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Light

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Latest Celiac Disease News & Research:

Everything posted by Light

  1. Light
    Thanks for your thoughts, ravenwoodglass. I understand that neuro recovery is non-linear and may take several months I just couldn't understand why I had such palpable improvement early on that was so short-lived. As I said before there were other changes that could have accounted for this positive shift and that's what got me wondering if celiac is really...
  2. Light
    I tested negative for celiac disease but went Gluten-free as an experiment to see if it might help my neurological symptoms. I did have considerable improvement in the first several weeks but I also made other changes around this time that may have been responsible this. After this brief period of improvement I slipped back to the status quo and even got...
  3. Light
    Can you guys help me figure out if my corn tortillas are safe? They contain--corn treated with lime, calcium propronate, carboxymethyl cellulose, monocalcium phosphate, potassium sorbate, fumaric acid). Thanks very much, Mike
  4. Light
    Gfresh-- Can you tell me about the cross contamination issue? I've had a terrible setback for several weeks and have been eating a lot of lays low salt chips. Thanks, Mike
  5. Light
    Thanks, guys. I am looking Gluten-free, 500mcg, subingual of cobalamine, which looks as though it may be a tall order.
  6. Light
    Is your brand sublingual? I forgot to mention that I am looking for a sublingual form. My current brand is TwinLab.
  7. Light
    I was wondering if someone could recommend a gluten-free B-12 supplement? Also, are the following ingredients in my current B-12 supplement Gluten-free? Malic Acid Cherry flavor Cellulose Sorbitol Croscarmellose sodium Magnesium stearate Silica Thanks very much, Mike
  8. Light
    Thanks everyone for your thoughtful replies. The only thing new I've added to my diet recently has been homemade lentil soup. Seems pretty safe to me but I'll be calling the company to see what they have to say... I have an email in to my doctor about the genetic testing for celiac and doing more general tests to look for other causes of my confusion....
  9. Light
    To recap--my celiac disease test results were negative... My PCP thought the Gluten-free diet might be worth trying anyway... Several weeks after going Gluten-free my worst symptom (confusion) improved by maybe 50-75%. The improvement was palpable and I was certain I was on my way to recovery. Despite religiously adhering to the diet. for the past 6 weeks...
  10. Light
    Thanks, everyone for all of the help. I am going to keep at the diet and see where it takes me. Time to start a food journal.. Between the glutenings that are bound to happen and the improvement that I might see over time I think it will become clearer whether I am gluten intolerant or not... That's my hope anyway....
  11. Light
    Hi, rinne- My B-12 was down to 191 but is now up to 1324 with subingual b-12 supplementation. I don't know if it's helped or not but I am thrilled to have this corrected and I suspect that it is helping on some level. My D was very low at 8. I started 1000 IU and my level only went up to 9. I've since increased my dose and will retest in 2 months. Is...
  12. Light
    Hi, ang1e0251- I don't have the results handy but I think it was the ttg that was 5... Can you describe what your neuro symptoms were like and how severe they were? Do you recall the pattern of your recovery? When you first noticed you were getting better, etc... Were your tremors worse when you were having a foggy episode? I have had essential tremors...
  13. Light
    I tested negative for celiac disease several months ago. Not sure what my results were but there were two tests and one of the numbers was 5... My doctor thought I might be gluten intolerant so I've now been on a Gluten-free diet for 4+ months and have experienced some improvement. In particular, my bowels seem much better although they seemed a little better...
  14. Light
    Thanks everyone for your thoughtful responses. I have other medical issues and there are other possible explanations for my brain fog, etc but I also have reason to believe that this could be related to gluten. It's helpful to hear everyones' time lines and it helps to motivate me to keep going. I am excited to give some of the products suggested here a...
  15. Light
    My tTg was 5 but because of the significant percentage of false negatives discussed here and my doctors suggestion, I am giving the diet a go. A few questions.... I know it varies a great deal and that full recovery can take a year or longer but at what point do people notice that the diet is definitely helping? I am interested in hearing what sort...
  16. Light
    Thanks for all of the great information, everyone. I may have additional questions and comments but am pretty foggy at the moment. Just looked at the link above and I had forgotten that I love potato bread so that may be an option. I've got to have carb alternatives:) I just got my results. I didn't write down the name of the test but it was one of the...
  17. Light
    Thank you all for the input! Based on this information I think I may continue with the diet regardless of my test results (should have those tomorrow). Today was day 1... I had some horrible corn based bread but got through it. Looks like it's back to the store to look for other gluten free bread products... Does non-alcoholic beer have gluten in it?...
  18. Light
    Thanks for the information and welcome, Liaa. I will take a look around. I should have my results on Monday. My Dr. said that some people show improvements on gluten-free diets even if they don't test positive. I think I'll avoid the endoscopy, as I have issues with anesthesia.
  19. Light
    Thanks, Amyleigh... How's your son doing now?
  20. Light
    Thanks for the link to the article, Momma Goose. That's interesting... I just started reading the site. Is there a subset of members here who don't have prominent GI symptoms? Also, can I change my diet after doing my Celiac screen or are there possibly more tests? It's really hard for me to keep eating wheat, etc knowing that it may be contributing to...
  21. Light
    Hi, I have loose stools but just once a day. I don't have bloating or other GI symptoms... However, I have other symptoms that I wanted to run by you guys. (I am waiting for the results of my celiac disease screen) --Terrible brain fog. --Nutritional deficiencies (Vitamin D, Vitamin B12, borderline low thiamin) that may be indicative of malabsorption...
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