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jodikris

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by jodikris

  1. jodikris

    Happy birthday and may God bless you today!

  2. jodikris
    Guys I am not disagreeing with anything you are saying but here is a little info: They have not gotten ONE test postive for celiac. The only reason they even tested me was that Dapsone was the only thing that seemed to cure my skin issue. WIth that being said even the dermatologist is not sure what i have is celiac BECAUSE I have had a gastric bypass and...
  3. jodikris
    I am currently 19 weeks pregnant and my DH has come back. I am not living gluten free because after biospies both internal and external 4 doctors have decided I only have the skin problem not the intestinal issues. I avoid wheat but I do eat some on occassion. I haven't had a break out in 8 months and got one this morning. I am scared to take my Dapsone...
  4. jodikris

    ARCHIVED In Denial

    jodikris replied to jodikris's topic in Coping with Celiac Disease

    I feel the same way ! I went to a nutritionist this morning. She thinks I may have Gluten Ataxia because I have been having what I can only describe as "spells" of weakness where I can't move my arms and head around. I am offically gluten free almost an entire week. It's a big step for me. She also gave me a ton of tips and label reading lessons. ...
  5. jodikris

    ARCHIVED In Denial

    jodikris replied to jodikris's topic in Coping with Celiac Disease

    Thank you guys all for the support. It's day 3 for me officially gluten free. I am still itching. I am pretty miserable. I was back in the hospital last night feeling really weak and disoriented....they STILL are blaming the dapson. I am kinda confused myself now....
  6. jodikris
    Thank you guys both for your support. I was BACK in the ER yesterday. I Passed out at work. I am feeling better today. THey are doing a battery of tests on me. They still are blaming the dapson. I feel like I NEED the medicine because I am so itchy I am miserable. I aruged with the doctor about it but he said he is convinced it is causing the problems...
  7. jodikris

    ARCHIVED In Denial

    jodikris posted a topic in Coping with Celiac Disease

    Over the past few years I have hopped on and off of this site. I think I am in denial that I have DH and Celiac. For about a year the Dapsone allowed me to live in this denial with only small break outs now and then. When I came to this site I found support and encouragement but I kept leaving. This weekend I was in the hospital getting blood transfusions...
  8. jodikris
    Okay so I have been SORT Of diagnosed with DH over the past 2-3 years. I have been taking Dapsone. I started feeling kinda bad and I went in for a blood test. I was SEVERELY anemic to the point where I spent this weekend in the hospital undergoing blood transfusions. Can you guys tell me if this is from the Dapsone? I am so sad. I can't stop itching...
  9. jodikris
    There is a lady on ebay selling gluten free pizza...her store address is: Open Original Shared Link they are FABULOUS!!!!!!!!!!!!! and she is VERY VERY nice and helpful and when I had a shipping problem (a small error) she fixed it and reshipped. SHE IS WONDERFUL!!!
  10. jodikris
    I just got a fax from my dermatologist at my request to SEE my biopsy results...ONE test came back positive ONE came back negative for DH....is this possible>!>!>!>!>! So they are acting like I am crazy to be concerned about this...lets examine this...I am having to change my ENTIRE LIFE for a disease no one can tell me for sure that I have...
  11. jodikris
    WOW you guys know your stuff. The next time I get on the computer at my house I will send anyone interested pictures of my DH...it gets very bad. Right now I have bloody arms from scratching...how can anyone look at that and not say: SOMETHING IS VERY WRONG HERE! My Dermatologist has been mine for 16 years..and he could NOT cure this! that is what he...
  12. jodikris
    Thanks guys....i really needed to hear these things...if My bloodwork is not positive I am going to go back to the dermatologist and force him to biopsy me again!
  13. jodikris
    There are only 2 groups where I live and he was a member of the biggest group. On thursday I get the results if It says negative I am still going gluten free. If my rash goes away if I stop eating Gluten...then wasn't it the gluten... I did find this article : Open Original Shared Link Maybe this is why I have struggled with my weight my entire...
  14. jodikris
    Thank you nini....I just felt like a freak for going in there and saying I think I have celiac disease please test me. He was like WHat makes you think that...so I showed him the rash and told him what my biopsy said. So he says...well here is a PAMPHLET on gas (which told me not to eat gassy foods) and let's do a blood test...but I wanna write a paper...
  15. jodikris
    Okay so I go today and basically am told since I am fat if I have it its WEIRD so WEIRD he wants to write a paper on me. I did get a positive test for DH....he then told me to go eat a biscuit and not worry about it. I AM NOT eating gluten until I know for sure on Thursday.... IM SO embarrassed!
  16. jodikris
    I have DH and I guess that means I have celiac. I gave birth to a healthy baby girl in Sept. 29th 2004 so don't lose hope. I was diagnosed with DH before i was pregnant and I ate gluten (unfortunately) cuz my blood test was inconclusive....well my DH was AWFUL during the entire pregnancy and she was still fine. She did only weigh 6 lbs 9.5 but still she...
  17. jodikris
    Clarie I understood what you were getting at I just didn't want you to think I was taking this lightly. I am very uninformed about this disease and hopefully that will change tomorrow when I see the gastroenterologist. I have TON of questions for him that I have written down. I also am having my husband go with me so he can see the real deal about this...
  18. jodikris
    Has anyone tried this softward? Would you recommend it?
  19. jodikris
    Okay so Im so confused now.... I can NOT have rolled oats? If a food contains gluten do they HAVE to say it? HELP!!!!!!!
  20. jodikris
    That was one of the reasons I thought I didn't have it...I had a positive biospy and a negative blood test. But I have too many symptoms to ignore it.
  21. jodikris
    Claire I think if you read all the posts you will see I am really trying... This is very hard for me. I have been pretty much a complusive over eater my entire life. Not to mention I live in SOUTH LOUISIANA where if it doesn't have a roux (flour & Oil) it aint worth eatin in most people's opinion. I plan to take this one day at a time. I kinda...
  22. jodikris
    I have also been gluten free since Friday. I went to whole foods for the first time and found a lot of things I could eat! Can you guys recommend a good resource for who to tell if bought foods have gluten?
  23. jodikris
    Thank you all for caring. I feel very alone right now and part of me feels so silly for feeling this bad about it.. I can't tell you what your posts meant to me. I showed my mom and dad and all the people in my life!
  24. jodikris
    Okay well you guys convinced me to make an appointment with a gastroenterologist for Tuesday at 8am. Thank you all for posting.
  25. jodikris
    Guys this is the thing.....my blood test say I do not have celiac but my skin test says I do...IM SO confused. The only other symptom I have is that I get diarreah sometimes.....but I need to tell yall I also had a gastric bypass...WHo is the best kind of doctor for me to see.....I don't know w hat to do. I have only seen my dermatologist. I don't know...
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