Sierra's Mommy

Hello: Just wondering if you experts could shed light on the following lab results just received over the phone. My younger daughter and I were diagnosed with blood and biopsy earlier this summer. We just took my older daughter in for a screening, and the doctor said: "Her IGA serum antibody was positive with a 21.9--no range given, just interpreted positive...

Thanks so much for your response and for checking with your daughter. I would really like a primary care doctor who understands Celiac. I have experienced a myriad of related ailments over the years looking back, and of course, no one "connected the dots". However, now that I have a diagnosis, I would like someone who understands the importance of routine...

.northlandceliacs.org

Hello: I was recently diagnosed with Celiac, through a routine screening of family members. (My 6.5 year old was diagnosed two months ago.) My endo showed inflamed, flat lining with "no villi present". My internal medicine Doctor does not appear to understand Celiac, and I am concerned that I will not receive proper follow up care to ensure that I am...

Okay, this one takes the prize! So, in following up to see if I can get a bone density scan done (still looking for a new md, however just trying to keep navigating through this journey in the interim), the nurse read the doctor's instructions to me over the phone. "Received biopsy which confirmed Celiac. She may want to speak with nutritionist, since...

Hello: I just had to share some of the comments we have heard from our doctors over the course of the past two months, in which it was finally determined that both my daughter and I have Celiac disease. I'm not trying to ridicule our medical professionals, however I am sharing this to showcase how little is known about this disease in the general medical...

Hi: My six year old was just diagnosed in March. We searched and searched for books for her to read, and also share with her class. We did find the following, "Eating Gluten Free with Emily", by Bonnie J. Kruszka, however, it wasn't quite what we were looking for to read to her class. We are making our own book, complete with photos. It will be...

He doubts "I have Celiac disease". Many of you may remember that my 6 year old was diagnosed with Celiac after two positive blood tests and a biopsy confirmed it last month. As a matter of routine, my husband and I were tested. My Ttg and EMA both came back "interpreted as positive". However, in speaking with my internal medicine doctor today, he said,...

Celiac Disease! Well, "not for sure", according to the clueless internal medicine doctor I saw today. So, many of you may remember that my 6 year old was diagnosed with Celiac after two positive blood tests and a biopsy confirmed it last month. As a matter of routine, my husband and I were tested. My Ttg and EMA both came back "interpreted as positive...

Thanks for your kind words. We haven't tested our 8 yr old DD, either. We feel the same way, if she needs to adjust to gluten-free, it will be a much harder transition. We have decided to wait until summer before we test her. Thank you so much for your support; it really means a lot!

Thank you so much for your kind words of support! It is so helpful to hear from moms who have walked this path and can relate. One of the things she misses the most is bread. And it seems the choices are so overwhelming, we could benefit from some guidance. Are the prepackaged breads (tapioca loaf, etc.) really as bad as some posters have claimed? Are...

Hello: I'm not sure which stage of mourning we're in....the anger has been spent, we can no longer deny that my daughter has Celiac--but we're not quite at acceptance yet. Is there a pity stage? 'Cause, optimist that I am, things have been a little tough for both my daughter and me. I'm tired and feeling overwhelmed by the cooking, grocery store buying...

Yippee...I found it at a library outside of our county (but still only a 20 minute) drive. They're holding it for me; plus I have it on order from Amazon, so my dd can have her own copy. ~Sierra's mommy

Hello: Thought I'd toss this out to see if anyone could lend me this book. Our six year old was diagnosed with Celiac last week, and she will be returning to school tomorrow after a week's break, while she healed. Her first grade class wants to know what's been wrong with Sierra, and the teacher has asked me to come in to speak. I have tried to find this...

Hello: We just received confirmation that our 1st grader has Celiac. I have kept her out of school the previous week, due to her discomfort and multiple bouts with diarrhea every day. We have taken away the gluten, and she is now averaging about three loose stools a day, however our school has a policy that if a child has "diarrhea", they can't be in school...