arismama

Thanks everyone for your input. Regarding the bloodwork, I don't know exactly what was tested - all I know is it was a Celiac panel and the GI said that the levels that showed elevation were common in 25% of the population. In other words, he seemed to think it wasn't red flag material. I'm not sure if that was IGA, IGE, etc. He is going to see us in...

I think it's been a while since I updated post-scope, so here goes. Biopsy came back showing heartburn, no signs of Celiac. Daughter had a check up the other day with a new ped and after going over virtually all of her history, they put in for a sweat test to check for Cystic Fibrosis. I think I would have been more relieved if they said it was celiac...

My 16 month old had her scope yesterday. All went as well as could be expected. My daughter was given fentanyl (morphine type for pain) and versed as an amnesiac. She did great once the drugs kicked in. I did great once I had her back in my arms again. The scope revealed a very nice looking esophagus and stomach lining but her duodenum (leading section...

Just wanted to add that I wish you luck as well next week. I hope it goes well and they find the answers you are looking for. -Jen

Thanks for all the advice and support. In my logical mind I know it's a pretty quick, common procedure that carries few risks, but as a mom...well, what can I say...I'm a softy in that area! I know she'll be fine. For the record, we are going to be doing a biopsy (will ask how many samples). I was told by the nurse that the sedation will be partial...

Well, my 16 month old daughter is having her scope on Friday morning. While waiting to see the GI, we had more allergy testing done and found in addition to the off the charts milk allergy, the whole egg and egg whites are off the charts as well. The ped GI noted that her gliadin was low but the levels that were high (I wasn't scribbling fast enough) were...

So they actually have the gluten-free sectioned out in certain areas? I was wondering if they did that or if you would just have to read labels throughout the store. I was debating printing out the two stores' product list. They keep one handy in the store to help with shopping? That would be great. Thanks to all who gave feedback. This board has...

Greetings! We're new to the idea of a gluten-free lifestyle and I've been doing some checking around for natural food stores. So far I've come back with a couple of "big" ones - Whole Foods and Sun Harvest (part of the Wild Oats family). Does anyone shop at one of these where you live and is it worth the trip for a gluten-free? Do you find what you...

Hi everyone...this was PM'ed to me from Laura (mommida). She's still getting hang of the forum, but wanted to post this. Hey Laura, if you're reading this, you can respond to the post by clicking on the "Add Reply" button at the top of the thread. It is a little hard to find if you don't know where to look. Hope that helps...Jen "My kids 2 and 5...

Well this has been a lot of interesting information. Thanks to all for your input so far. I thought I'd get far more "not necessary" responses than I have. We have an upcoming appointment with the allergist to do skin testing for the milk and related allergens. Maybe something will be revealed there that will help make the bracelet decision. I will...

Just curious if any of you have purchased a medical bracelets for your children. We are undiagnosed for the time being (waiting to see the GI) but was just wondering if you felt that Celiac warrants the bracelet. (As a sidenote, my 15 mo old daughter is allergic to milk, still doing tests on that, but was given an EpiPen Jr.) What are your thoughts on...

Thanks Richard & Renee for your input. I'm not sure how extensive the Celiac panel was that they ran, but I know my daughter's ped wouldn't go so far as to say that it was definitely celiac disease. I think they should leave that up the GI folks, anyway. She did say to keep a stool sample stored in the fridge in case they wanted to check that out as...

Hi all...new here. My daughter's ped recently did an extensive blood draw on her and her Celiac panel came back with red flags. I don't know exactly which (thinking iga) but the ped said it definitely showed levels indicating possible celiac disease. I have read that true diagnosis is confirmed through biopsy. Then, I've also read about endoscopy. Are...