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WLJOHNSON

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by WLJOHNSON

  1. WLJOHNSON
    Hi, I'm so sorry that you are feeling so bad, so I want to show you the picture of Celiac from the opposite end of the spectrum: I am 62 years old now and have had symptoms of Celiac since age 8. Asthma, wheezing, bronchitis, pneumonia and hospital stays were regular parts of my life until I finally realized that gluten intolerance, allergies to all milk...
  2. WLJOHNSON

    ARCHIVED Help !

    WLJOHNSON replied to Emmie's topic in Coping with Celiac Disease

    I've been dealing with my 3 year old grandson's gluten sensitivity and allergies to milk and dairy products since he was 3 weeks old, since I am his primary daycare provider. I also have the same intolerances. Here are the things we eat: Any meat, poultry or fish Any fruit, any vegetable ...
  3. WLJOHNSON
    You might want to eliminate all dairy products, egg whites, yeast, casein, whey, modified food starch and maltodextrin. Those are what I've learned I'm unable to tolerate over the past few years. Welda Lou
  4. WLJOHNSON
    Oh, your story is so reminiscent of the many times I struggled in restaurants, in the beginning of dealing with Celiac. After many years (I am now 61) I have learned to always carry my own food and drink (I even have a special plastic-lined purse in case of accidental spills, and now I carry an abundance of food for my 3 year old grandson as well, since...
  5. WLJOHNSON
    Hi Mandy, I'm so sorry that you are feeling so lousy. Your descriptions of your illnesses sound so familiar to me. For years I had Asthma, which would turn into Bronchitis, then into Pneumonia, and I would feel as you do now--exhausted, frustrated, tired, and sick. After I was told I had Celiac, and started to really stick to the diet, I saw sudden...
  6. WLJOHNSON
    Hi, Oh yes, your messages cause me to recall the days when cheating seemed like the thing to do! Of course, I NEVER thought of it as cheating, because 40 years ago I didn't even know what Celiac Disease WAS. But, I did finally begin to realize that when I ate certain foods, I would end up having Asthma so badly, that I would sometimes have to be hospitalized...
  7. WLJOHNSON

    ARCHIVED Help!

    WLJOHNSON replied to Lani's topic in Coping with Celiac Disease

    Hi Lani, Welcome to the world of adventure and challenge, as we live with Celiac! This is the place to learn as much as you can, and to ask any question you want. I have had Celiac symptoms since the age of 8, and am now 61 so I've had many opportunities to experiment with the diet and learning how to live with it. Keep coming here for advice and...
  8. WLJOHNSON
    Hi, I'm glad you asked this question, because I just filled nine containers of transportable food for my 3 year old grandson, who was diagnosed at 3 weeks of age with Celiac (He and I are also allergic to all milk and dairy products). He goes from his daddy's house (my son) to his mommy's house, to Grandma's house on a regular schedule each week and has...
  9. WLJOHNSON
    I love that I can breathe! At age 8 and thereafter I suffered with Asthma to the point of being hospitalized many times. Now, at 61, I have gone from 13 Asthma pills a day down to 1, and use a breathing machine twice a day. I love walking an hour a day without wheezing, and the depression I used to have is gone! I love weighing a little over...
  10. WLJOHNSON
    Hi, I'm 61 years old and have had symptoms of Celiac since I was age 8 (though I didn't learn until later that what I had was this geneticaly inherited disease). I started eliminating certain foods from my diet in my early 30s, after suffering with Asthma from the age of 8. Eventually I learned that all grains, all milk and dairy products, egg whites,...
  11. WLJOHNSON
    Dear Chelsea, I am so inspired by the story of your grandfather! He sounds so spirited and really full of life. I am hoping and praying that his recovery continues, and perhaps you can tell him someday about my grandfather, who had surgery at age 98. He survived and lived to tell about it, so I know that this could happen for your grandpa too! ...
  12. WLJOHNSON
    I think that some members of our families are unable to acknowledge Celiac in you, because then they would have to take a look at themselves, and the possibility that they, too, might have the disease. It is, indeed, a genetic condition. I have faced some of the same responses from others that you describe, but I am 61 years old now, and since I have had...
  13. WLJOHNSON
    I have had symptoms of Celiac since I was 8, and am now 61, so I have learned to avoid all grains, all milk and dairy products, including casein and whey, as well as egg whites and yeast. I wheeze severely with Asthma if I eat any of these foods, and I have stomach aches, headaches, aches and pains in my joints, and feel simply miserable if I get them my...
  14. WLJOHNSON
    Rachel, I'm so happy that you turned your day of thanksgiving into a day of gratitude and joy! I saw the heading on another message on this board, which says are you negative or positive about having celiac disease? I haven't read it yet, but I can tell without a doubt that you are one who is able to take what others might say is a disability and...
  15. WLJOHNSON
    Maya, Ianm and Jnkmnky, Yay!!! Finally, a message board where people are real. It was so refreshing to read all the posts you put in, and I had to laugh, which really felt GOOD, so please keep up the dialogue, and Maya, please keep posting. Ianm I applaud you for your forthrightness and courage in taking care of yourself. I, too, recently asked my...
  16. WLJOHNSON

    ARCHIVED Anger

    WLJOHNSON replied to swittenauer's topic in Coping with Celiac Disease

    Hi, I must say that I can appreciate your concerns about anger and sensitivity, since that seems to be a recurring theme when we get "glutened". I have had Celiac symptoms since age 8 but no one knew what was wrong. After spending my money on doctors with no helpful results, I went on elimination diets to find out which foods were bothering me. Now...
  17. WLJOHNSON
    Hi, Have you ever thought that you might be intolerant of milk and dairy products? Many Celiacs are. As you go along, consider that you may have intolerances that will show themselves in time, and be super vigilant about your responses to all foods. That certainly isn't being paranoid--it's just being cautious. I am 60 and have had Celiac since age...
  18. WLJOHNSON
    Hi, I hope so much that you will find it within you to stick to your gluten-free diet. It is truly the difference between life and death. It must be hard when you have no symptoms, but who else will take care of you if you don't? Start by making a list of the foods you find that you can eat. Print them out on the computer and keep a copy with you...
  19. WLJOHNSON

    ARCHIVED Gf Foods

    WLJOHNSON replied to mstrain's topic in Coping with Celiac Disease

    Hi, I'm glad you're now on a gluten-free diet. I am 60 years old and have been having symptoms (Asthma) since I was 8, but no one knew what was causing it or what to do. Many elimination diets of certain foods finally convinced me that I must be allergic to all grains, all milk and dairy products, egg whites and yeast. This process took 30 years, but...
  20. WLJOHNSON
    Hi, I've been gluten free for a long time. I'm 60 years old and have had symptoms of Celiac since the age of 8, however, there was no way to know back then that the reason for my wheezing and asthma was due to what I was eating. That revelation only came by way of visiting numerous doctors and specialists, being hospitalized so many times, spending all...
  21. WLJOHNSON
    Hi Ron, I saw that you were new in December, so thought I would add a post just to ask how you're doing? I hope well. I've had Celiac since age 8 and I'm 60 now. It's always a journey of discovery, each and every day. Meats, poultry, fish, salads, vegetables, fruits, nuts, and seeds--the good old standbys. Going back to those always helps. Tamales...
  22. WLJOHNSON

    ARCHIVED Links

    WLJOHNSON replied to celiac3270's topic in Coping with Celiac Disease

    celiac3270, What a great idea you had to post those links, and I know it had to take time to add all those you contributed. THANK YOU! I notice at the end of your post that you are still having persistent symptoms. Do you mind my asking what that is about? I did continue to have trouble too until I discovered all the foods and additives that bothered...
  23. WLJOHNSON
    Hi, I just completed working 6 months at a bakery and did just fine. During that time I also worked at an ice cream parlor at night, but of course I would never think of eating any those things, since I have intolerances to gluten, milk, dairy, egg whites, and yeast. Hope you're doing well. Welda
  24. WLJOHNSON
    Hi again, Mel, you asked what I eat for breakfast? I eat everything from baked chicken to chili burgers wrapped in lettuce, and sometimes I have a complete Mexican meal, or soy ice cream, or baked potatoes, or yams, or steak, fish, or turkey, or egg yolks with sausage, whatever sounds good. Because Diabetes runs in my family, I stick diligently to The...
  25. WLJOHNSON
    Hi, I have dealt with severe asthma and food intolerances since the age of 8, in the 1950s, long before anyone ever thought of Celiac Disease. I had many bouts of pneumonia and hospitalizations, as well as spending nearly a fortune on doctors, specialists, and medications before I realized that the medical profession didn't know what to do with my...
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