sandejosgirl

I wanted to add my two cents as a mom who wasn't going to biopsy. I have 3 kiddos, my oldest turns 5 in May and all have GI issues. We were just thinking celiacs until some funny bloodwork turned up the possibilty of IBD, which is a disease that can happen in conjunction with celiacs. After considering the possibility of having to have my kiddos scoped...

We were just at the Ped. Gastroenterologist on Wednesday at a prominent Children's Hospital for my daughter's "issues". She is 13 months old and still breastfeeding. No growth or new teeth since 7 months old, sleep has started to go downhill (she was sleeping in 3-4 hour chunks at night, started waking every 40 min to 1.5 hours) and has major food intolerances...

Crohn's FREE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! The Ped GI thinks we had a false pos cause only 2 out of 7 markers were present w/o weight loss or diarrhea. AND these past 4 weeks we (Joy and I as we are still breastfeeding) have been gluten-free = 1 shoe size 1 inch in height ...

Well, we are waiting, waiting......waiting of our Peds GI apts. Joy (the baby) gets in next Wed for our initial 40 min apt. In the mean time? I freaked out and asked our Pediatrician to run Crohn's labs on my oldest two (4.5 & 3) cause frankly they have way more symptoms of "something" than my baby. Did you guess it???? Yep, they came...

What did they do for the prep? Curious as we wait for our Ped GI Apt, we know that we are getting signed up for both ends too. I'm most nervous about the prep for the colonoscopy which I have heard can be really hard on the babes. Thanx. Stephanie mother of Faith, Caleb & Joy all waiting for their Ped GI apts to get both ends scoped for multiple...

Heyyah! I have found the gene test important for Drs who don't think celiacs is a possibility for my kiddos. My 3 kids are all under the age of 5, and on a gluten-light diet before the anti-body testing which turned up low numbers. But, as they all have the genes associated with celiacs, are symptomatic, responded to the elimination of gluten and a gluten...

Wow! We have gone through this too, but my kiddos are younger (almost 5, 3, and 1). I have now determined that I will NOT short order chef, for any reason, even for food allergies. What I mean is, my house is not a diner or a restaraunt where you get to look at a menu and order what you want. If I made it, the choices are: eat it, or go hungery! My...

Heyyah! I wanted to reply to your post so that you know that people are thinking about the issue! We care! This is a great place to get info and support. I have a daughter (4.5yrs), son (3), and baby girl (1yr) who are in the very least gluten sensitive. They are highly clinically reactive to gluten (i.e. you eat it and get sick) and have the genes for it...

Heyyah! We went up to stay with friends for a week while my husb. had some training for work. Made all our dinners ahead of time and packed all of our food in & out. We still had trouble with glutening while we were there. I have no idea what the problem was. Side note: I don't think the new standard for what constitutes "gluten free" is in effect...

Hi! I too do not have an official celiac diagnosis. We are trying to get one for the kiddos (long story), had to add gluten back in to do it. I didn't think that I was sensative, until we added gluten back in. I was feeling so poorly that we decided that I would go gluten-free and if we decided to persue the Gold Celiac Star later would try gluten intro...

I forgot to add, did you check your spices? As in, call the co. and ask? Sometimes they dust the belts with wheat so they don't stick. Same with lots of products that don't contain wheat, but they'll use wheat or corn in the machines. Always, call!

I asked a celiac friend of mine for any advice as we are just starting out gluten-free. She said that even though she is the only celiac the whole house has finally gone gluten-free. The did the whole separate thing, counters, cutting boards, toaster, cleaning all the time. She said she just finally got sick of being sick! Even though she was so carefull...

I don't have anything useful to add but a note that Namaste mixes don't contain soy, dairy or eggs. I know that you aren't doing processed foods, but we use the brownie mix and Ever-G egg replacer and applesauce to make a "chocolate cake" for birthdays.

My two oldest kiddos have asthma and gluten-sensativity/celiacs. We are hoping there symptoms will respond better to treatment now that we are fully gluten-free. Allergist before just had us cut wheat/rye from our diet but now we are having to increase our inhaled steroids. Another note, my husb. is also just getting diagnosis with celiacs (we aren...