LIS-Guy

That's interesting, since canker sores are well-documented to be associated with Celiac Disease and is referenced by every reputable site I have looked at, including the Mayo Clinic: Open Original Shared Link LIS

I had my endoscopy today and I wish I could say I'm happy about it, but I'm not. The nurse told me afterwards that the whole procedure took only five minutes from start to finish, where they normally take twenty to thirty. She said the doc was 'rushed today'. And instead of the eight biopsies the GI discussed with me beforehand, she only took two... one...

Canker sores are one of the documented symptoms of Celiac. I get them all the time. I am currently being investigated for Celiac (biopsy on wednesday) and I am also undergoing testing for primary immune deficiency disease, because of my chronic infections (ears, sinuses, throat, etc).

It will be more accurate than a 'vega machine'. LIS

Hi all, Just wanted to report that I had an excellent visit with the gastroenterologist today. She was extremely thorough in going over my medical history, she reviewed with me all of the blood work my PCP has ordered so far, and then we discussed my current symptoms in detail. She made quite a few notes, listened attentively, and seemed especially...

Hi all, My PCP ordered a quantitative immunoglobulin panel for me last week. My IgA, IgG, and IgM levels are all normal, which supports the negative Celiac blood work I recieved. Nevertheless, I'm keeping my appointment with the gastroenterologist on thursday. Celiac or not I still have chronic GI issues that need investigated and an endoscopy is probably...

Thanks for the replies! I took some time to research Total IgA this evening and understand now exactly what you have been talking about. In fact, it seems to me that my results are pretty much worthless without knowing whether I am IgA deficient or not. Given that Celiac patients are more likely than the general population to be IgA deficient, I wonder...

Hi, I got my Celiac labs back today and they were all negative. However I do have an appointment scheduled with a gastroenterologist next thursday and I have authorization to proceed with an endoscopy if I should want one. It seems prudent to go ahead and have this done, since my symptoms are highly suggestive of Celiac and there may well be something...

That's nice of you to say, mslee. Unfortunately it just is what it is. We all know people who abuse the system and get benefits where they are not needed, and we all know people who desperately need help but can't get any whatsoever. My friend Tommy worked hard his whole life, paid his taxes like the rest of us, and died waiting for a heart transplant...

Congratulations, cat! It sounds so odd... congratulating someone for having Celiac... but I think everyone knows what I mean. It must be a HUGE relief to finally have an answer to what's been ailing you. I hope that your road to recovery is swift and that you find ever-improving health with your new diet. LIS

It's such a wishy-washy process. A friend of mine who has a rare congenital heart disorder (same as I have) was turned down repeatedly, year after year, while his health continued to decline. He ended up dying last year in a hospice, unable to feed or bathe himself, yet SSI told him right up until the end that he could get a desk job. It was heartbreaking...

It doesn't.

About how long does it take to get Celiac blood work back? From what I understand they are not done locally and must be shipped off to another lab. Am I looking at a couple days? Weeks? Just wanna know how impatient to get.

Just to be certain... I should NOT go on a gluten-free diet after my lab work tomorrow... just in case my doc wants to order additional tests? This is so hard! I want to go gluten-free right now so bad, and it kills me to stay on a heavy gluten diet just for these tests!

Thanks cat, that's always good to hear.