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Desy

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Desy

  1. Desy
    For those of you who have experienced fatigue, how long did it take to reacquire your energy? Did anyone experience chronic fatigue disorder masked as/as a result of a gluten allergy or celiac disease? If so, how are you coping? I appreciate your responses, as I am having a hell of a time with fatigue currently.
  2. Desy
    I don't know. I am unsure if my symptoms are still from eating gluten (I'm only on my 3rd week of going gluten-free) or from the dairy. I don't eat much dairy, only organic plain low-fat yogurt, the occasional low-fat cheese (usually feta or cheddar) & the two times I cheated with the low-fat frozen yogurt. Thank you for your respose; I will keep...
  3. Desy
    Thank you for your response. Wow, it sounds like you were super-sick. I don't throw up, but my symptoms are so bad that I spend a lot of time in bed rest. It is mainly the horrendous fatigue, tiredness and weakness. So you are able to eat maltodetrin, caramel colour, artificial & natural flavours without a problem? What about hydrolized vegetable...
  4. Desy
    No, I don't live in the US; I live in Canada. Do food manufacturers have to clearly disclose gluten & wheat under their ingredient lists in Canada? I wonder if I am allergic to soy as well. I seem to have a few symptoms when I have vinegar as well.........perhaps I'm allergic to yeast as well???? Oh man. Can I still exhibit symptoms then while...
  5. Desy
    Yes. The questionable ingredients in the frozen yogurt where natural flavour & maltodextrin. Do manufacturers have to disclose that they contain gluten, if they do? Or can they just list these ingredients as is? It doesn't sound as though I can trust these ingredients.
  6. Desy
    I'm a n00b. Have been gluten-free just over two weeks and I have found it very, very difficult. Haven't eaten anything processed in past 15 days, except a little low-fat frozen yogurt, some white wine, and today, some chocolate-covered almonds & chocolate-covered raisins. However, I think the chocolate-covered almonds & raisins did have gluten...
  7. Desy
    Thanks!
  8. Desy
    How can gluten be in fruit juice???? What would the purpose be? The more I read, the more confused and upset I become.....
  9. Desy
    I'm relatively new to the whole gluten-free thing. Does anyone know if Kraft Miracle Whip (basically mayonnaise) have gluten in it? It lists soybean oil as one of its ingredients....does soybean oil contain gluten? I thought I read somewhere online that it did, but now I'm completely confused. It also listed 'colour'.....I think flavour can potentially...
  10. Desy
    Thanks to everyone who replied. I read your posts and they brought me some hope and relief. I do appreciate the links, as well. I don't remember who asked, but yes, I did try the gluten-free diet for five days.....then my naturopath told me to eat gluten for the next week in order to prepare for the blood tests. On the gluten-free diet, I did feel...
  11. Desy
    Ok. I am seriously confused. I had three blood tests done for celiac disease/gluten allergy. The results were all negative, meaning they were normal. I was told that I do not have celiac disease. Has anyone ever heard of the tests being normal despite the patient truly having celiac disease/gluten allergy???? I have been so sick for YEARS; I have...
  12. Desy
    Holy smokes. Thanks nora. It's actually in The Lancet as Celiac Disease & Candida Albicans, (not mould [per se]). OMG, this totally makes sense for me. I am SO ANGRY now. Exactly one month ago, I finally moved out of a basement apartment that was toxic with mould. Mould was almost everywhere -- growing on several doors, the walls, the windows...
  13. Desy
    Gotcha....thanks very much.
  14. Desy
    Hello, I am new to this board & haven't had my blood tests done yet, so my apologies if this topic has already been covered. I'm confused about vinegar & I feel so incredibly stupid about asking whether or not it actually has gluten in it? I think I read somewhere that some vinegars do in fact contain gluten.....craziness! So is vinegar...
  15. Desy
    I'm sure it varies from individual to individual, but I'm wondering how long it takes for your symptoms to disappear once you totally remove gluten from your diet. I'm especially interested in how long it takes for one to regain one's energy, how long it takes for the excess weight to come off & also how long it takes for the acne to fade, but I'm...
  16. Desy
    Does anyone know if being exposed to mould (i.e., in an apartment) can make your gluten allergy worse? Obviously mould's not good for anyone, but if there is any scientific evidence out there linking it to worsening of gluten allergy symptoms, I'd love to read it. I also am wondering: if I've been sick with a gluten allergy most of my life (I've had...
  17. Desy
    Yep. I'm attempting the gluten free diet now. It's brutally hard. I finished my cycle on Monday though, but still have brutal PMS cramps! And awful back cramps today too. I'm soooooooooo frustrated. How long do you have to be gluten-free to notice a decrease in your symptoms? 1-2 weeks? Ugh, I'll do anything to have that. My fatigue is unreal.....
  18. Desy
    I have also noticed that my cramps are much worse with dairy. I only eat organic yogurt now (& the odd piece of cheese). I did eat some cheese (that I remember) during my period....but no yogurt. (???) I wonder if it's all the hormones & steroids they give the cows that is affecting us when we eat dairy? That is very scary.
  19. Desy
    Thanks for the info. Yup, I should probably be a billionaire right now -- I should have had stocks in the drug companies).....I was a VIP member. Going on the gluten diet.
  20. Desy
    Hi; thanks for this. I didn't know that re: Hashimoto's & chronic idiopathic urticaria. Do you have any more info on this? Oh great. My mom had Hashimoto's & had to get her left thyroid surgically removed. And now she's been on synthyroid for years & years. So now I can see myself having it. Sorry to be such a downer. I'm just...
  21. Desy
    Yes. I just got a whole blood hormone panel done. Turns out my thyroid is normal. But this was at a conventional medical lab. They "lost" one my first blood samples, however. Long story, but since I had two bunches of samples done that same day & sent together, I don't fully trust them. Apparently, you can help your thyroid by consuming many root...
  22. Desy
    No I haven't. Guess I need to change my dr. because she told me that I don't have endometriosis (after examining me during my physicals). I don't see her anymore anyway. I've had it with conventional medicine. I go to a naturopath now.
  23. Desy
    Yes, currently, my left eye twitches at least 4x/day.....it drives me crazy. I have also experienced muscle twitches in my arms & legs.
  24. Desy
    Hi, thanks for your reply. Although I knew that celiac disease is an autoimmune disorder, I didn't know about the mast cells being in the uterus. I don't have endometriosis. I'd really love to get the test, but I cannot afford it right now. I have been so sick that I have not been able to work in almost a year. Money is very tight. Believe me...
  25. Desy
    Hi there, everyone, I'm a n00b here. Not sure if I have a gluten allergy (I cannot afford the test at present), but I sure am convinced....I have a lot of typical symptoms. Anyway, how many females out there have problems with their periods coinciding with their gluten allergy/intolerance symptoms? This past one has been pure HELL for me. Horribly painful...
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