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ksangie

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Everything posted by ksangie

  1. ksangie
    My belly actually does get a bit smaller overnight and I just experienced it going down even further after fasting for yesterday's edoscopy (by about 3 inches.) Here's to hoping this is it and the biopsies come back positive!
  2. ksangie

    is awaiting biopsy results

  3. ksangie
    Your story sounds so much like mine except I don't have Type 1 diabetes. I've had previous tests that showed no hint of celiac, so they said I had IBS. I ended up in the ER about a month ago with abdominal pain and bloating. All the tests came out negative. Leading into it though I had joint pain, so none of it seemed to fit together. I was basically...
  4. ksangie
    You were right on my post... we're both bloated the same way. Five months pregnant looking is not an exaggeration for me either. As for celiac testing, be sure you have a doctor that knows to give you a full panel. The first time around I was only given an EMA and that is thrown off by IGA deficiency (which I found out a couple of weeks ago I happen...
  5. ksangie
    A little background: I was diagnosed with IBS and fibro back in 2006 due to mysterious pains and consitpation. They tested my EMA and it was negative, so no further tests were done. A (highly regarded) doctor from a university research hospital said it couldn't possibly be celiac and that test is accurate unless there is an IGA deficiency which he claimed...
  6. ksangie
    Here you go: 1 stick butter (melted) 2 cups sugar 1/2 cup milk 1 heaping TBSP cocoa Heat to a rapid boil, reduce heat to medium. Boil until it reaches 230 F (+/- depending on your thermometer) Take off heat and quickly stir in 1/2 cup peanut butter 3 cups quick oats (trying for a sub for this) Drop by TBSPs on wax paper or try...
  7. ksangie
    I'm not an expert, but from everything I've read, gluten antibodies have a long half-life in the bloodstream, so two days shouldn't make much difference. If you're going to have a biopsy (if you have positive blood results) then you'll want to be sure to continue eating gluten. Going gluten-free has a faster effect on biopsies than on bloodwork.
  8. ksangie
    I'm in the same boat as you are, but with a little more research under my belt. I was told that I have Celiac disease by my PCP and also told to go on a gluten-free diet. I, too, researched and found out that isn't the way to go if you're also having a biopsy, so here I am patiently (well, not so patiently) awating a biopsy to confirm so I can go gluten...
  9. ksangie
    Just curious if anyone has a substitution for oats in no bake cookies (the kind with peanut butter, cocoa, sugar, butter and oatmeal.) I'm going to be going gluten-free in the next couple of weeks and (given how often I crave these) would like to know if anything else works. Thanks.
  10. ksangie

    ARCHIVED How Can Doctors Not Know

    ksangie replied to Tammy Dudley's topic in Doctors

    I tested negative for celiac back in '06, through both blood and biopsy. Well, it turns out the just tested EMA and I'm IGA deficient, so throw that out! They also biopsied the large intestine (as we all know it should have been the small intestine!!) Fast forward four years and I have a doctor that knew what to order (the FULL celiac panel) and a GI who...
  11. ksangie
    I'm just a bit curious how all of you have cleaned you kitchen/pots/appliances upon going gluten-free. My hubby is willing to go on a gluten-free diet with me, but if we want to avoid cc we'll have to really change things around here. Are there any products/methods that are best for cleaning up after a lifetime of a gluten-filled kitchen?
  12. ksangie
    The negatives on the other tests could also be linked to an IGA deficiency depending on how low your IGA numbers were. If you have type 1 diabetes you are much more likely than the average population to develop celiac given both are autoimmune. I would call your endo, or potentially get a new one. If you don't feel they are managing your care as they...
  13. ksangie
    From my research, it looks like my negative test results might be due to an IGA deficiency, thus the IGA is not measurable and the EMA is giving a false negative. We shall see what the GI says on my appointment on the 9th. I imagine he'll want to do a biopsy to confirm. I'll go gluten-free after that point.
  14. ksangie
    Okay, FINALLY got the results in the mail instead of just the results over the phone. Gliadin Antibody (IGG) >100 (<11 being negative) In other words, too high to measure. Gliadin Antibody (IGA) <3 (<11 being negative) In other words, too low to measure? Endomysial AB Screen (IGA) Negative
  15. ksangie
    Hi, I'm new here (as is everyone on this thread I imagine.) I was told last week that I most likely have Celiac disease and should start a gluten-free diet. I just got my test results back today and they confuse me a bit. Here goes: Gliadin Antibody >100 (<11 being normal) Endomysial AB Screen= Negative As a side-note, I have constipation...
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