know what's going on with my body and I can see the light at the end of the tunnel. Gluten sensitivity Stool Panel Complete Fecal Antigliadin IgA ...

Thank you all so much for your wisdom and support! I will print out that page from U of Chicago and bring it to my GI appointment. It's so frustrating when doctors act like they know so much about a disorder, but they are either using outdated info or just dismiss your symptoms. Hopefully the next doc is more open to investigating this. Thanks again!...

So is that what my results mean? My total IgA is low and the results aren't reliable? I swear, medical professionals no nothing about this disease (at least not up here, but it seems to be a wide spread problem). I guess I'll request to the new GI that all of the tests are run. Yep, my plan is to learn all I can about going gluten-free and will start...

I was able to get a copy of the tests my gp ran for celiac. Here are the results: Tissue TransgluAb: result 0.9, Unitys: U, Reference Range: <20 EndomysialAb IgA: Result:negative, Reference Range: negative, Analyte Specific Reagent My gp says he doesn't want to run any more tests and that I should just see the GI again. Guess I'm still on hold until...

Hopefully the Enterolab kit will get here today. I'm so ready to get it done and send it back out. Can't wait for the results! I guess since I'm requesting a biopsy with my new GI, I don't have to worry about traveling gluten-free, at least not yet. I've definitely been checking around the boards for ideas and how to deal with eating out, since we do that...

Thanks for the advice. I don't have an appt until 10/9 and that's just a consultation with the new GI. I have no idea how long it will take to get the biopsy. It really sucks that you have to keep eating gluten so the tests show something. I feel like I'm poisoning myself! I'm going to ask for a copy of the bloodwork on Tuesday, when I go in for my B...

So I called my gp's office to find out what test they ran for celiac. The receptionist pulled my file while I was on the phone, but she said that the file just said "celiac test, negative". I have to go back next Tues for a B12 shot so I am going to ask again what tests they ran and request the 4 tests that are usually recommended. I also made an appt with...

Thank you all so much for your suggestions and sharing your stories. This is all really new to me and is very overwhelming. I don't know what specific test my gp did for celiac, but I will definitely ask him and find out the results. I also found a support group website in my state and there are recommendations on doctors to see. I'm going to see if my...

Hi! I'm new to these boards. I've been doing a lot of research about gluten intolerance and celiac disease. Here's my history, I'm at a loss as to how to proceed. I've always had "stomach issues" thought to be related to anxiety. Lots of nausea, lack of appetite, cramping throughout high school (about 15 years ago) and college. This past April I had a...