jenny-ann

Pac, We did a stool culture. I don't know the answer to the IgE/IgG allergy question. I will review the labs myself next time we see the doctor. She did have a course of antibiotics in December. It made her poop pure water. Blech! She has been on a couple of different probiotics since then. We have eliminated wheat. We are now eliminating milk. We've never...

Concerned, Right now she is wheat free. Her improvements are not as drastic as last time. I sat down and reviewed her food/poop journal from a few weeks ago. Perhaps milk is the culprit. I am going to keep her off milk and see what results we get. Regardless, I am going to go see her primary care doctor and consider a GI or nutritionist for our next step...

I am so glad the biopsy is soon!

My sweet little girl always has diarrhea. Allergy tests negative. Celiac tests (DNA included) negative. I think our next step is to see a nutritionist with her food/poop journal. Can you suggest anything else I could be overlooking? TIA, Jenn

Results are in. It is NOT celiac. I am going to digest this and then decide what to do next.

I think the antibody testing will be inconclusive for multiple reasons - he doesn't get enough gluten and he is so young. With his reactions (eczema included!) I would choose to do the DNA testing. If he has the genetic coding and such obvious reactions to gluten I would label him celiac and keep him gluten free. HTH, Jenn

Stephanie, Is it possible the Vitamin D problem is a result of celiac? I don't know enough about celiac to know WHICH vitamins are affected. I do know that vitamin deficiency is one of the major problems. Concerned, I am 100% with you on the I want it to be celiac/I don't want it to be celiac. What I really want is a solid answer, NOW. Hopefully one...

Good luck either way. Not having an answer is the worst part!

Stephanie, What is the reason the doctor won't order the DNA test? Though expensive it seems like such a non-invasive way to check... I hope your son is feeling 100% and you have some answers very quickly. Concerned, Our posts all take a while to show up. The moderators glance over them before releasing them. That may no longer be the case when we have...

My daughter is 2 and had her panel (DNA included) drawn last Thursday. It was sent from our lab to their parent lab to Prometheus. I am so anxious to get the results. These past 8 or 9 days I haven't been sleeping as well as I usually do. I spend too many moments of the day and night wondering what the results will be. I even dreamt about it a few nights...

Did you ask if her celiac panel included the DNA testing? We're in a similar situation and have decided to do the genetic testing even if we end up paying for it. As far as I've read (someone PLEASE correct me if you have better information)not having the genes leaves them with a less than 5% possibilty of having celiac. In our case if she doesn't have the...

It will likely be easier for the new people you meet at university to accept your gluten free diet than the friends you have been around since before your gluten free days. Though it isn't an accurate statement you can just tell them that you have a severe allergy to gluten. You can share the long, more accurate story with those who become good friends and...

Has she had the DNA testing done? Will they do it through your doctor's office? I know our doctor sends it off to Prometheus and bills insurance for us.

Thank you for the many responses! I think because our diet consists of so few packaged foods I will start off not worrying about shared equipment and see how my daughter does. I can always adjust from there. I am so appreciative of everyone who takes the time to share their stories and words of wisdom... Jenn

We are just getting started here and I am looking for products that fit our lifestyle and are celiac safe. Our diet consists primarily of organic single ingredient products - fruits, veggies, meats, grains... I am in search of organic oats, corn meal, etc. that aren't processed in a facility handling wheat products. I did find some things in GlutenFreeMall...