dkelm
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Latest Celiac Disease News & Research:
Everything posted by dkelm
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ARCHIVED Frustrated With Doctors And The Whole Process
dkelm replied to Mmama's topic in Parents, Friends and Loved Ones of Celiacs
I do think it's always smart to go with your gut, but to also listen to doctors. Can the doctor run some other blood tests? You mentioned C.F., they can run a blood test to see if she has any of the common mutations. (My youngest sister had C.F.) The symptoms in babies are very similar when you compare Celiac to C.F. -
ARCHIVED Enfamil Poly-Vi-Sol With Iron/ D-Vi-Sol Contain Caramel Color-- Ok?
dkelm replied to BrooklynFamily's topic in Parents, Friends and Loved Ones of Celiacs
If you are worried, could you just get vit d drops and a seperate iron supplement? That's what we do. -
ARCHIVED Baby Mum-Mums
dkelm replied to vegiac980's topic in Parents, Friends and Loved Ones of Celiacs
My baby never liked them. LOL I've only seen the regular ones though. -
ARCHIVED Endoscopy And Anxiety
dkelm replied to dkelm's topic in Parents, Friends and Loved Ones of Celiacs
awwe, thank you so much. It went okay. He took between 6-8 biopsies. There was one area that looked bumpy, but he said that could be normal (like swollen lymph nodes). Matt also had some pretty thick stool (two different ones), which is very funny to me since he always has liquid poo. But the doc said that could be new moving around old. I don't think... -
ARCHIVED Can I Vent For A Second?
dkelm replied to dkelm's topic in Parents, Friends and Loved Ones of Celiacs
I used to wear him ALL the time. I even made my own sling, which I LOVE. I haven't really thought about bringing it back out since he can't be in the cradle/tummy type hold in it anymore. Hmmm, I wonder if I can figure out how to hip hold him in it. Thanks for the idea! -
ARCHIVED Constant Peeing Symptom Or No?
dkelm replied to my3monkees's topic in Parents, Friends and Loved Ones of Celiacs
Huh, I've always wondered too. Matt pee's a TON. Again, I feel the need to make the disclaimer that we have not yet received a confirmed diagnosis. But this symptom is now added to the long list of other symptoms leaning towards that diagnosis. -
ARCHIVED Can I Vent For A Second?
dkelm posted a topic in Parents, Friends and Loved Ones of Celiacs
I love my child, I really do. I love all my kids. But my baby is the most clingy baby ever. I know it's because he doesn't feel good, so I always hold him. But man, sometimes I just want to crawl into a dark hole and stay there for an hour just so I can have someone not touch me for one hour! I'm also tired of being the only one who cleans up the vomit... -
ARCHIVED New With Questions
dkelm replied to Emeline405's topic in Parents, Friends and Loved Ones of Celiacs
An enlarged colon and severe constipation were the two major symptoms for my sister's daughter, who has a milk allergy. Her baby had severe constipation while being breastfed even. She would go 8 or 9 days w/o pooping. Have you tried putting a little teaspoon of corn syrup in her drink? That sometimes helped my sister's baby. But they have to give... -
ARCHIVED Endoscopy And Anxiety
dkelm replied to dkelm's topic in Parents, Friends and Loved Ones of Celiacs
Thanks! I do keep wondering why it is going to take so long to hear the results. He (the doctor) did call me and when I asked he said it takes 7 days, but my post-op is scheduled for 10 days later. I keep hearing people mention that they heard right after the procedure or the next day. Oh man, that would be wonderful to know that quick! We are just a... -
ARCHIVED Endoscopy And Anxiety
dkelm replied to dkelm's topic in Parents, Friends and Loved Ones of Celiacs
Thanks. I am a nervous wreck! And I've had these procedures done on myself, both of them! (For other issues.) That was a long time ago and I didn't have anxiety, but I sure do now! My baby is not even 2 yet, so I can't really talk to him about it, he won't really comprehend it. So we haven't said anything. I love the advice of waiting until he is asleep... -
Matt has his endoscopy (with biopsy) and sigmoidoscopy on Aug 9 at 9am. How did you, as a parent, deal with any anxiety before, during, and after? We won't know anything until the 19th, which is when he has his follow-up appointment. Right now I'm full of anxiety; I'm nervous and scared. I know I'll likely not be able to sit still during his procedure...
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ARCHIVED Shampoos, Soaps, Etc.
dkelm replied to dkelm's topic in Parents, Friends and Loved Ones of Celiacs
Thanks! I will keep that brand in mind. We have a Whole Foods about 30 min away and lots of other good similar stores close by. We are not gluten free yet. We have an endoscopy scheduled on the 9th. We were doing dairy and soy free and giving him EleCare because the doctor asked us to, but 2 weeks with those restrictions did not make any change in his... -
ARCHIVED Reading Some Of These Topics Has Me Thinking
dkelm replied to macocha's topic in Parents, Friends and Loved Ones of Celiacs
It's so hard not to compare, isn't it? We are outside ALL the time. My kids very rarely play video games (maybe one a month?), because they would rather be riding their bike or playing tag with their friends outside. When we are inside, they are usually fighting. HAHAHA!! So anyway, if he is outside playing like a normal kid plays - he is probably very... -
ARCHIVED Reading Some Of These Topics Has Me Thinking
dkelm replied to macocha's topic in Parents, Friends and Loved Ones of Celiacs
This my kid. He is 22 months old and still in size 12 month pants and shirts. Some 18 month stuff fits him slightly big, depending on the brand. But he is solidly still in 12 month size clothes and has been for 10 months now. We had a family picture taken in Oct and he is still wearing those clothes - and they still fit him correctly. I bought him some... -
Will skin contact with things containing gluten cause reactions? I'm curious, because Matt has been dairy/soy free for 10 days now but is not getting better. Yesterday, about 10 hours after his bath he had worse diarrhea and he vomited. But there was a lot of white raised bumps all over his back and chest where the shampoo was. We use Aveeno, so that...
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ARCHIVED Update & A Few Questions
dkelm posted a topic in Parents, Friends and Loved Ones of Celiacs
The blood test results came back. Matt is anemic and has a Vit D deficiency. So the Dr. will fax in a prescription for that today. We are still waiting on his stool samples. Also, the iga blood test was elevated, but they didn't give me a number. I think all the other tests were fine. They want me to keep Matt on the formula (Elecare) and our Upper... -
ARCHIVED Glutened Or Just Overtired/cranky 2- Year Old?
dkelm replied to BrooklynFamily's topic in Parents, Friends and Loved Ones of Celiacs
eek! I had no idea cross contamination could be this bad. I can imagine it's hard to tell the difference between just a cranky toddler and a toddler who is not feeling well. I know that all of my kids have been cranky for the first couple of nights at a new place; new routines and new environments can really throw them for a loop. I hope that it's just... -
ARCHIVED I Don't Know What To Expect
dkelm replied to dkelm's topic in Parents, Friends and Loved Ones of Celiacs
Oh shoot, I'm sorry if I wasn't clear. The doctor ordered a ton of blood tests, including a celiac blood test and a whole range of others. Since I'm still really ignorant on all of this, why does it feel rushed? I'm sitting here feeling like it's taking forever while my child is still not feeling well. Thanks for the recommendation for the spread... -
ARCHIVED I Don't Know What To Expect
dkelm replied to dkelm's topic in Parents, Friends and Loved Ones of Celiacs
Thanks for all the responses. We had an appointment yesterday. The doctor was really nice and very compassionate, which helped. He said everything is spot on for Celiac, but is doing other tests first. We started out with a lot of blood work and stool samples. He is testing for pretty much everything, including liver function, kidney function and malabsorption... -
ARCHIVED I Don't Know What To Expect
dkelm replied to dkelm's topic in Parents, Friends and Loved Ones of Celiacs
We did try a probiotic and it doesn't seem to help at all. He was only on the antibiotic for 2 days when it started and that was about 8 months ago. Would something like that still be causing issues? -
ARCHIVED I Don't Know What To Expect
dkelm posted a topic in Parents, Friends and Loved Ones of Celiacs
I don't know where to start, so I'm going to lay out my story and hopefully someone can give me input. My son, Matt, is 21 months old (Sept 2008 b-day), he is my third child. My other children never had any problems and I have done the same for him that I did with them. I breastfed Matt until he was 16 months old and waited to start him on solids until...