2julsrick

She has not had the blood testing or the genetic testing yet I am going to push for this to be done first thank you so much for the information. She does not seem to have any other symptoms but has never slept well at night. She has a very small appetite and it is difficult to get her to eat much of anything. I seem to have more of the symptoms than she does...

No they seem to want to go right to the biopsy and have not even mentioned the blood test. Has your son had the biopsy and if so what did you think of the procedure I really do not want to go that route with my toddler. I will start to push for the blood test. Thank you so much for your support. If you can help with any advice I am trying to learn all that...

My 17th month old has been labeled failure to thrive she is only 15 lbs and 6 oz and does not walk or talk yet. The GI specialist is wanting to do a biopsy but it sounds so invasive can other parents tell me about the procedure and other testing that may be done first she had the stool fat test done and it was negative but she was very young at the time and...