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shelbysmom

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Everything posted by shelbysmom

  1. shelbysmom
    Thanks to everyone for their input. I have decided to see an allergist and get allergy testing done. If it all comes back negative, I am going to demand to be directed to a nutritionist who can develop an elimination diet for my daughter. I think with some professional guidance, I can finally figure out which foods are causing the problems, even though...
  2. shelbysmom
    Yes she was on gluten for most of that time. I tried trials but kept stopping because of the doctors advice and my husband kept talking me out of it. I know that sounds bad, but the doc wanted her on gluten for accurate future blood work and has insisted many times over and over that gluten was not the problem and that I needed to move past it. That is...
  3. shelbysmom
    Maciemay how did you get the gluten intolerance diagnosis? I am been consulting a new doc that is a pediatrician but also a specialist in food allergy and intolerance. She wants her to get the intolerant test for 96 food intolerances, but I have read that it is not very accurate. Also, I am trying to do the best thing and follow the advice of all the doctors...
  4. shelbysmom
    Her first panel was done in Jan 2010. Results: Antigliadin iga < 1.2 antigliadin off 5.7 Endomysial indir iga positive Ttg 12.0 Her next panel done in may or June was all negative. Her genetic test was positive Her biopsy was negative even on special slides
  5. shelbysmom
    She was ttg positive and ema positive and gene positive. The doc called it false positive because biopsy was negative. On repeat celiac panel,she was negative. I will have to hunt down the results.
  6. shelbysmom
    My 3 year old has been struggling for a long time. She had a positive ttg and positive ema a year ago after a five day hospital stay for a 15 day stomach virus. Her biopsy was negative. She was positive for the gene. She was retested for celiac in June and it came back negative. She alternates constipation/mushy poop, sometimes normal. She is doing...
  7. shelbysmom
    I need some opinions from all you parents out there! My 2 year old daughter was given a celiac panel when she was in the hospital in January with a 15 day long stomach virus. The TTG came back "slightly high positive" and the EMA came back positive. She is also DQ2 positive. Her pediatric GI did the EGD the following week, and the biopsy came back negative...
  8. shelbysmom
    Thanks to everyone for all of your thoughtful responses. I went and had Shelby's blood drawn this morning for the genetic test, and now I will have to wait...I have been messing around with a gluten free diet, and have noticed that when I sneak gluten in, she immediately complains of a tummy ache!!! I feel like I know deep down that Shelby has Celiacs,...
  9. shelbysmom
    After talking with the GI doc again, I was able to determine exactly which blood work he requested. Of the blood work that he did, her TTG was slightly high positve, and her EMA was positive. Based on what I have read, EMA is Celiac specific, and has virtually 100% accuracy. He is still saying that because the biopsy was negative, he thinks that the blood...
  10. shelbysmom
    He did mention the genetic test as the next step, but said most ins does not cover. I wonder if it is necessary to spend the money, when the blood work is positive, and the symptoms are right on with Celiac. I am sure we will go ahead with whatever he recommends, I just hate keeping the gluten in her diet in the meantime. He does not want us to remove...
  11. shelbysmom
    Hey, I am hoping for some answers. My 2 1/2 year old daughter has had chronic bowel issues most of her life. Since about 6 months, she has had chronic constipation issues, alternating mushy diapers. She is sick all of the time. In her short life she has had RSV, Bronchitis, Croup, Strep twice, multiple ear infections, continuous coughs/colds, and horrible...
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