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rvp

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rvp

  1. rvp

    ARCHIVED Diagnosis Of Dh

    Thanks for this info -I saw where she took the biopsy and it was right into one of the blisters. The web site is very informative-thanks for telling me about it! They would not prescribe the Dapsone because they said since I am anemic, the drug would possibly cause more damage to the red blood cells. But being very strict with the diet the rash is gone....
  2. Thank you for your response. I too have definite reactions to gluten, yet when they did the biopsy and said I did'nt have DH-explain then every time I have gluten on my system I break out with the rash. I agree they have not done enough reseach on this subject. I suppose our only option is to stay gluten free and make our lives more bearable.
  3. Thank you- with this info I feel a bit more "normal" with my situation. I believe Dr.'s do not give this whole area(glute intolerance-celiac-DH). They feel it isn't as important as so many other ailments, possibly because they really don't know the answer as to treating it. But I think if they had to suffer with these ailments, they sure would change their...
  4. I was told the other day (when I was with a medical person and we were discussing Celiac and DH) an individual can be gluten intolerant to gluten and not have celiac or DH. Any thoughts on this?
  5. rvp

    ARCHIVED Diagnosis Of Dh

    Thanks for the info-I am going to contact our acsdemy of medicine to find out where the files are-I didn't know they would still be accesible. Thanks!!
  6. rvp

    ARCHIVED Diagnosis Of Dh

    Thanks for the observation! I don't trust the dermatalogist who I saw. She was very "flip" and said the biopsy was gospel. It is a Doc I won't go back to.I felt better eating gluten-free foods. I can't go back and get my previous records because the guy died. You have made me better! Thanks rvp
  7. I was diagnosed 8 yrs ago with DH. The internist didn't take a biopsy because I had all the symtoms and the gluten free diet solved the isuues with the rash. I have followed the gluten free diet and have been rash free. I recently had an outbreak(probably because I ate something I shouldn't have). I called my new primary care Dr. and ask if she could...
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