craigiecarter

Anyone have any updates on this thread? I have been diagnosed with D.Fragilis and have corresponded with Jackie from badbugs.org as well. I'm thinking about treatment options and trying to decide on the best course of action. My PCP seems open to researching drug therapies, but if they are not available in the U.S. I'm not sure where else to try. Thanks...

So, I saw the Gastro yesterday for a follow up from my endoscopy, which was normal except for reflux, a polyp and a hiatal hernia (okay then, normal biopsy wise). My blood results were: Antigliadin IgA came back normal (1.3, with a reference range of 0-10) as did the Antigliadin IgG (.5, with a rr of 0-10), and the tTG, IGA (1 with a rr of 0-3)...

Timely, b/c dd must have had trace gluten exposure last week, and within an hour or so, she had a horrible angry looking rash between her legs and stomach cramps. Of course, if you believe all of the recent media on attention-seeking parents torturing their children, she should still be on gluten because she did not test positive by traditional blood tests...

Hi all, It's been a while since I've been here--busy cooking Gluten-free Casein-free and trying to figure out if the kids have more food intolerances. At any rate, people with potential gluten issues are popping up everywhere in my life, and today, in searching for information on which labs test for both Alpha and Beta chains of DQ2 (so an online friend...

I had tried to correct my post, but it seems to not have worked (still new to forums). At any rate, she actually has 0301, not 0302. Here is the link to that Lewey article that I think you are referring to: https://www.celiac.com/articles/21567/1/Ten...ting/Page1.html. Kids just barged in, so I'll have to read that link later, but thanks so...

Thanks so much cragiecarter for bumping this post up. I'm sure I glanced at it at the time, but I didn't know my gene testing results then which also happen to be the same as Crimson's. I actually had my endoscope done the day of the original post. Since my endoscope looked good, my blood tTg was not elevated, and I have no GI symptoms, the GI doc did...

This is a somewhat old thread, but Fedora, you've recently replied to me about my dd's EnteroLab results. I actually have glorious and rare quiet atm (which will soon end when the kids return with dh, lol), but I've been doing tons of reading that you and Nora suggested and just need to make sure I understand correctly. Crimson has the same genes as my...

Here Celiac Panel results from 3 years ago, indicated a high IgG (91, when 19 was the high end of normal). She was about 2. NP we used to see initially freaked and said that she had Celiac, then consulted a ped. gastro who told her to run a sed. rate and if that was fine, that it was a false positive. I pursued it, took her to a ped. gastro myself, who...

Eureka, I think I've got it!!!! So, she's DQ 2, subtype 2 (the one less associated with Celiac) and DQ 3, Subtype 7, also not directly connected to Celiac? So although there are 4 numbers, they are still only associated with the 2 B alleles? Thanks!!! Christie, still surprised at how much it bothers me not to understand something!

Oh, I forgot to mention that her TtG was elevated as well, which from my limited understanding, indicates intestinal damage, which would mean Celiac Disease. I have been reading about this on an off for 3 years, and it still makes my head spin! Am I totally off base? Thanks again, Christie

First of all, thank you, thank you, thank you. I have no idea why since I'm not totally new to the idea of Gluten intolerance/celiac disease for my family, but I still find it very overwhelming and lonely. That said, I'm sorry, but I'm still lost. I meant to ask this before. She is 2, 3, Subtype 2, 7. So she has the no longer considered celiac gene...

Hi all, I've tried getting this answer over at SillyYaks and by calling EnteroLab themselves. I'd really rather not pay for a $50 consultation with Scot Lewey, but it's driving me nuts. DD had testing through EnteroLab after her Celiac panel came back with only a high IgG. PCP did not want to repeat, as she suspected the results would again be...