Mom2Boys

Best wishes to you and your little one! I hope the changes are successful and help her gain. It's good you have several doctors helping to get her well. I'm reading labels, but finding I don't know what a lot of the stuff is. I've got to do more "homework" and maybe make a cheat sheet along to the grocery store until I have this down better. Good luck...

Thanks to everyone for the helpful information. I'm trying to eliminate gluten and I'm finding that some sources aren't so obvious. Trying to decipher the ingredients in some products is tricky. I know celiacs can feel very sick from just one crumb containing gluten, but I'm not sure if I have to be that strict or not. Guess time will tell.

My tests were not through Enterolab, but were blood tests done through Quest. Here are the tests and their results and ranges: Gliadin AB igG - 38 (> 17 U/mL Positive) Gliadin AB IgA - 7 (<11 U/mL Negative) HLA Typing: HLA-DQB1 0202 HLA-DQB1 0602 HLA-DQ2 Negative HLA-DQ8 Negative HLA-DQA1 01 HLA-DQA1 02 Thanks...

I recently got the results back from my labs; the genetic tests rule out Celiac because the HLA-DQ2 and HLA-DQ8 markers are negative. Not sure what the HLA-DQB1 and HLA-DQA1 tests mean, but there were numbers listed with those test results. Does anyone know? My anti-gliadin antibodies (IgG) were high, but my anti-gliadin IgA antibodies were negative...

Hello again. I just looked at my lab sheet from Quest and all of the test names are entirely in caps (a formatting thing with Quest). Mine doesn't say "deamidated", but just Gliadin AB IGG and Gliadin AB IGA. Wonder if those are the same thing? My IGA was normal, but the IGG was high. Were you gluten-free when your tests were done? Saw you're in...

SuzyQ2 - It's amazing to think that gluten can cause all these problems. I always thought that celiacs had lots of GI issues that alerted them to the condition, but was never aware it could be related to autoimmune disorders. My doc said that's probably why my thyroid is out of whack. So the gluten can make you noticeably fatigued? Inconsistent energy...

Hey Captain...Hope I'm not adding to your confusion as I'm just a confused newbie myself and certainly may not be typing things as they appear on my labs. I've been reading a lot and it sure is hard to sort out everything, even seeing it all right in front of me. I read on one website that the gliadin antibody tests aren't used much these days, but I'm...

Is hair loss associated with celiacs? I have been losing a lot of hair over the past few years and just chalked it up to my hypothyroid. Though I would have stopped "shedding" since I'm on thyroid supplementation, but I haven't.

Wow, reading all of this makes me appreciate the new doctor I've found! He's trying to help me figure out why I'm so tired a lot of the time, even after being on medication for 2 years to help my hypothyroidism. When he reviewed my test results with me, he told me he's pretty sure it's celiacs and I needed to go gluten-free. He said that a lot of docs...

Thank you for all the help...I've been reading everything recommended and trying to absorb it all. If I turn out to be gluten intolerant and not have celiacs, what is the difference? Both would require eliminating gluten from my diet, right? Can gluten be found in things other than foods, like cosmetics, lotions, pills, supplements, etc.? How do you...

Hi Chuck. Yes, you are right. My doc is more alternative in his approach and just feels there's no need to put me through the biopsy if he's fairly sure it's celiacs. As I learn more, I may decide to have one done. I know he would prescribe it if I wanted to have it done.

Hi BettyinMD. No, I wasn't gluten free when the tests were done. My doc wants me to go off gluten and then will retest the gliadin antibody levels in 4 months. I've been reading more and I need to give my doc a call. It sounds like other tests are normally used to help diagnose celiacs, but not the gliadin tests I had done. Apparently, the gliadin tests...

Thanks for the replies! I just got back from the bookstore with the "Gluten-Free Bible" that my doc recommended, so hopefully it will be helpful and not too technical. My doc was explaining that he likes to rely on the IGG results more so than the IGA results; is this typical? My doc is conventionally trained but takes a more alternative approach to his...

I am working with a new doctor to try and figure out why I am tired and sleepy so much and he ordered a lot of tests. When I spoke to him last night, he went over my labs with me. Based on the Gliadin AB IGG being 38 (a positive result is >17), he said he's almost certain I have Celiac. He said the only way to confirm for sure is to have a biopsy done...