nailehead

Thanks Nikki! I was diagnosed by my "primary care" doctor, which pretty much means an all around family physician, but at least she finally found it ( Celiac ) after 5 years and 5 other docs telling me it was IBS and to "live with it"! I was referred to a specialist here in San Diego that i will be contacing today..hopefully and set up an appt. I have...

I was diagnosed last year around October after being misdiagnosed for at least 5 years with IBS. Some of my symptoms have subsided but alot are still present. I think i was probobly stage 3 or 4 upon reading other posts. I still have daily and weekly pains and symptoms and have felt that i have been really careful not to get glutenized! I lost 50 lbs...

Anybody from San Diego on here? Looking for a "specialist" in Celiac, not just some HMO all-around family doc? Or know of a web listing or site that i could find one here? thanks! i'm dyin over here!

wow, thanks for the tip deb! i cant beleive it takes just that little. so is it the fact that once you become diagnosed and you start the gluten-free diet, it must be a huge assimilation for your body to go through and get rid of, so once that happens, we become "hypersensitive" to ANY gluten at all????

thanks guys! just being "misdiagnosed" for so many years always makes me wonder how correct these damn doctors are all the time. Especially with an Insurance HMO "Genral Physician", i cant help being a little worried or suspect. I feel she is a good Doc. and has actually been the only one to finally REALLY take the time and "listen" to me and all...

or should i still get a scope to make sure? i have only really seen my Doctor 2 times since being diagnosed abou 3 months ago, and i am wondering if i should have any more extensive tests or a scope? I mean my Doc was pretty positive after finally doing the right blood test, AND i pretty much have all the symptoms in the book, but HOW sure is the blood...

Hmmmm, this question from captain is exactly one of the "things" i have been wondering about, and on my "list" of things to ask. Because i too have been feeling very sensitive, and have really been trying to watch what i eat, but was wondering if even the littlest amount of gluten NOW, gives me the same symptoms ( if not worse ) than when i was eating...

Hang in there McDougall! I am new to this too! I was diagnosed only about 2 1/2 months ago, and already feel ALOT better. I have had a few "slip-ups" or just plain didnt know that a food item was gluten-free, and WHAM...SICK again. Everyone here can relate to your problems, symptoms, and "story"...it seems to be going around. I had a pretty...

I saw alot of posts from the "What fast foods can we eat" thread or something, and alot of people mentioned "No Pickles"!!! So is it the pickles? or vinegar? just fast food? or are jarred "dills" OK? ...another onne of my hundred questions...sorry!

thanks! yeah, the "vitamin thing" came from a list of Forbidden Food and Ingredients from this site! but there is a *sidenote* that said this.."4) Can utilize a gluten-containing grain or by-product in the manufacturing process, or as an ingredient. "..so its a little vague! Thanks, i'm glad One-a-Day is safe, cause i've been popping them, you know...

Hi! I'm still pretty new to this, so it seems daily i am finding more and more things that are supposedly not safe or gluten-free! I was reading the "Forbidden foods/ingredients" list and was surprised to find that VITAMINS were on it ( i know it had a "4" next to it ) , but FORBIDDEN? or just certain types? i lost 50 pounds and was...

Thanks....DAMNIT!

I USED to eat alot of Taco Bell and Mexican food before i was diagnosed, and now i am wondering what i CAN still eat. Is it safe to eat the items that have/use Corn Tortillas, or is there alot of "cross contamination" going on? Wondering? Cause i'm jonzin for a six-pack of Crunchy Beef Tacos!

Ohhhhh Thats AWESOME! I worked at a Carrabba's in Sarasota FL, BEFORE I was Celiac! And I LOVED the food, ( even working there) so that is great news to hear they have a gluten-free menu also! Now they just need to put a Carrabba's here in San Diego....arrrghh, I'M JONZING! thanks for the tip!!!!!!!

Thankyou to everyone for welcoming me and replying. It is amazing to me and makes me so mad that Doctors can be soo incompetant. Especially when it is a simple blood test. I just dont understand. Oh well, at least I know i am not alone!