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siouxsie

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  1. Basically, I'm looking for opinions on when testing may be most accurate and which tests does everyone here find are the most accurate. Since I was diagnosed w/ celiac 19 mos ago, both my kids (ds@15 mos &dd@ 6yrs.) were tested and found to have the gene but no sign of the disease yet. GI said to have him tested again b/t 2 &3. I'm hoping for...
  2. I'm celiac disease, Dx last Dec. My 2 children have genetic disposition, my hubby had weak pos. on blood work...won't do further testing or go gluten-free, not even gluten restricted, my m-i-l is under going testing, thinks she has IBS or reaction to diabetes medicine, was severly painfully bloated after eating 2 bagels in one day...she usually doesn't eat...
  3. My children's pediatrician is finally tired of hearing me say "I want my children tested" He than says "But they are growing fine." To which I say "I grew fine for 28 years before I found out." Now I have an appointment w/ the pediatric GI at Schneider's Children Hospital and I hope he is open to the symptoms I see and won't poo-poo my fears and...
  4. At 28, I finally found out I have celiac. Now my worry is how to handle it with my children. I'm convinced both of them have it but neither show strong signs. I see symptoms but that is because I'm looking. Neither child is sickly, but for example, my 9 mos old son never, and I mean never, spits up unless he has something w/ gluten and my 6 yr old is...
  5. Thanks for the tips. I agree about the bananas and my son loves them so I'll go back to letting him have them once in awhile. I thought of making my own rice cereal but wasn't sure how or if it would have the nutrients he needs...maybe I'll give it a try. His dr. said to stop the oatmeal and try the barely. I'm willing to try and see if he has a reaction...
  6. My son is almost 5 months and I just found out that I have celiac disease. Since he is thriving on my breast milk despite the fact that I've only been gluten-free for about 2 weeks, his pediatrician has suggested he have cereal in addition to nursing whenever he wants in order to compensate for the low levels of iron and calcium in my milk. In just 3....
  7. I just found out I have celiac- sprue and as I'm eliminating gluten from my diet, my son is 4 1/2 mos. and his dr. is starting him on cereal. He has been successfully breastfed with one or two times we had to suppliment (one time I was in er for dehydration and the other was after the abdominal cat scan I had) His dr. knows my diagnosis and said to try...
  8. I just found out that I have celiac-sprue. While waiting for the results I talked w/ some cousins and found out that two aunts and one cousin also suffer from horrendous gas, bloating, etc. w/o a clear cut cause. They think maybe lactose or perhaps it's their diabetes. Well, no one knows of this disease in my family but I do know that my relatives w/ similiar...
  9. Thank you for your replies. It's so comforting to have people who can give answers and quiet my fears and guilt. So far my son has not shown any signs, thank God, and hopefully he will not have celiac. I've been sticking w/ Beech Nut Naturals because as far as I can see on the labels, there's nothing but rice flour for the rice cereal and oat flour for...
  10. WHat are the chances my son has celiac sprue as I was undiaganosed and untreated all through his pregnancy? He certainly suffered w/ my malabsorbtion since he only weighed 5lbs 11oz (my daughter was born 9lbs 4 oz 6 yrs. ago)and has grown quite fast in the past four months to catch up to normal baby weight. I'm happily nursing and his pediatrician supports...
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