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amberlink09

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by amberlink09

  1. amberlink09
    Thank you for the responses! I am so shocked that my doctors never told me any of this until yesterday, 4 and a half years of being gluten free and I might not even have Celiac?! That is impossible to imagine! A PCP did the original blood test, and a seemingly reputable Celiac doctor here did the endoscopy that diagnosed me, then I switched to another GI...
  2. amberlink09
    Hi Everyone, I'm beginning to wonder if it is possible I have been misdignosed with Celiac. I was diagnosed in August 2009, so 4.5 years ago, and have been gluten free ever since plus Paleo the last two years. I've been working with a natural medicine type doctor but he sent me back to the Gastroenterologist yesterday because my Ferritin is 0 along with...
  3. amberlink09
    Wow so many questions! I think that if I do decide to go ahead and really take the Celiac re-diagnosis seriously I might try this for a month or two and then get my blood work redone. I have had headaches since eating gluten again, but my stomach is in such awful shape I can hardly tell the difference there. As it stands now though, I have an endoscopy and...
  4. amberlink09
    I never felt any better when I went off gluten, I have only gotten worse for the past three years. And honestly I don't see any difference eating gluten now. I was diagnosed by a blood test and endoscopy, but I just now found out that there was no damage to my vill, but the biopsies showed inflammation in my small intestine so they diagnosed me with celiac...
  5. amberlink09
    Hey everyone, I went to the GI on Thursday and told him i had never actually felt better after being diagnosed celiac three years ago and he went through my tests and told me that it really didn't look like I had Celiac. So I'm getting my gets redone and I'm back on gluten for a few weeks. I know we all dream of gluten filled bread and pasta, so this was...
  6. amberlink09
    Thanks guys! If I do the colonoscopy I will definitely push for the endoscopy too, I'd feel better having all my bases covered. Hopefully the medicine will work, and I won't have to deal with any of it! Also, thanks so much Cyberprof, I did some research on the microscopic colitis so now what my GI said makes sense. That must be what he was thinking since...
  7. amberlink09
    Hey guys, So, I was diagnosed Celiac 3 years ago by endoscopy but I've never received any relief from my symptoms (and yes, I am positive I haven't been eating gluten). I started the Paleo diet 9 months ago and everything was great for 4-5 months and then one day it just stopped working. When my Celiac problems first started about 10 years ago, it was...
  8. amberlink09
    Hey guys, I've posted on here a few times in the last week, as I've been seeing a lot of doctors to try to figure out what is going on with me. I've been gluten free for 3 years and Paleo for 7 months now. About 3 weeks ago, my leg went totally numb, and since then it's stayed that way plus tingling/numb hands and feet. It took me 3 doctors, but I finally...
  9. amberlink09
    I've tried digestive enzymes and probiotics, a few different brands, but nothing worked. I was working with my local pharmacy to try different enzymes and things to restore my gut, but still no improvement. I haven't been tested for SIBO, I was treated for it and thought it was the solution to my problems but I didn't see any results. I did have my nutritional...
  10. amberlink09
    Thanks for the reply, I did cut out cheese for about 6 months but noticed no difference, so decided to add it back in. I am getting an allergy panel done soon though so hopefully that will tell me if I actually am. I completely forgot about refractory sprue, I think it's time to go back to the gastroenterologist and get my blood levels rechecked and another...
  11. amberlink09
    Hey guys, I have been gluten free for nearly 3 years now and I'm pretty sure I'm only getting sicker. I have changed to a Paleo diet, which helps, but my stomach still isn't working like normal. I have tried eliminating every food group and don't think I'm allergic to anything else so I don't think that is the cause. Last Wednesday I went to the doctor...
  12. amberlink09
    Thanks for the advice guys! Surprisingly my appointment actually went really well. My doctor ordered some tests to figure out what is causing my neuropathies, which is so nice because I was really getting tired of that being dismissed as normal. My leg has been numb for 4 days now, which definitely doesn't seem right to me. I also thought I had had allergies...
  13. amberlink09
    Hey guys, I'm going to see a new doctor tomorrow and I'm SO tired of doctors not listening to me I just can't take it anymore. I've already been diagnosed Celiac, so that's not the problem, but I've had a host of issues since then and no one ever seems to give me answers. I think that since I'm 21 doctors just blow me off thinking it couldn't be anything...
  14. amberlink09
    Just an update since you guys have been so helpful to me! I went to the OB/GYN today to get a sonogram to check for cysts etc. and everything looks good, but my doctor suspects it might be endometriosis. I NEVER would have suspected this, I was so busy looking at my stomach problems to get a diagnosis, but I've reviewed a lot of information and it seems...
  15. amberlink09
    Hey guys, Thanks for all of your help! I was diagnosed the day before I moved to college, then I lived in the dorm for a year and moved into an apartment with a brand new kitchen (no one had ever used it before) and i bought completely new pots, pans, utensils, etc. So no cross contamination issues there. I am very diligent about reading all labels, I make...
  16. amberlink09
    You guys are replying faster than I can keep up! I do take supplements: I take a b-complex along with sublingual B12, magnesium, digestive enzymes, probiotics, Omega 3-6-9, I also sometimes take a multivitamin and I'm about to start taking Iron and Calcium, though I'm worried it will aggravate my constipation. My typical breakfast consists of a smoothie...
  17. amberlink09
    Hi Gemini, I agree, this forum has a LOT more information than I've found from my current GI. Right now I have finally found a GI who doesn't think I'm crazy (which is hard to do) so I am going to try to stay with him and push for more tests. Refractory Sprue hasn't been discussed yet, so far I was treated with Xifaxan for a possible Intestinal bacterial...
  18. amberlink09
    Hey, when I say as strict a diet as possible I mean I do go out to eat from time to time (only at places with gluten-free menus) but I am in college so eating out is just part of being social. I make almost everything I eat from scratch because I can't afford prepackaged Gluten Free items, and I check any new items I eat for gluten. I'm 5'2" so I'm pretty...
  19. amberlink09
    Hey guys, I feel like I've heard SO many stories about people going gluten free and experiencing relief from all their symptoms within months, but this isn't the case for me. I have been gluten free for two years and maintained as strict a diet as possible, my blood tests show no autoimmune response since I've been gluten free. In addition I've done the...
  20. amberlink09
    Hey CassP, I did have my TSH tested, it was normal (.77 normal- .45-4.5). And I do have a vitamin deficiency, including calcium and Vitamin D. To me it looked like I am hyperthyroid, but that doesn't make a lot of sense to me since I seem to be on the constipated, never hungry, tired, and gaining weight though I never eat side. Though of course this could...
  21. amberlink09
    Hey guys, I've been completely gluten and dairy free for two years now, and I'm positive I am not getting any gluten from anywhere. I have only gotten worse in the past few years, I've been tested for Chron's but everything came back fine. I've been on an elimination diet but found no problematic foods. I still suffer from the same gastrointestinal symptoms...
  22. amberlink09
    Hey guys, I was wondering if anyone had been in a situation similar to mine, when I first went gluten free (about 9 months ago) I lost about 10 pounds over a few months without trying, I just assumed it was because I was getting healthy. I'm 19, 5'2," and about 120 pounds. A few months ago, I just started gaining all of the weight plus more back. If anything...
  23. amberlink09
    Hey guys, This might be a sensitive question but I cannot find any information on this anywhere. It only recently occurred to me that I should be concerned about condoms and lubricants after a very unfortunate incident with some non gluten free edible massage oil, so I was wondering if anyone had any suggestions about replacements for these things or even...
  24. amberlink09
    Hey guys, I'm a freshman at UT Austin and I got diagnosed the day before I moved into my dorm last semester, it has been quite the adjustment. I have tried working with the school cafeterias but they are so big that they really can't ensure no cross contamination, so I have stopped eating there. They also won't refund my meal plan money, but they have started...
  25. amberlink09
    Hey everyone thanks for responding First of all I was just diagnosed a few months ago, at the beginning of the semester in September. I am on a meal plan but I can't use it because the cross contamination in the cafeterias is so terrible that I gave up on eating there. So I only eat food that I can make with a microwave and a refrigerator (we aren't...
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