Mia's Mum
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Everything posted by Mia's Mum
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ARCHIVED New Family Desperate For Sensible Advice
Mia's Mum replied to Mia's Mum's topic in Parents, Friends and Loved Ones of Celiacs
Hi. Yes, the chocolate was definatly gluten free. Her tummy was bad so quickly after eating it I guess she just had too much (though not loads) and it set her Mastocytosis off, her skin has been bad since too. Kathy -
ARCHIVED New Family Desperate For Sensible Advice
Mia's Mum replied to Mia's Mum's topic in Parents, Friends and Loved Ones of Celiacs
Our daughter was diagnosed with Mastocytosis at 6 months after gaining rapidly increasing numbers of Urticaria Pigmentosa marks on her torso. We were given the name of the condition but told it would go very soon and not to worry - yeah right!! Now we know different and I am a parent and children's advisor for our UK support group. Mastocytosis is very... -
ARCHIVED New Family Desperate For Sensible Advice
Mia's Mum replied to Mia's Mum's topic in Parents, Friends and Loved Ones of Celiacs
Hi again and thank you again for the replies. When she had her blood tests, the hospitals laboratory only did some of the requested blood tests. They stopped other tests from being done saying they were not relevant. Some of the tests the laboratory did not do were the HLA genetic test for D2 and D8 markers - Celiac, the lactose allergy test and others... -
ARCHIVED New Family Desperate For Sensible Advice
Mia's Mum replied to Mia's Mum's topic in Parents, Friends and Loved Ones of Celiacs
Thank you so much for your replies, I am touched by your kindness. It makes a huge difference to hear from people who know what they are talking about but aren't obsessed with gold standard diagnosis. My little girl has improved since going gluten free as I said before but is still getting GI symptoms on and off during the day. She is no longer getting... -
ARCHIVED New Family Desperate For Sensible Advice
Mia's Mum posted a topic in Parents, Friends and Loved Ones of Celiacs
Hi all I am new to the forum, from the UK and desperate for some advice. Our Daughter is 8 and had a positive anti ttg blood result last June followed by a positive anti endomycial antibody blood test last September. She has always had terrible stomach problems and I have cousins with Celiac Disease. Unfortunatly she also has a rare medical condition...