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kaiess

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Everything posted by kaiess

  1. kaiess
    Our problem is, we live in a remote area in northern BC, Canada where the nearest Wendy's for us is 8 hours away. That is how far it is to the nearest city of population more than 12,000 people in fact. I like the hot plate idea, thank you b/c I would never trust any restaurant around here to make something gluten-free, I highly doubt they would even...
  2. kaiess
    We are preparing ourselves in case my son gets diagnosed. HOW on earth will we travel with a super picky eater who has Celiac disease? When we travel, b/c we live in a remote city, it is often 3 days of driving there and 3 days back. We usually stop at fast food places, Subway, etc. Sometimes we try taking sandwiches, fruit, etc if we have room for a...
  3. kaiess
    WOW!!! OMG! All the things we'll have to think of. I would have never thought soap had gluten in it. I guess I better learn a whole lot more YIKES. Thanks for all the feedback and tips. Kathy
  4. kaiess
    First of all I'm new here, trying to learn as much as possible prior to my son's imminent diagnosis (in my opinion). I have a question regarding him (he's 9) eating his lunch at school. They do not offer lunches at school but kids are welcome to bring lunches from home and eat in their classrooms at lunch time. My concern will be the crumbs all over the...
  5. kaiess
    I'm not one to give advice yet, b/c we're right there with you on this one, but I do remember our gastro telling us that normal TTG is under 20 and my son had a first reading of 95 and a second reading of 145 (6 months after the first). We are in BC so I assume they have the same tests as Ont. My son was scoped after the first reading of 95 and it was negative...
  6. kaiess
    I'm still trying to learn as much as possible about Celiac pre-diagnosis and have a few questions. I see a lot of people talking about pain and other conditions due to Celiac. If my son is diagnosed and he eats gluten free for the rest of his life, will he have a normal life span? Does Celiac disease cause pain at all if you are gluten-free? Will it...
  7. kaiess
    Thank you both for your replies. I'm here on this board preparing myself for the diagnosis. They will not give us an official diagnosis (BC Children's Hospital) until they see a positive biopsy. I have asked for the bloodwork on my daughter for now. They ordered the gentic test as well as an IgA, TG, and what looks like a 1g1a or a lgla?? She is only...
  8. kaiess
    Last year this time my son was first screened for Celiac. He has Type 1 diabetes and his ped endo screens all the type 1 kids. His TTG came back at 95. Normal was under 20 I believe (or lower). They scoped him 3 months later and it was negative but they did find ulcers (not H.Pylori related). We treated the ulcers with lansoprazole 60mg daily for 6 weeks...
  9. kaiess
    Forgot to mention also that I'm going to ask for another scope b/c by then it will have been nearly a year since the last scope. Believe it or not, right now I'm more concerned about his ulcers being healed up vs the Celiac. I'm assuming they will run another TTG in December and if it's even higher then I will demand he be scoped again b/c something is...
  10. kaiess
    This was the specialist for our Province that we saw at the Children's Hospital. He specializes in Pediatric GI problems. I don't think we'll ever get a diagnosis until they find destruction and absolute proof that he has it. I just wish (well not wish....) that they could diagnose it NOW if it is going to end up positive one day anyways, b/c he's going...
  11. kaiess
    My 8 year old son was screened for Celiac earlier this year b/c he has Type 1 diabetes (and they add this to their tests just to rule it out). Well his TTG (I hope I'm stating these properly) was about 94. He was then scoped and the biopsy came back negative. He did however have duodenal ulcers, which they were hoping was the cause of the high TTG. So...
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