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mamarie

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  1. Okay, my gastro doctor doesn't seem to believe in gluten intolerance. Just Celiac. If tests show Celiac, then gluten-free is the way to go. Otherwise, no gluten intolerance. I tested negative to everything except for the gene test. Considering my digestion issues plus the positive gene test, I went gluten free, thinking that perhaps I really am gluten...
  2. I'm so bummed. This is my second week of gluten free, and so far everything has been going great. I ate Trader Joes taco shells tonight which says on the label "no gluten ingredients used", but my stomach is having a bad reaction. I know it's the shells and nothing else, because I only ate them with ground beef (no seasoning), cheddar cheese, lettuce,...
  3. I've been gluten free 8 days now. My stomach has never felt better. But I've been SO tired. I have to take a nap during the day. I'm exhausted by 8:00 at night and just feel like going to sleep. I feel like sleeping in every morning. I'm not normally so tired. I'm wondering if it has anything to do with going gluten free? I don't quite understand...
  4. So you wouldn't take the Nexium the dr. prescribed? You would try gluten free for a while and see if the acid reflux clears up? Yes, they did do a biopsy after the endoscopy and it was negative for celiac. I have been gluten free for three days and it's possible it's just my imagination but I can tell a difference. I have had no stomach pain or...
  5. I finally got hold of my blood tests and have a clearer picture. My celiac panel was negative. The DQ2 test was positive. My endoscopy results were negative for celiac but showed I had GERD and also the doctor suspects bacteria in small intestine (just did breath test for this awaiting results). My other issues are joint pain, stomach pain immediately...
  6. TMI, I know but I'm really wondering this... I don't have diarrhea every day like a lot of people here do, but when I do, the BM is greasy and floating. My question... is "normal" diarrhea often like this, or is this a gluten specific thing? Just wondering if this is another sign for me. Thanks and again sorry if it's TMI.
  7. He did say he took samples from a few different areas. He made it seem though that he could tell a lot by just looking at the picture, pretty much diagnosing me negative right there. I don't like this doctor, can you tell? I'm going to start gluten free on my own despite the results anyway, so in a way I guess it doesn't matter much. It's just frustrating...
  8. The doctor told me afterwards that it showed I had acid reflux. He told me I should start taking prilosec. Also, he said there was redness somewhere else (I forget) which indicated to him a lack of good bacteria. He said he couldn't see anything that would make him think celiac. Although we are waiting on the biopsy for sure. My question... isn't...
  9. Before my endoscopy, I'm trying to eat lots of gluten. I've always had tummy trouble, but honestly never paid much attention and put two and two together, because I thought it was normal and everyone experienced the same things. So last night, I had pita bread slices with hummus. Then had a sub with white bread with avocados, tomatoes, cheese, onion...
  10. Thanks everyone for their responses. I saw an internal medicine doctor today and they scheduled an endoscopy for monday morning (next week!). I'm so glad they are willing to do it so soon. Even if the results are negative, I plan to start a gluten free diet anyway and see if my symptoms improve.
  11. Thank you. Yes, I don't plan to stop eating gluten until after my endoscopy. Although I have to say, I'm almost 100% convinced all my health issues are related now. I hope it doesn't take long to schedule the endoscopy. I want to see results now by starting the diet. I've been researching the last few days, and now I'm wondering if I've been describing...
  12. Thank you so much for your responses! I think I'm understanding things better now. One last question I have, is if I'm just "gluten intolerant", do I need to be AS careful with gluten like if DID have celiac? My understanding is with Celiac, one can not even have a trace of wheat. Must a gluten intolerant person be as strict? Thanks again!! I really...
  13. He was asking if I had any other health issues, so I told him about the above list. That's why he decided to order all these blood tests. I'm not sure exactly what the blood tests were. (I should have asked him for the results myself) He didn't tell me to schedule a gastric biopsy. Just told me to stop eating wheat and read a book on celiac. But I'm...
  14. I meant to add too, that the blood tests showed I was very, very low in vitamin D. Which again, I'm wondering if that's related to Celiac.
  15. I saw a neurologist for TMJ headache/jaw pain I've had chronically for the past year. He ran a ton of blood tests to see if there was some underlying issue at play. He told me that the blood tests showed that I was wheat intolerant and that I need to stop eating wheat and I should read a book on Celiac Disease. I'm confused. Does a blood test show...
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