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whistle

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Everything posted by whistle

  1. whistle
    Maybe the number itself has no significance, other than it's a number that makes you notice it. Maybe the whole point is that you take notice. When I notice stuff like that, it gives me faith that there's more going on here than meets the eye. And that helps me get through difficult times.
  2. whistle
    Or maybe a reference to emergency - 911 I've had weird things like that happen to me, but I just started the diet so haven't been glutened yet. I'll see what happens. .....life can be so strange....
  3. whistle
    This is the first time I've heard of this. (I'm new - just been gluten-free for 4 days - improvement already). The bone in my gums is receding and I have very sensitive teeth. I also have a growth (I forget what it's called) though it hasn't changed in years. It's like there's a tooth trying to come out sideways, but there's no tooth.
  4. whistle
    I started a gluten-free diet 4 days ago, and I've already seen improvement in one way. As I mentioned earlier, I've been taking a prescription acid reducer in order to prevent constant acid indigestion. If I stop taking it for a couple days I get so acidic it seems to expand beyond my digestive system - like my eyes feel acidic. I stopped taking the pills...
  5. whistle
    lol rinne Wow, that CT scan sounds brutal. Thanks for the advice. I gave up on the rash but I started a gluten-free diet 4 days ago, and I've already seen improvement in one way. For the past three years I've been taking a prescription acid reducer, in order to prevent constant acid indigestion. If I stop taking it for a couple days I get so...
  6. whistle
    Unhappy, I'm so sorry for your suffering. When I had cancer in my teens, it was very frightening, and for a long time I just thought I'd probably die soon. But I didn't. I hope you don't give up, and get all the help you can for your health. My heart is with you.
  7. whistle
    Thanks, you guys! I have a lot of symptoms of celiac, but I couldn't get the whole blood panel, just transglutaminase, and I tested negative. My gastro appointment isnt until July 23rd, and I was told I was lucky because it usually takes a year. Did you guys have trouble with stuff like that, too? I know we have doctor shortage here in Manitoba (and...
  8. whistle
    Hi Magician and rinne! I found this for Brandon: Open Original Shared Link The site isn't very informative, but there are a couple of contacts on there. I live in Winnipeg, and am trying to figure out if I have celiac or not. Thanks for the link for celiac support in Winnipeg. Good luck!
  9. whistle
    Hi Jitters, I don't know if I have celiac yet, but I've had thyroid problems for several years. Because of that, I see an endocrinologist. That may be a good idea for you, too.
  10. whistle
    Unhappy and Cath, I realize you are already recognizing the seriousness of celiac, but I still felt compelled to throw my two cents in. I'm 40 and have been very ill for eight years. I just started learning about celiac a month ago, and discovered that all my problems could be explained by it. One of the things I read was an article from 2006 which said...
  11. whistle
    I forgot to mention that I looked at a lot of DH sites and the pictures they showed never really described my rash. It manifests itself differently in different people. But then I found the following link that has a larger selection of photos, which you might want to check out. (I don't yet know if I have DH, but my rash looks exactly like DH3 and DH4...
  12. whistle
    Just in case you start looking into whether or not your levothyroxine contains iodine, I thought I'd try to prevent possible confusion. The reason iodine is an essential nutrient is that iodine is an essential component of thyroid hormones. "Levothyroxine" or "thyroxine" is the same thing as the thyroid hormone, "T4". The "4" in T4 stands for the number...
  13. whistle
    This is very interesting. A month ago I got a neg celiac blood test (couldn't get the whole panel - just transglutaminase). My doctor tested for a bunch of other stuff too. The one thing that was a little high was my white blood cell count. Two weeks later I had another test and it was still high, so today I got WBC tested once again. I don't know if...
  14. whistle
    I'm so grateful for your guidance. It sounds like a plan. I'll start the diet. I'll let you know how things go. It's true I haven't felt very photogenic lately. I'll take some pics too ---->
  15. whistle
    Thank- you both for your insights. I'll look into all those possibilities.
  16. whistle
    I have gotten "eczema" all my life. When I lived in a more humid climate I got it all the time, and never knew what triggered it. Now I'm in a dry climate and I only get it from contact with stuff like oil paint, adhesive bandages, etc. I get very dry skin but can avoid outbreaks of the rash. I don't know if it sounds like DH or not. I'd mainly get it inside...
  17. whistle
    Hey, I just came up with a peculiar idea.... I have gotten "eczema" all my life. When I lived in a more humid climate I got it all the time, and never knew what triggered it. Now I'm in a dry climate and I only get it from contact with stuff like oil paint, adhesive bandages, etc. I get very dry skin but can avoid outbreaks of the rash. I don't know...
  18. whistle
    How true, how true. I've often shoveled toast, bread, and soda crackers into my face to settle my stomach, and if it worked I wouldn't have to take rabeprazole sodium every day to keep from having acid indigestion 24/7. You know, after a few days of taking that medication I honestly said this to myself,"What's that weird feeling in my stomach? Oh, it's...
  19. whistle
    Thank-you, Turtle and Raven, partly for the information and partly for just helping me clear my head. It's hard not to get confused and freaked out when brain fog and anxiety are symptoms of mine. Unfortunately, where I live they don't do the celiac blood panel, they just do one of the tests (transglutaminase, I believe) and I tested negative. I don...
  20. whistle
    The earliest gastroenterologist appointment I can get is July 23rd. If I have a chance at a diagnosis from a biopsy, I don't want to ruin it, but I'm also anxious to find out if a gluten-free diet would help me. I'm disabled by my symptoms. Among many other things, I don't remember what it's like to have energy. I think I want to try the diet right now...
  21. whistle
    That's very interesting, Nora, thank-you. And thanks again, raven. I realize I shouldn't diagnose myself before I've even started the diet, but it sure would make sense. A few months after my thyroidectomy I moved away from my prairie home to downtown Toronto (which is a sprawling metropolis). I was very healthy there, other than getting a rash fairly...
  22. whistle
    Thank-you, ravenwoodglass! Wow - 30% - that's huge! Is the percentage of false negatives on biopsies similarly high? Also, when I described where I live it made me think of another question. Does anyone know if celiacs who live in a grain producing region can react to inhaling particles in the air during threshing time, or if there's a lot of grain...
  23. whistle
    Hi again. Thanks, for the help regarding testing. And thanks for all the other info and support that everyone shares on this excellent site. I tested negative on my blood-test, though I could only get one, rather than the whole panel. I'm going to a gastroenterologist (not the bizarre doctor I mentioned before). I'm hoping doctors aren't too out of...
  24. whistle
    "About 6 months ago at the suggestion of a friend I went to see a wellness doctor and was given a physical and tested for other vitamin deficiencies of which I have a few. I was also tested for hypothyroid and found to have a problem there as well, but didn't want to take the meds and have tried alternative solutions, none of which have worked yet." ...
  25. whistle
    Thanks, you guys! Maybe this could be a poo analysis forum. Or we could start another topic just called something like, "pooperama". If not on a celiac site, where else? I got a blood test, but unfortunately where I live they don't do the full panel. They just test for one thing, and if you test positive then they test for one more. My doctor said...
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