farmer

Did they do the following test: endomysial IGA antibody titer Normal is <1:5 This, according to my GI specialist, is the important test for celiac.

A bit of a mistake on my part. The gastro specialist gave me the correct #'s. The titer is the highest he has ever seen: Endomysial IGA Antibody: 1:2560 A normal reading is <1:5 Also, my TTG IGA was >100. A normal reading is <5. Just wanted to give the correct numbers.

I probably should have explained in more detail. My hands aren't cold all the time. If I'm in a cold area for an extended period of time, they tend to get colder quicker since I've gone gluten free. When I return to a 'room temp' situation, all is fine.

Not sure if this is a side affect of being gluten free, but my hands get cold fast when the temp is down a bit. A lot more noticeable since I've been gluten free (a little over a month now).

Yes...much better.

Thanks to all who have given input. This is a great site. I've been gluten-free for a little over a month, and I do feel much better (little to no gas, no bloating, no occasional nausea, etc.). As a quick fyi, here is one of my blood results: ttg iga: 7100 The negative range is <5. This is the # the gastro specialist said was the highest he had...

I met with the gasto specialist yesterday. He told me that he would not pursue the endoscope biopsy due to the fact that my celiac panel blood results were extremely high, and also my family history. He said that he had never had a celiac panel titer come back as high as mine, and that I definitely, without a doubt, had celiac.

Just to let everyone know, if the GI wants me to get the biopsy, I will. I was only asking for an opinion. I certainly would abide by whatever a specialist tells me. I also think that everyone should get a yearly physical, which includes routine blood work.

Haven't seen the GI yet, not until first week in January (soonest I could get). However, since my doc said the celiac panel was 'proof positive', along with the fact that 2 members of my immediate family have it, I have been on the gluten free diet for almost 2 weeks. I don't know if the GI is going to want to pursue the biopsy route, but we'll see. My...

Don't really want it done, just want to make sure it is not necessary. As I said, between the blood work and family history, my doc didn't see the need, but I don't know what the gastro specialist is going to say. By the way, seeing him was at my request. Thanks.

Just tested VERY positive for celiac. My brother and sister both have it as well - brother for over 10 years, sister for approximately a year. The celiac blood panel came back very positive according to my doc. He told me due to the fact that the blood panel was so conclusive, and that it runs in my family, there was no need for further testing (biopsy...