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Nicholasmommy

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Nicholasmommy

  1. My twenty month old son recently had a blood test that indicated he has celiac disease. We are still waiting for the biopsy to be done. In the last few weeks I have noticed that he is getting a red rash on his face. I haven't noticed it any where eles. It is just red and there "might" be a little light bumps. Is this part of Celiac?
  2. Hi! I know your concern and am in a similiar boat. My son is almost 20 months old and weighs 19.8 pounds. Recently he had a blood test for celiac that came back positive. We are currently waiting for the biopsy and have a "consultation" on tuesday. It is having to drive me crazy waiting to know for sure!!!! I am sure that you are in the same boat. ...
  3. So he finally has an appointmet for a consult with the GI doctor on the 7th. They better be willing to do the biopsy!!!!
  4. Ok, thank you guys! His biopsy should be this week or early next week. Just got the insurance taken care of. Can I take him off gulten after the biopsy? Is it possible for them to take a healthy part of the intestines and getting a false negative? Does that happen a lot? Its really hard not knowing!
  5. AHHHH, it is a very long story but the insurance company is a pain in the ASS!!!! I would have no problem paying for the biopsy but I just worry that if something goes wrong we would be in deep poop. If we don't get everything sorted out with the insurance by tomorrow than it could be another month!!!! I just don't know what to do....
  6. I think it was this test: Anti-Tissue Transglutaminase (tTG-IgA). Does that help? The doctor said that normally two have to show up positive but only one was. She ordered the biopsy and said that there was an 80% chance it was celiac. Any idea's?
  7. My son (20 months) tested positive for 1 out of 3 things that indicate Celiac (sorry I don't know what they are called.) The one that he tested positive for was IGA (I think). There is a strong family history. There will be a biopsy next week. I was just wondering what the likelness is that he actually has celiac? Also, how long does it take to get biopsy...
  8. SOOOOO, I talked to the doctor and she really wants him to go in and have the biopsy.... I don't know... She said it should be early next week and that it is important so that they can rule out other things. The insurance company seems to be close to approving it. I don't know if I agree or not.... Part of it is for me that I fought so hard and long with...
  9. Ok, I have posted on here about my son's failure to thrive and that recently blood tests taken indicated that he has celiac disease. I wasn't getting ANYWHERE with my son's pedi. He thought I was making everything up. So I heard of a doctor that helped another woman's child with his failure to thrive. I ran not walked to her office and within 5 minutes...
  10. my 19 month old tested positive for celiac by blood. I am just wondering how accurate that is? How likely is it the biopsy will come out positive too?
  11. I was looking at that. I will ask the nutritionist about it
  12. I do not have a copy (did not know that I could have one.) The doctor is suppose to call in a little bit b/c she is trying to get my son into a GI doctor right away. I will ask for one then. Thank you for your insight. Any other opinions?
  13. Hi! I have posted on here before about my son possibly having celiac disease. He has failure to thrive, doesn't eat much, perfers eating soft food, and chews and spits out his food. The blood work came back indicated that he does have celiac. He also had a fecal test done too but that came back fine. They are going to do a biopsy to confirm. She...
  14. Thank you guys for all of your help!! He doesn't really have any other symptom besides failure to thrive, chewing and spitting, and a small belly. He prefers to drink liquids more than eat food most of the time. I have been wondering if it is eosinophilic esophogitis because it just seemed to fit with the chewing and spitting. It is strange because sometimes...
  15. Hi! My son has been diagnosed with failure to thrive. He is 19 months and about the size of a 12 month old. He has never liked to eat food at all but it has been getting worse and worse. His doctor thinks he might have celiac disease but I was looking at the syptoms and he just doesn't seem to have any of them. He has a large belly that is the only thing...
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