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Kathy Mac

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  1. So the results are in........ the biopsies were negative for celiac. He did see a small ulcer, but thinks it was due to taking over the counter pain relivers (which I don't take very often - 1x a month maybe). However, just in case he wants me to take a blood test for IBD to totally rule out Chron's. Seriously we are back on Chron's!!!!!!! I don't think it...
  2. So now I'm getting mad. Still no results! I left messages Monday, yesterday, and today and not even a call back. It's been 2 1/2 weeks since the test. Has anyone else had to wait that long for biopsy results? I'm assuming this means they haven't found anything crazy or to bad since I hope they would have call for that. But even if the results are normal or...
  3. OK, so tomorrow is 2 weeks since my enteroscopy and still no results! Holy cow how many biopsies did he take!?! They said the results are typically avaliable 5-7 business bays after the procedure and we're going on 10. Just venting a bit. I'm anxious to hear the results. I carry my cell phone with me everywhere, just in case they call. I guess they come when...
  4. Wow, we have had REALLY similar experiances! My blood tests have come back negative for celiac twice too. I really haven't eaten much gluten in the past few years so I have a kernal of doubt that they were accurate. I question my own judgement on the severity of my symptoms everyday. But in moments of clarity I know it's not normal. And I swear that...
  5. Thanks for the encouragement. RubyRed, Our issues/experiances do sound similar. Sorry to hear that - hang in there and I hope you get a diagnosis soon. I'm cauiously hoping that the recent biopsy results will tell me something, but I've had so many tests come back normal that I'd be shocked if it was anything but that. The really wierd thing is that...
  6. So I went in for the enteroscopy ..... I was all doped up from the sedative, but the Dr. talked to my husband. He was all excited because he was able to see my whole small bowel and usually they can only get about 1/2 thru it in one procedure. So he saw everything there is to see I mentioned my celiac concern before the procedure and he said he was sure...
  7. OK so now I feel like a ping pong! I went to the GI Dr. that my GI Dr. referred me to for an enteroscopy. Aparently it is an endoscopy that goes a lot further into the small bowel (about 1/2 way down - or 1/2 way up if they start in the colon) and can take biopsies (which the pill cam can not). I guess not many Drs have the training to do the enteroscopy...
  8. Just wanted to give you an update. I did have the capsule study and my Dr. saw a very small ulcer in my small bowel. He believes it is IBD and has referred me to another GI Dr. for an enteroscopy to confirm the diagnosis. He thinks my reaction to gluten is IBS related - either way he says if it doesn't feel goood to eat it then don't eat it. Kathy
  9. I've been suffering with GI issues for the past 5-6 years (I'm 37). First it started as acid reflux. The reflux was diagnosed by an endoscopy. I controlled it with prilosec and for a few years. Then about a year and a half ago I had a really bad experience - every time I ate I felt like I had a lump in my throat, my reflux got really bad, then I just was...
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