jodikris

Guys I am not disagreeing with anything you are saying but here is a little info: They have not gotten ONE test postive for celiac. The only reason they even tested me was that Dapsone was the only thing that seemed to cure my skin issue. WIth that being said even the dermatologist is not sure what i have is celiac BECAUSE I have had a gastric bypass and...

I am currently 19 weeks pregnant and my DH has come back. I am not living gluten free because after biospies both internal and external 4 doctors have decided I only have the skin problem not the intestinal issues. I avoid wheat but I do eat some on occassion. I haven't had a break out in 8 months and got one this morning. I am scared to take my Dapsone...

I feel the same way ! I went to a nutritionist this morning. She thinks I may have Gluten Ataxia because I have been having what I can only describe as "spells" of weakness where I can't move my arms and head around. I am offically gluten free almost an entire week. It's a big step for me. She also gave me a ton of tips and label reading lessons. ...

Thank you guys all for the support. It's day 3 for me officially gluten free. I am still itching. I am pretty miserable. I was back in the hospital last night feeling really weak and disoriented....they STILL are blaming the dapson. I am kinda confused myself now....

Thank you guys both for your support. I was BACK in the ER yesterday. I Passed out at work. I am feeling better today. THey are doing a battery of tests on me. They still are blaming the dapson. I feel like I NEED the medicine because I am so itchy I am miserable. I aruged with the doctor about it but he said he is convinced it is causing the problems...

Over the past few years I have hopped on and off of this site. I think I am in denial that I have DH and Celiac. For about a year the Dapsone allowed me to live in this denial with only small break outs now and then. When I came to this site I found support and encouragement but I kept leaving. This weekend I was in the hospital getting blood transfusions...

Okay so I have been SORT Of diagnosed with DH over the past 2-3 years. I have been taking Dapsone. I started feeling kinda bad and I went in for a blood test. I was SEVERELY anemic to the point where I spent this weekend in the hospital undergoing blood transfusions. Can you guys tell me if this is from the Dapsone? I am so sad. I can't stop itching...

There is a lady on ebay selling gluten free pizza...her store address is: Open Original Shared Link they are FABULOUS!!!!!!!!!!!!! and she is VERY VERY nice and helpful and when I had a shipping problem (a small error) she fixed it and reshipped. SHE IS WONDERFUL!!!

I just got a fax from my dermatologist at my request to SEE my biopsy results...ONE test came back positive ONE came back negative for DH....is this possible>!>!>!>!>! So they are acting like I am crazy to be concerned about this...lets examine this...I am having to change my ENTIRE LIFE for a disease no one can tell me for sure that I have...

WOW you guys know your stuff. The next time I get on the computer at my house I will send anyone interested pictures of my DH...it gets very bad. Right now I have bloody arms from scratching...how can anyone look at that and not say: SOMETHING IS VERY WRONG HERE! My Dermatologist has been mine for 16 years..and he could NOT cure this! that is what he...

Thanks guys....i really needed to hear these things...if My bloodwork is not positive I am going to go back to the dermatologist and force him to biopsy me again!

There are only 2 groups where I live and he was a member of the biggest group. On thursday I get the results if It says negative I am still going gluten free. If my rash goes away if I stop eating Gluten...then wasn't it the gluten... I did find this article : Open Original Shared Link Maybe this is why I have struggled with my weight my entire...

Thank you nini....I just felt like a freak for going in there and saying I think I have celiac disease please test me. He was like WHat makes you think that...so I showed him the rash and told him what my biopsy said. So he says...well here is a PAMPHLET on gas (which told me not to eat gassy foods) and let's do a blood test...but I wanna write a paper...

Okay so I go today and basically am told since I am fat if I have it its WEIRD so WEIRD he wants to write a paper on me. I did get a positive test for DH....he then told me to go eat a biscuit and not worry about it. I AM NOT eating gluten until I know for sure on Thursday.... IM SO embarrassed!