I have a two-year-old son with many, many food allergies (milk, soy, eggs, wheat, barley, peanuts, treenuts, coconut, sesame, barley, oats, peas, bananas, pears, cherries, safflower oil, rice, fish, shellfish, etc, etc.). Needless to say, the last two years have been harder for my family than I ever imagined they could be.
Last summer, we finally had my son scoped and flex sig'd to find out why he was tolerating nothing. He was NOT eating (or had ever eaten) gluten, except for two bowls of baby oatmeal before we found out he was allergic. His results read:
1) Colon (biopsy of sigmoid colon): colonic mucosa with non-diagnostic findings. No prominence of eosinphils (mother's note: this ruled out suspected Eosinophilic Esophagitis, whic is why he underwent the tests).
2) Rectum (biopsy): colonic mucosa with lymphoid aggregate. No prominence of eospinophils.
IGA serum: 12 mg/dl (normal range was 81-463 for his age/weight at the time).
Endomysial Antibodies: negative
Tissue Transglutaminase IGA: 0 units (I guess because his IGA was so low??)
He had a very high platelet count (497 K/cu mm, with 150-350 being the normal range)
He also had a high white blood cell count (17880 /cu mm, with 6000-17500 being the normal range).
Based on these results, his gastroenterologist diagnosed him with Celiac Disease.
Based on these results, his allergist (leading pediatric allergist in the world) diagnosed him with severe food allergies and removed all solid food from his diet (My son was then Neocate hypoallergenic formula-fed only from 9 months of age to 17 months of age). We are slooooowwwwly introducing foods - we are at 12 right now, with many fails in between. We are obviously avoiding gluten because he is allergic to everything that contaisn gluten anyway, except for rye - we never gave him rye, nor do I plan to. His allergists insists that he is allergic and NOT a Celiac.
I myself was tested last year, and I tested normal for IGA and the Tissue Transglutaminase, and equivocal for IGG. So that was obviously no help. I was retested three days ago and hope to get results later this week.
My question is this - how do I know if my son has Celiac or not? These two doctors totally disagree. I am just wondering if I should hold out hope that my son just has many grain allergies that he could very well outgrow OR if I should accept that he has Celiac?
Thanks for your time and advice. I appreciate it!!!