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Ellymay

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ellymay

  1. Ellymay
    I too had a miscarriage before my current pregnancy but you can't blame yourself if that happens - they can be caused by any number of reasons and are most often nature's way of dealing with a fetus that wouldn't have lived anyway. Personally, if I was 38 I wouldn't be waiting for the perfect time unless there are obvious health reasons to wait. However...
  2. Ellymay
    Thanks Lisa Yes I am being careful to avoid gluten however I often find that even after a restaurant assures me the dish is gluten free I end up getting glutened. All together safer (and cheaper) to eat at home! Anyhow, I went to see my midwife today and she advises it will be the iron tablets and to switch to a chelated form of iron which is much more...
  3. Ellymay
    Just wondering if anyone else has experienced dark green coloured diarhhoea while on high strength iron supplements? I have been getting this a lot lately while also exhausted and having the usual gluten type abdominal symptoms. Am 33 weeks pregnant and have been on prescribed iron pills for a couple of weeks now. I had expected to get constipated while...
  4. Ellymay
    THanks Love2travel. Any experience of Spain? I will be 3 weeks in Spain and 1 in Rome. I have found the following blog which is helpful: Open Original Shared Link The same author has done one for Barcelona, from which I found this guide to eating gluten free in Barcelona Open Original Shared Link So I am getting the impression that in...
  5. Ellymay
    Wow Domestic Activist! Thanks for all your work on this! I'm not surpised by the male response and it kind of confirms my fears that people won't automatically know that pregnant women need to avoid eating, let alone get the gluten thing. I think I will limit my food choices too much if people think I am a true coeliac but I don't want to get sick from...
  6. Ellymay
    Further to above, I think I will just avoid anything obviously gluteny and see how I go. If I get really sick, then I can start using the travel cards.
  7. Ellymay
    Hi everyone Thanks for all your tips and for establishing my femininity! I am re-thinking this at present. I do not have full blown coeliac disease but it seemed easier to state that on the card than try to explain that a tiny amount of gluten is probably ok. I am fully expecting to get glutened on my trip and as long as it is not happening all the...
  8. Ellymay
    Hi folks I am about to go to Spain and Italy for a month and have just found out I am pregnant! So food choices are getting even slimmer. I have made a travel card using the babel fish website and want to know that this card really is an accurate translation of the english version. I would be really grateful if a spanish/italian speaker could check...
  9. Ellymay
    I am considering a holiday to New Caledonia. Looks like quite a good place for gourmet food with a strong French influence. I am salivating at the pictures of their breads and pastries! But don't fancy watching hubby eat them in front of me! Has anyone been there before? Do you know if they have many gluten free options? My husband and I are both foodies...
  10. Ellymay
    Just reread your posts again! So it's not always a case of cross-contamination. That is interesting. Would be interesting to know how many people who have problems with gluten also have problems with oats.
  11. Ellymay
    Thanks However I really doubt it is a cross contamination issue for me. I regularly have soy sauce with wheat in it and have no problems. I am wary of cutting out ALL gluten as have been advised that the body can become hyper sensitive to it if that is done and life is so much easier when you can tolerate a small amount! The trick for me is working out...
  12. Ellymay
    I am gluten intolerant not coeliac. The other day I thought I would try oats for the first time in ages. So I had several muesli bars made with about 80% oats. I then developed sore inflammed and bleeding gums which I used to have before going off gluten. Also had digestive systems but hubby did too so maybe that was a tummy bug. Have stopped eating oats...
  13. Ellymay
    Thanks for your advice Neroli A friend of mine has coeliac disease and her dietician advises patients to keep a tiny amount of gluten in their diet (i.e. may be produced on the same packaging line as a gluten product) to avoid becoming hypersensitive to gluten (except for those who are already hypersensitive of course). I have had similar advice with...
  14. Ellymay
    Thanks Rose and Nora I will ask my gastroenterologist about getting the gene test done- at least that way I may be able to rule out coeliacs. Although I suspect I do have it- or an intolerance. I have seen the following symptoms clear up over the last month- bad smelling diarrhoea, headaches, constant fatigue, mouth ulcers and inflamed gums, foggy brain...
  15. Ellymay
    hmm... more questions for the Dr. It all seems a bit subjective- it's a pity that the classifications aren't more standardised (I am in NZ by the way). And another question: I got a copy of the report in the mail today which states "moderate patchy erythematous and post bulbar duodenitis was evident" from the visual examination. Does this just mean...
  16. Ellymay
    Just noticed in my quote in the second posting above that (0-20) is described as the normal range.
  17. Ellymay
    I'm coming to that conclusion Thanks Jestgar
  18. Ellymay
    I checked the results again. It says: tTG: 47 units (0-20)(I presume this range is the normal range?) EMA antibodies: Negative Interpretation: The tTG IgA is moderately positive It also says it was run using the new generation Deamidated Gliadin IgA and IgG peptides as antigens (for improved diagnostic accuracy(notably specificity)
  19. Ellymay
    Thanks WheatChef. That is reassuring. So much for 47 being 'moderately positive'!
  20. Ellymay
    I think I may have found an answer to my questions above. I found this comment by Dr Ford (aka Dr Gluten) on his facebook forum (Open Original Shared Link)and suspect it will be of interest to many readers. "Your child's tTG (IgA) of 82 (normal range 0-20) is certainly high. In my data, examining the relationship between the levels of tTG and the biopsy...
  21. Ellymay
    I was told yesterday that my biopsy results from a gastroscopy are normal (i.e non coeliac) However, when I had the gastroscopy, the Gastroenterologist performing it said it looked 'patchy' and consistant with coeliacs. He told me I was likely to have it and to start on a gluten free diet, which I did. After being on on a gluten free diet for 2 weeks...
  22. Ellymay
    Hi Hypergirl Haven't read all your posts in detail but this bit stood out: "Also developed feelings of not being able to get enough air and like I have to take a deep breath. But taking a deep breath doesn't "satisfy" it, I have to wait until the feeling goes." That is EXACTLY how I feel when I am low in vitamin B12. Had the symptom for years...
  23. Ellymay
    Hi Kathy I am currently waiting for a biopsy to confirm celiac disease (having tested positive for antibodies). I have had shortness of breath for about 5 years as well as fatigue. The shortness of breath has almost totally cleared up after being diagnosed with B12 deficiency and having B12 injections. Shortness of breath is one of the B12 deficiency symptoms...
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